Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Do When You Realize You Are Eating Something Bad?


colorado

Recommended Posts

colorado Apprentice

In the past getting glutened meant thinking and researching after the fact what I may have eaten that made me...sick.

Tonight we made tacos, like we do every week. I am big on my spicy salsas and we have really been enjoying a locally made one that per the ingredients is gluten free (as far as I can tell). I have never had any problems with it.

Last night I bought another kind of salsa to try, again, locally made. I never even looked at the freaking label. I look at labels on everything, but I didn't this time.

So I am taking the last bite of my first taco which has about a tablespoon of this salsa on it. My fiance stops eating and looks at me and says "Did you know this has barley malt?"

At least the salsa was damn good, not hot enough for my tastes though. So I opted to continue eating more tacos but with my known good salsa.

If you have in the middle of eating realized you made a mistake, what do you do? Obviously I am just waiting for the symptoms to kick in. I guess I thought, well to ideas here. One eat a whole bunch of food to try and dilute the small amount I ingested, or stop eating all together to potentially lessen the blow?

My problem is I have hard hardly any protein today. I had Vans waffles for breakfast, and Amy's Baked Ziti, a banana and a cocoa loco for lunch.

I really needed some protein so I opted to keep eating. It's been about 1:45 minutes since I finished my meal. I suppose the symptoms should start any time now. I'll update you all on what happens.

Just when I said to my fiance this evening, I think I am FINALLY all healed up, things are happening...um..normally.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sweetfudge Community Regular

i usually cry :D

this is a hot topic of debate between me and my husband. i was under the impression that once you get gluten in your system, a crumb or a foot long sandwich will cause the same reaction. that being said, if i know i've been glutened, i say why stop? but he says that the more i have in my system, the worse my reaction will be. seems like it's always been the same though...

i know it causes damage to the intestines, but will 2 doses in 24 hrs do the same as 1 dose? like, accidental gluten ingestion, then purposeful binging at Wendy's?

i got glutened the day before thanksgiving, and thought about just attending MIL's dinner without my gluten-free substitutions. husband said this was a very stupid idea. why would i cause further damage to my already-suffering body? decided to forego the "stupid idea", but i still don't know if i'm convinced. maybe someone here can help clarify :)

tarnalberry Community Regular

I say, it's chemistry. If you give your intestines more catalyst, you'll have more reaction. (I'm speaking chemical reaction, not necessarily "manifested physical symptom".) Is it one-to-one? Sure doesn't seem that way. Is it some other variety of linear or geometric? Hard to say. But I can't fathom, physiologically, how it would be unrelated.

So, I conclude, you stop eating the gluten containing item, and continue on eating - as you normally would - things you are *certain* are gluten free.

home-based-mom Contributor

" What Do You Do When You Realize You Are Eating Something Bad?"

I immediately stop eating it and take at least one GlutenEase capsule. B)

Continuing to eat something you know isn't good for you and will make you sick - or even sicker - :o just doesn't seem like a good idea to me. ;)

Depending on what else you have eaten during the day, and what your individual "normal" reaction to gluten is, finishing the meal sans gluten may or may not be OK. I personally probably would have done what you did because eating more food that is safe would not make things worse (for me) and the damage had already been done and could not be undone.

The GlutenEase would hopefully minimize the damage.

I definitely would NOT have eaten more gluten on purpose.

Offthegrid Explorer

In the beginning, when I got accidentally glutened, I tended to say, "Oh, well, what does it matter now that I already ate some gluten" and then go on a little gluten binge. That would leave me feeling sick for days. Stupid!

These days I stop eating it and get something else. (One time I realized it after I ate something and tried to throw up but wasn't able to, so I gave up on that idea.)

No one's perfect, and this diet is hard with a long learning curve. Especially if you have other food intolerances.

Glutenfreefamily Enthusiast

In the very beginning I did a few times like offthegrid said I would figure well since I have been glutened Im going to enjoy it instead of getting sick off stupid cross contamination and eat a krispy kreme or an arbys sandwich but it only made it much worse and my joint aches lasted for days.

Now when I get glutened which thankfully isnt too common I chug a couple of red bulls since it helps with the tiredness and migraines.

VioletBlue Contributor

When I realize I've eaten something with gluten in it I stop eating it. Bad is bad is bad. I've even spit out what was in my mouth if I realized while I was chewing. It never occured to me to just keep eating because the damage was already done. I wouldn't keep eating gluten anymore than I'd keep eating poison if I realized there was some in my food. It has nothing to do with logic or amount for me. I know the stuff causes damage, makes me sick and affects my mood. Knowing that I wouldn't knowingly eat it or keep eating it. That just follows for me. It's the way my brain works.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



babinsky Apprentice

still new to this....what is GlutenEase......what does it actually do and where do you get it?

darlindeb25 Collaborator

After 7 1/2 years of being gluten free, I still panic if I think I have eaten gluten and I stopped eating the food, whatever it is, no matter how good it is. I can't rinse my mouth out fast enough and then I stress over it. Usually, if this happens to me, it is just a threat of gluten and actually not gluten at all and I worry about nothing. Which, by the way, makes me much happier in the long run. I used to be so sick all the time, that gluten will probably always freak me out. I realize that I was being glutened by Xanax and my reaction was nothing like when I used to be so very sick, yet I do not want to take that chance either.

Leslie-FL Rookie

I'm also curious about GlutenEase. Does it help reverse the effects?

I've also wondered about Red Bull. Does it counteract the really bad fatigue? I occasionally use 5-Hour Energy and it really clears up brain fog, but I get such awful acid reflux reactions to it unless I take it with food.

Edited: I just did a web search for GlutenEase. This could be a good thing to take whenever eating out, just to be on the safe side. Have many people here tried it?

Cinnamon Apprentice

We've never tried Gluten-ease, but we've had a different brand which sounds like the exact same thing, it's DPP-IV and other enzymes. I think it helps. I wouldn't purposely eat gluten, but if you accidentally ingest it or think there may be some CC, I think the enzymes are definitely a helpful thing, at least for us.

Sweetfudge Community Regular

Where do you find gluten-ease anyway? RX or just at the pharmacy?

Leslie-FL Rookie
Where do you find gluten-ease anyway? RX or just at the pharmacy?

I'm new to the forums here, so I don't know if it's ok to put links here, but I did a web search and found it. I think I saw a post somewhere else where someone said they got it at their health food store. I'm going to check with mine this weekend. The health food store I go to is really good about ordering things if they don't carry them.

hathor Contributor

This has only happened to me one time. Usually I figure out the cross-contamination (or my failure to be paranoid enough) after the fact. But one time Maggiano's brought me the regular pasta, rather than the gluten-free stuff I had ordered. I was too busy drinking wine and people watching to notice until I had eaten a substantial amount.

On the way home, we stopped at a store and I bought senna tea. I had a couple cups at home, plus lots of water, magnesium, and some ibuprofen. Surprisingly enough, the next day I didn't feel too bad at all. Excedrin helped with my head. I wasn't completely normal for a couple days, but it was far better than I've felt when the full blown gluten reaction has hit me unawares, after consumption of a tiny amount.

My gastro reaction to gluten, though, is constipation, which is what the senna counteracts. My thoughts were to get the gluten out of my system as fast as I could, rather than letting the contents of my bowel turn to concrete and having the gluten sit there ready for absorption, bringing on the brain fog, etc.

This approach might be counterproductive if someone reacts to gluten with diarrhea. If your problem is that, I wonder if it is best to let your body eliminate the gluten as quickly as it is trying to do, rather than to take immodium or something, which would hold the gluten in your system.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,555
    • Most Online (within 30 mins)
      7,748

    JMF
    Newest Member
    JMF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.