Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Symptoms Of Gluten


little d

Recommended Posts

little d Enthusiast

I know that this sounds odd, but I don't know if this is part of my glutening thrugh the Christmas holidays. But every since the holidays I have had constint everyday pulls in my neck especially when I am looking left alot while driving. When I am reaching to rub my neck it is tender, with lots of knots to work out. And sometime my neck instantly hurts and I have to work it out again. It has lessened since I have been totally gluten free again but. Over the holidays I was careful as to what I ate, I opted out with the breads most times and any processed foods that was offered and tried to eat veggies even if I did not like the veggies offered like corn, and sweet potatos. I did not have any D but did have C and finally the Stringy D and I was hard to get up in the mornings, I was tired alot, started to zone out while driving again, which I hate doing. Felt very lazy, lathargik, slight heartburn that did not last too long, headaches, and I gained half of my weight back that I had lost. With being gluten free again it has lessened, my energy is back, I can concentrate better, and my poos are getting better, today was the first normal looking. I had thought about going to a Chriopractor to have him help me out some but I figured that it was gluten related, and I don't know if it is gas that traveled up to my neck and wrecked havick on my neck or just cricks that needed to be worked out.

I have spent a lot more time on the computer with my studies it could be that too.

Please give any opinions

donna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Daura Damm
GliadinX



Celiac.com Sponsor (A8-M):
Little Northern Bakehouse


missy'smom Collaborator

I had alot of those problems with muscle tension and tension headaches before gluten-free. Chiropractor that did a combo of adjustment, acupuncture, ultrasound and massage helped. I saw one for two years and finally retrained my muscles as to what normal really should be. I had waited two years to go in so they had become used to being out of whack. Stretches went the rest of the way to get me to the point that I didn't need to go anymore. I rarely have a problem now but the tension comes back a little when I've been glutened. Even if it's gluten related a chiropractor may still help in case like yours where it's progressed to this point.

Tesion has a habbit of building and spreading. All our muscles are connected through a system so even if I just do leg stretches I've noticed it helps my back and shouders. Sometimes the tension lifts when the effects of gluten wears off and sometimes we need to intervene and help our bodies out.

little d Enthusiast

It is defiantly easing up because it had gotten so bad that everytime that I turned my head to look especially left I would get that pull feeling and it would hurt. But with being gluten free again it has really helped. I think that I just might go ahead and go to the chriopractor since my insurance will pay for it, I will just have to pay my one time $50.00 deductable, because I am sure that I need to be adjusted too.

Thanks for you input

donna

jerseyangel Proficient

Hi Donna,

I have/had this symptom, too, and I don't see it mentioned very much so I was really intertested to hear your story.

I began to have problems with my neck about the time my Celiac symptoms began to get severe. Like you, I first noticed it after I drove, and thought it had someting to do with the way I turn my head (I don't rely on the mirrors only).

I did see an Accupuncturist, and went through several months of treatment--this was before the Celic was diagnosed. The modest amount of relief I got didn't last after the treatments stopped. Looking back, I feel that it failed to help becuse I was not gluten-free at the time, and I wasn't treating the underlying problem.

As time went on, I would wake up with it--sometimes the ache would wake me up. I don't seem to get it nearly as much since I went gluten-free over 2 years ago. Just recently, I was glutened by a product that, as it turned out, was made on shared lines with wheat. Unfortunately, I failed to read the whole label (it was marked gluten-free on the front, I failed to read the entire allergen statement on the back--very stupid on my part, I should have known better) and ate the food on and off for several days.

My GI symptoms were not as bad as I remembered, but that all too familiar ache in my neck came back, and was what convinced me that I was getting gluten somewhere. As I began to get over the glutening, the ache eased again.

I don't know exactly why this happens, I just know that it's somehow connected to gluten for me.

little d Enthusiast

Ok so this is probley related to gluten then with gas build up that is just trying to be released and happened to travel up to my neck. I have post pardom moms who just can't believe that eating something rich after a C-Section will create gas along with being opened up. Usually the gas stops in between my shoulder blades but rarely until recently that it had travelled and stayed for so long.

donna

Nancym Enthusiast

Actually, I found dairy products do this to me. I get terrible muscle spasms if I start using dairy products.

bluejeangirl Contributor

Whenever I'm under any kind of stress my neck hurts. I know I injured it along time ago but I also suspect its from having alot of old fillings that should be replaced.

Dietary stress from gluten is hard on your body. I'll toss and turn and not sleep well and my muscles get tense. Then the neck starts hurting. Other dietary stresses (for me) cause it too, like broccoli, cabbage and baked beans.

It sounded like you're glutening happened more then a few weeks ago? Do you typically have symptoms this long?

Gail


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
Lakefront Brewery



Celiac.com Sponsor (A8-M):
Lakefront Brewery


little d Enthusiast

Over the holidays I had been eating at other people houses and I just tried to be careful of what I ate but it was really hard, I would eat at home gluten free but that I know was not enough but if I had not eaten at home gluten free then I would have all my symptoms come back. It is hard to deal with this with not having an official diagnoses, my mother-in-law thinks that it is IBS and my Mom believes that I have a gall bladder issue because she did and so did my Grandmother. I was tested and negative because I had been eating gluten free when I finally got tested and it was surprise negative. So hopfully soon I will eighter go to another doctor, or go through Enterolab, either way is expensive even with insurance.

donna

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      130,340
    • Most Online (within 30 mins)
      7,748

    Linda Whelan
    Newest Member
    Linda Whelan
    Joined

  • Celiac.com Sponsor (A20):
    Daura Damm


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Lakefront Brewery



  • Upcoming Events

  • Posts

    • Scott Adams
      Your frustration and exhaustion are completely valid, and many in the celiac and gluten-sensitive community can relate to the overwhelming confusion you're experiencing. You’re being pulled in different directions by medical advice that seems contradictory, and it’s heartbreaking that your efforts to feel better are met with so many setbacks. Positive TTG IgA antibodies are not something to brush off, especially when combined with your long list of debilitating symptoms that clearly worsen with gluten exposure. A negative biopsy does not necessarily mean you don’t have celiac disease—it’s entirely possible that damage was missed, especially since biopsy results can vary depending on where the samples are taken and how many are collected. It’s also true that celiac disease exists on a spectrum, and many people have serious symptoms and immune responses without yet showing classic biopsy damage. Managing diabetes alongside suspected or confirmed celiac disease is incredibly tricky, especially when healthcare providers don’t work as a team to support your whole health. You shouldn’t be forced to choose between controlling your blood sugar or protecting your gut and immune system. A well-planned gluten-free diet can be both nourishing and diabetes-friendly, especially with guidance from a knowledgeable dietitian who understands both conditions. It’s also deeply concerning that your symptoms—neurological issues, severe fatigue, GI distress, rashes, and more—are being dismissed. You’re not just describing discomfort; you’re describing a level of illness that’s life-altering, and your instincts that something is seriously wrong are absolutely worth trusting. You know your body better than anyone. You deserve a team that listens, believes you, and helps you build a realistic, sustainable path to healing. Whether it’s celiac disease, non-celiac gluten sensitivity, or something else, you have every right to go gluten-free permanently if that’s what makes you feel functional. Many people never get a “perfect” diagnosis but reclaim their health by honoring their own experience and choosing a path of least harm. You are not crazy, you are not weak, and you are not alone. Keep advocating for yourself—you and your daughter both deserve a healthier, more stable life.
    • Wheatwacked
      While a definitive causal link remains unclear, vitamin D's known role in immune modulation and intestinal barrier integrity suggests that it plays a significant role in the development and progression of celiac disease.  Reduced 25(OH)D levels are associated with celiac disease.  In celiac disease, gluten can damage these tight junctions, and vitamin D may play a protective role in this context. 
    • Ginger38
      I have posted a lot on here and find that the support , advice and information here is much more helpful than anything else.. ever. I am really tired of the back and forth advice in the medical community and I am beyond frustrated and over all of it currently. I will try to keep this as brief as possible. I have positive TTG IGA antibodies - and I have had these every time I have been tested. The first time they were positive I was told I did not have celiac and couldn't have celiac but I was gluten intolerant and to go gluten free. I did this for about 3-4 months, dedicated I might add, and I did feel better. However, my blood glucose went up drastically and since I was already pre-diabetic and insulin resistant already, I was then told to stop the gluten free diet and resume eating gluten as it would be better for my diabetes.I have been on a yo yo diet and roller coaster since between the gluten free and not gluten free. I decided to see a gastro doc and after him promising me I had celiac based on all my symptoms and positive antibodies but we needed that actual diagnosis in order to be treated correctly, and we just needed the EGD with biopsies to have that diagnosis, I reluctantly agreed to go fully on the gluten challenge for 8 weeks prior to having an EGD and colonoscopy, both with biopsies . The gluten challenge was miserable. At first I was horribly constipated, I gained 9 pounds during the challenge, had horrible swelling issues, terrible bloating, looked and felt pregnant, had rashes and itching, couldn't stay awake, had extreme brain fog, exhaustion, speech difficulties, palpitations, tachycardia , menstrual issues, had an insatiable hunger, mood swings, just all the things. All of this to get the tests and biopsies done and they looked "okay" .. so even though I was told to live like a celiac all of the sudden I am no longer at risk.. I am just gluten intolerant.  I also have uncontrolled diabetes that they feel is made worse by the gluten free diet, so again after all these tests, but having all the symptoms and still having positive antibodies I feel like I am stuck with the choice in regards to my health of addressing the diabetes or the celiac (still don't believe I am not actually Celiac).  So I have been having gluten off and on to try and manage my diabetes, even though most recently, because I have been so physically sick again (that can't be good for diabetes either right??)  with stomach pain, burning, diarrhea, stools that are yellow in color and contain mucus, nausea, some vomiting, sour stomach, I was told I need to just eat gluten free so my stomach will improve, and we will just put you on insulin - I don't want to go on insulin yet, and especially if I do not actually have to. I don't understand why I am backed in this corner of feeling like I have to choose to eat for my diabetes or my stomach, but not both, but I am over it.   So currently in regards to GI symptoms - I consistently have nausea, vomiting, diarrhea, abdominal pain, gas , bloating, reflux, sour stomach, yellow stools with mucus.  I am also exhausted and have been itching. I have been having increased swelling, pain, and horrible numbness and tingling, especially in my hands. I am also having an increase in relentless nightmares and night terrors. I have also been having chest pain and palpitations and tachycardia. I have even tried taking digestive enzymes to help break down gluten - (specifically the Gliadin X) and they just seem to make me feel worse. I have trouble with digestion of things like salads, beans, broccoli, etc. on a good day, and that is even worse when I have gluten on any kind of semi-regular basis.   I just can't keep doing this. Mentally, physically and emotionally I am just DONE. I already have a lot of stress in my life.. I am a single mom to a daughter who has her own health issues and is somewhat special needs. I need to be 100% to be what she needs from me, especially with all the running back and forth we have been doing to the doctors and hospitals. So I am no doctor... but I just don't think they are right about any of this. I truly feel I am celiac.. and either the damage just wasn't bad yet, or they just missed the area that has damage, or its all a precursor to full blown celiac (kind of like pre-diabetes/insulin resistance is for actual diabetes). I don't want to live miserable and feel bad all the time. I also don't want my diabetes to be so out of control I have major complications, and I don't feel like insulin is a great option if not truly needed. At this point, if I ever feel like I have a somewhat clear path of what I am dealing with,  I feel like I am looking at MONTHS to YEARS of trying to heal my body. Please help!
    • Ginger38
      No, I have not been checked for any other deficiencies or issues. No one will check these things since my EGD looked normal and there was no damage. I recently saw my gastro doc and it is just frustrating. I have diabetes, which is basically uncontrolled, and I keep being told, stop eating gluten free, because the gluten free diet is contributing to my diabetes worsening. Then I am told oh just eat gluten free and you can go on insulin, which I don't feel like is a good answer either. So I end up eating gluten because they tell me it's okay or that I should bc of my diabetes. I am so sick today - physically mentally emotionally - just tired of this roller coaster ride.  I am open  for any realistic advice... I feel like I get more support here than in real life 
    • somethinglikeolivia
      I will definitely be looking into this! Thank you so much! 
×
×
  • Create New...