Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need Some Advise Please.


1965kid

Recommended Posts

1965kid Apprentice

Hi,

I have recieved a lot of help from this board and after two months have the Gluten free thing down pretty good.

I feel better mentally.

But!

I had a big bowl of ice cream a few weeks ago and got horrible IBS (Big D) and bloating - gas.

I went lactose free and felt much better.

Then 3 days ago I fixed a huge pot of hamburger soup. I used two cans of beef broth which I verified gluten-free.

The morning after eating the soup I had real bad stomach cramps, bloating and Big D. Not realizing what it could be, I ate the soup again the next day. I noticed that I got flushed in the face while eating it. I put 2 and 2 together and realized it must be the Soy in the beef broth.

3 days later and I have the same cramps and Big D. I am not better yet! And all I have ate the last few days is fruit and veggies, tortilla chips, and a little smoked turkey.

If I am Soy intolerant, should it last this long? And why am I sick now when I have eaten soy all my life and never noticed major problems from it. Of course, I have had terrible IBS all my life and never looked for a soy intolerance.

Can I get a test for soy intolerance?

If it helps, I should note that I have been a heavy drinker all my life (Im 42).

I have quit drinking though. Since I cant have beer anymore, and I hate wine. I tried Rum for awhile, but dont like it either. I really dont like any hard liquor. So I guess I will just give up the booze.

I understand hard drinking can cause leaky gut?

This is all new to me.

I was doing real good till this episode.

There is NO chance of CC, so it has to be something else.

If I have to eliminate soy, well I just dont know if I can eliminate it completely. I mean no more microwave popcorn?> :o

And advise would be greatly apprecieated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Enterolab can test you for both soy and casien antibodies. They do this by looking for antibodies in the stool. They were quite helpful to me when I had gotten diverticulitis and then had an idiot doctor prescribe a new on the market very toxic and powerful antibiotic drug that I had an allergy to and it caused pancreatitis. After eliminating both I finally healed and have gained back the 10% of my body weight I lost in one day with the pancreatitis.

I might also take a closer look at the tortilla chips, you say you know they are gluten-free. I don't know what brand they are but if they are a mainstream brand they may not be as gluten-free as you think they are due to CC.

To get your tummy settled you should consider a day or two of the bra diet, bananas, plain rice, and plain applesauce. Boring I know but it should settle your tummy.

I hope you feel better soon.

bluejeangirl Contributor

You might look into a possible reaction to MSG. It would be in the broth and it's in all turkey deli/lunch meats. Although it's a hidden ingredient in many things. They either go by a different name or in turkey deli meat and canned tuna it'll be in the ingredient "broth". There are so many names for it it's hard for me to list them here. If you google "other names for MSG" or"hidden names" you'll get a list.

If you have a leaky gut MSG can give a person many symptoms. Some of them can be alittle scary. The blood brain barrier can also be considered leaky and give me all kinds of neurological problems.

If you don't think you react to the MSG in products like this it just might be the high sodium content they have. Your body can react to high sodium by retaining water. Which is why people get high blood pressure from it.

I guess you could keep testing different soy ingredients to see if you react the same. For try testing soy alone like in the milk and see if it gives you the same reaction.

Gail

hathor Contributor

I have a soy intolerance and never noticed it until my Enterolab test and subsequent elimination of soy from my diet. It is in so many things, it is entirely possible not to notice.

Two other factors -- I think intolerances can grow or be suddenly triggered for whatever reason. I used to be able to eat eggs; now they make me very ill, indeed. Further, soy intolerances can cause subtle symptoms. The biggest thing I noticed when I cut it out was that my complexion got better.

However, the probable MSG in the broth could be the culprit.

If you are soy intolerant, you have to cut it out completely. It is possible to have microwave popcorn without soy. I used Bearitos for years to avoid the fat. Now I use a microwave popcorn popper -- cheap, and it has already paid for itself given the cost differential between buying the boxes of microwave popcorn and just plain popcorn. I haven't looked at other microwave popcorns for years, so I don't even know that soy is a common ingredient.

sneezydiva Apprentice

Did the broth label list just soy or soy sauce? Soy Sauce is made from wheat and not gluten free.

hathor Contributor

If it contained a soy sauce with wheat, the word wheat would have to appear either in the list of ingredients or a "contains" statement, under US labeling law.

1965kid Apprentice

Thanks for the suggestions.

I ordered the Enterolab test today.

I am getting tested for soy, yeast, eggs, and milk.

At least that way I will know for sure about those 4 things.

I think it will be worth the $300.

My insurance wont pay for it, but I need to know for sure.

Letting go of $300 seems eaiser than doing all kinds of elimanation diets.

My Stomach is slowly getting better today.

I am going to be so careful fo rhte next few weeks.

Thanks again.

Im so glad to have found this community!

:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Thanks for the suggestions.

I ordered the Enterolab test today.

I am getting tested for soy, yeast, eggs, and milk.

At least that way I will know for sure about those 4 things.

I think it will be worth the $300.

My insurance wont pay for it, but I need to know for sure.

Letting go of $300 seems eaiser than doing all kinds of elimanation diets.

My Stomach is slowly getting better today.

I am going to be so careful fo rhte next few weeks.

Thanks again.

Im so glad to have found this community!

:)

Glad you are feeling a bit better. Having done both I found the Enterolabs tests to be much easier than elimination. For me it was well worth the expense.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,821
    • Most Online (within 30 mins)
      7,748

    Patty Andres
    Newest Member
    Patty Andres
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      As Plumbago mentioned, bleeding in the upper end of the GI track tends not to show up as bright red in color because it gets acted upon by the digestion process and more thoroughly mixed in with food residues that are passing through the intestines.
    • plumbago
      @Bronwyn W Working with your medical provider, you could do a complete blood count test. If you were bleeding say from an ulcer in the stomach (and let's hope not), your red blood cells could be low and your hemoglobin low as well. Your stools may show up as the proverbial "dark and tarry," indicative of a bleeding site further away from the anus. Basically, you may be anemic. Your heart may be beating extra fast as a way to compensate for the decreased number of blood cells, your oxygen saturation may be lower than normal on a pulse oximeter, and so on. But talk to your doctor.
    • Bronwyn W
      Thank you for this insight. I have had rectal bleeding after glutening and subsequent constipation (+ IBS-C) and always attributed it to internal hemorrhoids (diagnosed). What I wasn't aware of is the possibility of bleeding further up the digestive tract. Please can you elaborate on the causes and symptoms to watch for?
    • Scott Adams
      Be sure to be eating gluten daily until all of your celiac disease tests are completed (at least 2 slices worth of wheat bread per day for at least 6-8 weeks before any blood tests, and 2 weeks before an endoscopy).
    • knitty kitty
      @maylynn, No, I took over the counter thiamine supplements, thiamine hydrochloride, Benfotiamine, and TTFD (tetrahydrofurfuryl disulfide).  My doctors were not very knowledgeable about nutrition and vitamins, and they missed my symptoms being connected to vitamin deficiencies.  I studied nutrition before earning a degree in Microbiology because I wanted to know what vitamins were doing inside the body.  My doctors just prescribed pharmaceuticals to cover the symptoms of poor health due to malabsorption of nutrients. We need more thiamine when we're physically ill, physically active, emotionally stressed and work outside in hot weather.  Thiamine works in concert with the other B vitamins, so all should be supplemented together.  Vitamin D needs to be activated by thiamine.  Vitamin D helps regulate the immune system.   Don't take Thiamine Mononitrate because it is not bioavailable.  The body has difficulty absorbing and utilizing it.   Do keep us posted on your progress!
×
×
  • Create New...