Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor Help- Is This The Right Move?


Rpm999

Recommended Posts

Rpm999 Contributor

well near me, there is supposed to be a top allergist/immunology....i've been through too much BS with doctors and need things tested like thyroid, food allergies, ect....i just had a crazy immune weakening thing happen a year ago that started all this, and what i hope for is to have a doctor that can listen to all my systems, check all levels, deficiencies and all that

but my main question, is an immunologist a good idea? i'd be wonderful if i could have food allergies tested, deficiencies/low levels of things like amino acids and what not, thyroid related things checked, all of that? you know, doctors are just dumb and somebody that can be like: "well since that came up, this could be up too, and could have led too this"

i remember my "doctor" said the only deficancy possible in the human body is B12...you know, i need somebody with knowledge based on the immune and all the deep, complicated things that won't come up so easily

doctors just disgust me sometimes, you get no answers or knowledge and are left to suffer, and with all this going on that's just what i need


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



miles2go Contributor

Hi Rpm999,

Doctors are like people, some are worth keeping. If you have a great immunologist in your area and can afford the cost involved, personally, I'd check them out. If they give you advice that doesn't seem right, get a second opinion. My current PHCP realizes that I have a condition that she doesn't know much about, but is willing to learn and refer me to people who have more of a handle on things. I go to a walk-in clinic. To me, that's as great a doc as someone who is completely well-versed in their specialized field. I could go out and find another doctor, but those chances are kind of slim where I live and maybe I'll do that at some point. In the meantime, the other doctors that I'm seeing seem to keep referring me to people I trust.

HTH,

Margaret

Rpm999 Contributor
Hi Rpm999,

Doctors are like people, some are worth keeping. If you have a great immunologist in your area and can afford the cost involved, personally, I'd check them out. If they give you advice that doesn't seem right, get a second opinion. My current PHCP realizes that I have a condition that she doesn't know much about, but is willing to learn and refer me to people who have more of a handle on things. I go to a walk-in clinic. To me, that's as great a doc as someone who is completely well-versed in their specialized field. I could go out and find another doctor, but those chances are kind of slim where I live and maybe I'll do that at some point. In the meantime, the other doctors that I'm seeing seem to keep referring me to people I trust.

HTH,

Margaret

yeah, i've just had the luck of all bad ones :lol: ...it sucks cause at the moment, i don't have insurance...i've been shut down for a lot, it's sad that health is jeopardized like that

i remember when i had severe athsma as a child, didn't have insurance then either and the BEST specialist around took me in, for free, and got me much better....it wasn't even a money issues, just the rare case of a doctor that actually cares about you and all that

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,828
    • Most Online (within 30 mins)
      7,748

    ABC reno
    Newest Member
    ABC reno
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.