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Kenpo89

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Kenpo89 Newbie

Hi all, I am new to this site and am still trying to figure things out. I was diagnosed with celiac almost a year ago and am still trying to get it under control. I have a few questions but I will ask in some other posts.


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mamaw Community Regular

Hi Welcome to this site.

There are some of the very best people on here who have answers to alot of ???'s.. You will learn alot here... I'm a mentor from Pa . I have just started a support group in my area. If I can be of help to you regarding the best gluten-free foods & help in any of your gluten-free food cravings please feel free to ask me.

blessings

mamaw

Lisa Mentor

Welcome! Feel free to jump in...the waters pretty warm :)

blueeyedmanda Community Regular

Hi and Welcome to the Board! Feel free to ask any questions you might have, someone will have an answer :)

Guest GFinSoCal

A sunny California Merry Christmas to all. I am going to the GI doctor for follow up next Wednesday. I was diagnosed with DH in Sept this year, with a positive biopsy. Since then, my first bloodwork showed an IgG of 179. I was just tested again after being 3 months gluten free and my IgG is down to 107. I know the range should be less than 9. My IgA is 24. I just had all the xrays done this week (UGI & small bowel). My concern is, why would I need the biopsy done of my intestines, when I have the positive biopsy of DH and all of the bloodwork shows Celiac? I just want to get some opinions from you before I speak with my doctor about this.

By the way, I felt really bad for several days when I went gluten free. Severe stomach cramps, stayed in bed all day, etc. Is this normal?

Thanks so much for any advice or input, since I am so new with this disease.

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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