Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Stayed Outside The Parks At Wdw


sullystaub

Recommended Posts

sullystaub Rookie

We're going to Disney in March. Just booked the Wilderness Lodge with the dining plan, but am still wondering if staying outside would be better. It's not too late to change it. It's soo expensive & the rooms are small, but you get all the "Disney Extras". In the past, we've rented a townhouse near the parks & cooked meals & eaten at restaurants, but that was before ds was diagnosed. I've read all the wonderful things people say about the food in the parks/resorts. However, you do pay a premium for that & you also give up all the extra space a rental provides. I'm a little concerned about where to buy gluten-free foods & restaurants are always a problem. I suppose I could ship some food down to meet us on arrival, but that's a hassle. I should mention ds is also a picky eater. Ordering a piece of grilled chicken & veggies is not an option at restaurants. Any suggestions or experiences would be greatly appreciated. Thanks. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I have seen many members rave reviews on here which is great, especially for families with celiac children.

If it were me and I was a little strapped for cash, renting a townhouse/condo outside the park and making meals would be my answer...but I am not sure of the costs and such. Just an idea.

mamaw Community Regular

We stayed at Dsiney & used the dining pass which we think is the best way to go. We did book all of our eating ahead of time so we had to plan each day where we were going to be. But the disney booking site helped us to choose which day to be at what park. As some days are busy for one park & others maybe less busy.

We bookes everything by ourselves with the help of the booking staff at disney. That way we had no extra charges for a booking agency.

If you call disney they will give you a number to speak to someone in speciality dining who will send you alist of places gluten-free to dine. With the pass you gat a lunch, snack & a full course supper tip included. It is well worth the price as some buffets are about $30.00 a person just for supper.

We ate turkey legs, pizza, hamburgers ice cream, character breakfast, & hugh dinner buffets for no additional charge. There were four of us gluten-free & two reg eaters.

A couple of hints is when going to have a lunch at a order counter have the reg eaters get in line to order but the gluten-free need to go directly to a side counter where they can get someones attention & ask for the manager. The manager actually prepares the gluten-free food in a down stairs kitchen. This way all of the food was ready at the same time because if you wait in the reg line, the gluten-free food will be about 15 in or so later & then you waste time.

One of the best places to have supper is at the Boma in animal kingdom. Ask for chef TJ. He is the very best. We had a gluten-free fare that other tables were asking how & where to get our food menu!!! There was so much food! And delicious to boot.

At many of the stands are ok brownies that are sooo good.

If you don't use all of your snack passes or lunch passes while there you can use them all up on the last day.... We couldn't use all of ours & they told us to get gluten-free brownies & turkey legs to take home with us so that is what we did. We didn't waste any of the dining pass. If you don't use up the dining pass then you will have wasted money.

I froze turkey legs & enjoyed them months later as well as the brownies......

I'd go back just to be able to eat freely ............................love disney

Have fun

mamaw

bbuster Explorer

We went last June and stayed at Hawthorn Suites in Orlando. This is not a fancy place, but we were happy with it. The rooms are all 2-room suites, so my husband could stay up late and watch TV when the kids were already in bed. Includes a large breakfast every day, with scrambled eggs, bacon or sausage, fresh fruit, juice, milk, coffee, and some gluteny things like cereal, bagels, pancakes, etc. We brought our own waffles for my son to go with the gluten-free selections. In the evenings they had free drinks and a small snack, usually chips and nacho cheese sauce.

Every room has a kitchenette with refrigerator, microwave, stove (but no oven) and dishes, so we bought groceries and cooked some things.

They also have a free shuttle to Disney, Sea World, and Universal. If you stay outside the park and take your own vehicle there is a daily parking charge - something like $10 - $12.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,553
    • Most Online (within 30 mins)
      7,748

    Jennifer CCC
    Newest Member
    Jennifer CCC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.