Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Stayed Outside The Parks At Wdw


sullystaub

Recommended Posts

sullystaub Rookie

We're going to Disney in March. Just booked the Wilderness Lodge with the dining plan, but am still wondering if staying outside would be better. It's not too late to change it. It's soo expensive & the rooms are small, but you get all the "Disney Extras". In the past, we've rented a townhouse near the parks & cooked meals & eaten at restaurants, but that was before ds was diagnosed. I've read all the wonderful things people say about the food in the parks/resorts. However, you do pay a premium for that & you also give up all the extra space a rental provides. I'm a little concerned about where to buy gluten-free foods & restaurants are always a problem. I suppose I could ship some food down to meet us on arrival, but that's a hassle. I should mention ds is also a picky eater. Ordering a piece of grilled chicken & veggies is not an option at restaurants. Any suggestions or experiences would be greatly appreciated. Thanks. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I have seen many members rave reviews on here which is great, especially for families with celiac children.

If it were me and I was a little strapped for cash, renting a townhouse/condo outside the park and making meals would be my answer...but I am not sure of the costs and such. Just an idea.

mamaw Community Regular

We stayed at Dsiney & used the dining pass which we think is the best way to go. We did book all of our eating ahead of time so we had to plan each day where we were going to be. But the disney booking site helped us to choose which day to be at what park. As some days are busy for one park & others maybe less busy.

We bookes everything by ourselves with the help of the booking staff at disney. That way we had no extra charges for a booking agency.

If you call disney they will give you a number to speak to someone in speciality dining who will send you alist of places gluten-free to dine. With the pass you gat a lunch, snack & a full course supper tip included. It is well worth the price as some buffets are about $30.00 a person just for supper.

We ate turkey legs, pizza, hamburgers ice cream, character breakfast, & hugh dinner buffets for no additional charge. There were four of us gluten-free & two reg eaters.

A couple of hints is when going to have a lunch at a order counter have the reg eaters get in line to order but the gluten-free need to go directly to a side counter where they can get someones attention & ask for the manager. The manager actually prepares the gluten-free food in a down stairs kitchen. This way all of the food was ready at the same time because if you wait in the reg line, the gluten-free food will be about 15 in or so later & then you waste time.

One of the best places to have supper is at the Boma in animal kingdom. Ask for chef TJ. He is the very best. We had a gluten-free fare that other tables were asking how & where to get our food menu!!! There was so much food! And delicious to boot.

At many of the stands are ok brownies that are sooo good.

If you don't use all of your snack passes or lunch passes while there you can use them all up on the last day.... We couldn't use all of ours & they told us to get gluten-free brownies & turkey legs to take home with us so that is what we did. We didn't waste any of the dining pass. If you don't use up the dining pass then you will have wasted money.

I froze turkey legs & enjoyed them months later as well as the brownies......

I'd go back just to be able to eat freely ............................love disney

Have fun

mamaw

bbuster Explorer

We went last June and stayed at Hawthorn Suites in Orlando. This is not a fancy place, but we were happy with it. The rooms are all 2-room suites, so my husband could stay up late and watch TV when the kids were already in bed. Includes a large breakfast every day, with scrambled eggs, bacon or sausage, fresh fruit, juice, milk, coffee, and some gluteny things like cereal, bagels, pancakes, etc. We brought our own waffles for my son to go with the gluten-free selections. In the evenings they had free drinks and a small snack, usually chips and nacho cheese sauce.

Every room has a kitchenette with refrigerator, microwave, stove (but no oven) and dishes, so we bought groceries and cooked some things.

They also have a free shuttle to Disney, Sea World, and Universal. If you stay outside the park and take your own vehicle there is a daily parking charge - something like $10 - $12.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,211
    • Most Online (within 30 mins)
      7,748

    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.