Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help Me Figure Out The Etiquette


dandelionmom

Recommended Posts

dandelionmom Enthusiast

For upcoming holiday parties and get-togethers, I plan on packing gluten-free food for my daughter and me. Is it best to tell the host in advance that we'll bring our own food or is it better to just nonchalantly eat our own food? I'm concerned that if I don't tell them in advance they may go to extra trouble preparing something they think is gluten-free (but I wouldn't trust enough to feed to my daughter).

WWYD?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I always bring my own food. I tell the host/hostess that I plan to bring everything I need and not to worry about anything as far as I'm concerned.

Everyone, so far, has been fine with it--I would definately let them know, though.

Darn210 Enthusiast

I have done that - and I let them know. That way they know ahead of time - less likely to be offended. For a birthday party that my daughter went to, I had a mom that wanted to do "something". So I told her what brand of ice cream to buy (and also told her that my daughter's needed to be dished up first).

wolfie Enthusiast

I also let the host know in advance that I will be bringing my own food. I have had my son's friend's parents ask what brand of chips, ice cream, hot dogs to buy for him and that has worked out okay in the past. I also explain a bit about CC.

There aren't many people that I would trust to make a gluten-free meal...my DH, Mom, MIL and my Dad with lots of guidance (he is really good about reading labels though).

mandasmom Rookie
I also let the host know in advance that I will be bringing my own food. I have had my son's friend's parents ask what brand of chips, ice cream, hot dogs to buy for him and that has worked out okay in the past. I also explain a bit about CC.

There aren't many people that I would trust to make a gluten-free meal...my DH, Mom, MIL and my Dad with lots of guidance (he is really good about reading labels though).

I thinks it fine to bring your own food..most hosts probably appreciate not having to worry about you guys..lI most often eat before I go (reduces temptation) and whenever possible bring a gluten-free side or dessert that everyone can share...I really like showing others that there are wonderful gluten-free foods!! Last night I went to a friends house and brought ato die for rice pudding..everyone went crazy over it and there wanst a spoonful left at the end of the evening!!

Nic Collaborator

I always call ahead and ask what the host is serving. This way I try to match my son's gluten free food with the food everyone else is eating so he doesn't feel so different. For example, if the host is making baked ziti and meatballs, I make a gluten free baked ziti with gluten free meatballs to bring with us for him. No one has ever had a problems with it, it isn't like he just doesn't like their food, he can't eat it.

Nicole

tarnalberry Community Regular

I think it depends entirely on the host/hostess. In some cases - if the host/hostess knows that I have food issues, I don't say anything and just bring food. In some cases - if the host/hostess is particular about things being a certain way - I'll talk to him/her and find out what I should bring to match, or if I should just be eating ahead of time. I don't think there can be a single universal rule to apply to all situations.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    2. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    3. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    4. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    5. - KathyR37 posted a topic in Coping with Celiac Disease
      3

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.