Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Cant Believe Im Saying This But....

Glutenfreefamily

Recommended Posts

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted

Diarrhea from cross contamination is much better than constipation for me :ph34r::blink:

I was like this for about 10 hours this weekend :blink: :blink: Of course I had no red bull either and was too sick to get some from the store. I was glutened in the grocery store, Im assuming its because of the bakery as I walked past there and there were ladies baking within a few feet of me. I could not think at all, I felt like a drug addict because I was so out of it.

I had the worst case of brain fog I have ever had, I cant believe it lasted for 10 hours and of course I was glutened on a busy day in the morning so I was horribly unproductive that day. This is also the first time I had been constipated from gluten as its always diarrhea.

I wonder if it lasted so long because my body didn't force its evacuation, I hope to goodness I never get another glutening like that again. Anybody else swing from one to the other and notice your symptoms lasted longer than normal with constipation?

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I was dealing with something similar last spring after my bout with diverticulitis. In my case it was not gluten it turned out to be soy. Soy gave me very similar mental effects but clogs my system for days. My BMs will look like train wrecks, little pieces distinct that ball up at the end of the line and are very difficult to pass. The only thing I found that helps that is not a med of some sort is sweet potatoes. I assume it is the added fiber that helps but it works for me within 24 hours without any cramps or other unpleasent side effects.

You may want to look at soy reactions as a possibility.

darlindeb25 Collaborator
darlindeb25
Posted

Me too! When I get constipated, it is either soy or corn causing the problem, never gluten. I honestly do not think walking past the bakery in your grocery store will gluten you, I can't be sure of course, yet I do doubt it. I will say though, after over 7 yrs of being gluten free, the smell of fresh baked bread in a bakery no longer makes me want it, now it kind of makes me feel like running the other way!!!! I guess it's like a turning point in my celiac life, up until now, I still wanted bread when I smelled it, but lately, the scent has been making me turn away.

It's not unusual for a celiac to be intolerant of soy too. I was gluten free for 3 yrs before my soy intolerance reared it's ugly head and it was another 6 months or so before corn joined the group. They say the gluten intolerance hides the other intolerance's for a while. Live and learn huh?

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
  • Author

Thanks :)

Im positive it wasnt soy since I avoid it usually and have lately been avoiding it and eating a whole foods vegan diet. I cant imagine how I would get glutened otherwise since we didnt attend parties or have any gluten products in the home but ah well at least its done now. Im sure its gluten since I had my standard seizure which is my classic symptom since I was little.

I have been gluten free for over 2 years and now gluten totally turns me off, I do not want to feel what I use to feel before changing our diets.

hathor Contributor
hathor
Posted

I have heard several people notice that they felt glutened and the only thing they can think of is being in places where there may be flour in the air. So it is not impossible.

Is it possible that some product you bought was cross-contaminated? Those "made on the same equipment" type warnings are strictly voluntary. Anything new you've tried, either a food or a personal care product? You carefully read labels on everything?

Yes, it is frustrating when you have a reaction and any possibility you come up with seems so unlikely. But I guess unlikely things do happen sometimes.

Leslie-FL Rookie
Leslie-FL
Posted

I have wondered, myself, about flour in the air when someone is baking. So far I have had no reaction when going to places where baking is done, but I don't know that I've ever been somewhere WHILE they are doing their baking.

I wanted to help my mother with her holiday baking this year because she has a foot injury and standing for long periods of time is hard for her, but I was so leery of the flour-in-the-air thing. I offered to get one of those masks like they sell in the paint department, but my mom was just as concerned about it as I was and wouldn't let me help her.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
  • Author

Hathor- Thanks :) I have been doing mwl program so the only thing I can think of in terms of food if it had it on the skin of my veggies and it didnt get washed off properly. I havent used any new products. I hope its not corn :unsure: since that is used on a spray on my veggies and fruit. I would think I would still have it though since I have been eating them all along. I use to wash them with baking powder but not for the last six months since I have had to be really careful with my salt intake. Does red bull have soy in it? That is the only thing I have drank a few times this week for migraines.

Leslie- Thanks :) I could see the flour poof into the air :blink: when she threw some kind of dough onto the table within a few feet behind a counter as I was walking past. I panicked right there just wondering if it was going to happen. I know how you feel with wanting to help your Mom but I wouldnt risk it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hathor Contributor
hathor
Posted

Red Bull has no soy in it, but I suppose it could contain something else that bothers you. Or have you had it before without problems?

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
  • Author

So far I havent noticed problems with it, I drink it with migraines and when I have been glutened since it seems to help the headaches and me being tired.

Thanks Again :)

misdiagnosed6yrs Apprentice
misdiagnosed6yrs
Posted

Did you wash the handles on the cart? Or maybe touched something? Probably but that was my first thought

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.