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Kenpo89

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Kenpo89 Newbie
Kenpo89
Posted

Hi all, I am new to this site and am still trying to figure things out. I was diagnosed with celiac almost a year ago and am still trying to get it under control. I have a few questions but I will ask in some other posts.

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mamaw Community Regular
mamaw
Posted

Hi Welcome to this site.

There are some of the very best people on here who have answers to alot of ???'s.. You will learn alot here... I'm a mentor from Pa . I have just started a support group in my area. If I can be of help to you regarding the best gluten-free foods & help in any of your gluten-free food cravings please feel free to ask me.

blessings

mamaw

Lisa Mentor
Lisa
Posted

Welcome! Feel free to jump in...the waters pretty warm :)

blueeyedmanda Community Regular
blueeyedmanda
Posted

Hi and Welcome to the Board! Feel free to ask any questions you might have, someone will have an answer :)

Guest GFinSoCal
Guest GFinSoCal
Posted

A sunny California Merry Christmas to all. I am going to the GI doctor for follow up next Wednesday. I was diagnosed with DH in Sept this year, with a positive biopsy. Since then, my first bloodwork showed an IgG of 179. I was just tested again after being 3 months gluten free and my IgG is down to 107. I know the range should be less than 9. My IgA is 24. I just had all the xrays done this week (UGI & small bowel). My concern is, why would I need the biopsy done of my intestines, when I have the positive biopsy of DH and all of the bloodwork shows Celiac? I just want to get some opinions from you before I speak with my doctor about this.

By the way, I felt really bad for several days when I went gluten free. Severe stomach cramps, stayed in bed all day, etc. Is this normal?

Thanks so much for any advice or input, since I am so new with this disease.

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    • trents
      Confused about HLA-DQ Celiac gene test result

      By trents · Posted

      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it.  But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder. 
    • ainsleydale1700
      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
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      Why now?

      By heart390 · Posted

      THANKS again!!!
    • trents
      Why now?

      By trents · Posted

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
    • heart390
      Why now?

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      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago.  The gluten will be my 4th autoimmune disease.  Thanks so much for all your input!!!
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