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Kenpo89

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Kenpo89 Newbie

Hi all, I am new to this site and am still trying to figure things out. I was diagnosed with celiac almost a year ago and am still trying to get it under control. I have a few questions but I will ask in some other posts.


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mamaw Community Regular

Hi Welcome to this site.

There are some of the very best people on here who have answers to alot of ???'s.. You will learn alot here... I'm a mentor from Pa . I have just started a support group in my area. If I can be of help to you regarding the best gluten-free foods & help in any of your gluten-free food cravings please feel free to ask me.

blessings

mamaw

Lisa Mentor

Welcome! Feel free to jump in...the waters pretty warm :)

blueeyedmanda Community Regular

Hi and Welcome to the Board! Feel free to ask any questions you might have, someone will have an answer :)

Guest GFinSoCal

A sunny California Merry Christmas to all. I am going to the GI doctor for follow up next Wednesday. I was diagnosed with DH in Sept this year, with a positive biopsy. Since then, my first bloodwork showed an IgG of 179. I was just tested again after being 3 months gluten free and my IgG is down to 107. I know the range should be less than 9. My IgA is 24. I just had all the xrays done this week (UGI & small bowel). My concern is, why would I need the biopsy done of my intestines, when I have the positive biopsy of DH and all of the bloodwork shows Celiac? I just want to get some opinions from you before I speak with my doctor about this.

By the way, I felt really bad for several days when I went gluten free. Severe stomach cramps, stayed in bed all day, etc. Is this normal?

Thanks so much for any advice or input, since I am so new with this disease.

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    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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