Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Question About Allergic Reaction


fkewatson

Recommended Posts

fkewatson Rookie

Hi - I'm still trying to navigate my way through this new world of multiple allergies and gut repair for my 4.5 year old. I have a question:

re: environmental & food allergies - does anyone else here who themselves or have a child whose allergies manifest themselves through neurologic sensory dysfunction and ADD/ADHD type behaviors (forgive me if I haven't looked at the archives well enough to get the info from there - I'm constantly researching things and sometimes it is just easier to ask the question)? I'm wondering if his on-again-off-again heightened sensory behaviors at school are a result of increased mold exposure while there. We aren't seeing those behaviors at home, but the ADD/ADHD type behaviors are always there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

If he is being exposed to mold at school I would be very concerned as it can definately be taking a toll on his immune system and making him more sensitive to foods and environmental allergens.

I'm sensitive to many things...food intolerances as well as chemicals, molds and a ton of other things.

I eat only organic and am limited to only a few foods.

I do have neurological symptoms when exposed to chemicals, preservatives in food, food dyes, MSG, Aspartame....etc. I also react to natural occuring chemicals in foods due to an inability to break them down.

I have many of the symptoms seen in ASD's as well as some of the behaviors but I function pretty well avoiding the triggers.

I was symptom free and had no allergies until I got some dental work done which exposed me to more mercury than what my body could handle. I'm now being treated for that as well as the gut problems and other issues that go along with it.

In the meantime I steer clear of as many triggers as I possibly can...its not always easy.

I would definately suffer greatly from mold exposure since my body cannot deal with the additional burden of more toxins. The more toxins in the body the less able we are to detoxify and the build-up leads to more reactions and more symptoms.

The last time I was in a house with mold issues I cried and was depressed the entire time I was there....all of my symptoms intensified.

ADD/ADHD are very much linked to toxic overload....the consequence of that can be autoimmune disease, asthma, allergies, rashes, behavior problems, learning disabilities, chronic infections, digestive disturbances, etc.

fkewatson Rookie

Rachel,

Thank you for sharing your info! Your story is the first that sounds much like my son. I'd never heard of allergic reactions being manifested as neurological issues (and neither has his allergist or regular pediatrician) before I saw it in my son, and it still took 4.5 years for the real reason to be revealed to us.

May I ask, what type of doctor do you see (or better yet, who do you see? I'll take my son anywhere to see the right professional). The mainstream docs that we have seen thus far have no experience at all dealing with children like my son or, for that matter with any child with leaky gut/autoimmune/multiple allergies, etc. We have an appointment to see a homeopathic MD in Jan. I don't know if he'll be able to help, but it's worth a shot since otherwise I'm on my own trying to figure out what is wrong and what his triggers are. If they are chemical, environmental, atmospheric, etc, I have no idea how to control that. We live in TN and there is no way to escape mold here. His skin testing showed positive for most molds and he reacted with a very bad sensory regression when taking digestive enzymes that were made from aspergillus. He was on them for 2 weeks and 5 hours after I pulled them, he recovered. No one could explain it until he tested positive for the aspergillus. That was a proving point that at least some of his sensory issues may be caused by an allergy. He also reacts with the same type of sensory regression when taking a certain type of EFA supplement. I thought he was regressing for another reason, and stopped giving him the EFAs. When we learned of the multiple allergies, it dawned on me that he might be reacting to something in the formula of that brand of EFAs. So I started him on just plain old cod liver oil and voila! No regression and better attempts at speech (my son has apraxia. He isn't on the ASD spectrum). So it was the other EFA formula, but I don't know which ingredient. This is such a puzzle.

Katie

Mom23boys Contributor

I have behavioral allergies as do a couple of my kids. It is difficult to find a dr to work with you. Most only recognize IgE allergies.

I love the book "Is This Your Child" by Dr Doris Rapp. The Feingold Program also recognizes behavioral allergies and has a bunch of great research links on their site.

Juliebove Rising Star

The school thought my daughter had ADD. I didn't think so. After learning of her food allergies, her behavior is totally different. And her grades have improved.

Fiddle-Faddle Community Regular

Hi, Katie, welcome aboard!

You might try posting another thread about apraxia under the "parents of kids with celiac" section. That way you'd get more replies from others who have similar experiences (they might not read an "allergy" thread).

I'm also not convinced that apraxia is not part of the autism spectrum. One of my kids was diagnosed with autism at age 3, so I have a fair amount of experience with autism (at least, I think I do!). My nephew was diagnosed with apraxia, and his parents keep insisting that he is not autistic, but he is like a carbon copy of my son in terms of behaviors and issues.

Now it's certainly possible that my son was the one misdiagnosed--but I don't think that he was. Too many things--in both kids--fit PERFECTLY with an Asperger's diagnosis.

At the very least, I would say that there's gotta be a pretty big gray area in between. And, if it turns out that both are pretty much caused by external factors (food intolerances, environmental allergies, vaccine reactions, Lyme disease, etc.), then it would be nothing BUT a big gray area!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    2. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,923
    • Most Online (within 30 mins)
      7,748

    cmckurtz
    Newest Member
    cmckurtz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.