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Kenpo89

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Kenpo89 Newbie

Hi all, I am new to this site and am still trying to figure things out. I was diagnosed with celiac almost a year ago and am still trying to get it under control. I have a few questions but I will ask in some other posts.


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mamaw Community Regular

Hi Welcome to this site.

There are some of the very best people on here who have answers to alot of ???'s.. You will learn alot here... I'm a mentor from Pa . I have just started a support group in my area. If I can be of help to you regarding the best gluten-free foods & help in any of your gluten-free food cravings please feel free to ask me.

blessings

mamaw

Lisa Mentor

Welcome! Feel free to jump in...the waters pretty warm :)

blueeyedmanda Community Regular

Hi and Welcome to the Board! Feel free to ask any questions you might have, someone will have an answer :)

Guest GFinSoCal

A sunny California Merry Christmas to all. I am going to the GI doctor for follow up next Wednesday. I was diagnosed with DH in Sept this year, with a positive biopsy. Since then, my first bloodwork showed an IgG of 179. I was just tested again after being 3 months gluten free and my IgG is down to 107. I know the range should be less than 9. My IgA is 24. I just had all the xrays done this week (UGI & small bowel). My concern is, why would I need the biopsy done of my intestines, when I have the positive biopsy of DH and all of the bloodwork shows Celiac? I just want to get some opinions from you before I speak with my doctor about this.

By the way, I felt really bad for several days when I went gluten free. Severe stomach cramps, stayed in bed all day, etc. Is this normal?

Thanks so much for any advice or input, since I am so new with this disease.

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      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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