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Celiac Specialist In Las Vegas Nv?

b91hd7fjk

By b91hd7fjk
in Doctors

Recommended Posts

b91hd7fjk Apprentice
b91hd7fjk
Posted

I am DESPERATE!!!

I have been gluten-free for almost 3 yrs now annd am still having severe symptoms regularly...I think I am allergic to other things but the quest to get an Allergix IGg blood test has been more than difficult!!!!

I have a general doctor who seems to know nothing about what I am going through and seems to think I am just ingesting gluten still!! HELLO?? I have been doing this for 3 yrs!! I can read ingredients in my sleep!!! anyways.......she wants so send me to ANOTHER GI doc (her last referral sent me to a GI who told me I needed Metamucill 3x daily for the rest of my life....no joke!!! IDIOT!) Bottom line is I dont think I need another GI doctor...I just need someone like and allergy specialist, celiac specialist, nutritionist or actually just someone who can call the testing center and ask them to give me the simple blood test!!!!

argggg...sorry to vent....I've been dealing with this for about 4 days now and no one seems to understand.

If you have any suggestions PLEASE let me know.

Thanks,

Staci

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holdthegluten Rising Star
holdthegluten
Posted
I am DESPERATE!!!

I have been gluten-free for almost 3 yrs now annd am still having severe symptoms regularly...I think I am allergic to other things but the quest to get an Allergix IGg blood test has been more than difficult!!!!

I have a general doctor who seems to know nothing about what I am going through and seems to think I am just ingesting gluten still!! HELLO?? I have been doing this for 3 yrs!! I can read ingredients in my sleep!!! anyways.......she wants so send me to ANOTHER GI doc (her last referral sent me to a GI who told me I needed Metamucill 3x daily for the rest of my life....no joke!!! IDIOT!) Bottom line is I dont think I need another GI doctor...I just need someone like and allergy specialist, celiac specialist, nutritionist or actually just someone who can call the testing center and ask them to give me the simple blood test!!!!

argggg...sorry to vent....I've been dealing with this for about 4 days now and no one seems to understand.

If you have any suggestions PLEASE let me know.

Your best bet is to find a decent Naturopathic doctor. Most of them are well versed in Celiac and Food intolerances. What are your symptoms? Have you looked into candida and leaky gut. I have been gluten free for a year and i still feel awful. I recently got with an ND and she has me on a diet very similat to the Specific Carbohydrate diet. Google SCD Diet and look into starting one. It is a very simple diet that gived your body a chance to heal properly. My diet for 3 months is just seafood,chicken,beef,and vegetables. I can only eat chicken and beef once a week. She has me on L-Glutamine supplements and wants me to boost my omega 3's by eating fish and taking some supps. Fish is much easier to digest and it helps give your gut some of a break. Your gut is constantly working day in and day out. Its like if you have a scab and you keep picking at it, it will keep scabbing up. You need to be gentle and let your gut relax from its work by giving it easy work. Feel free to PM me if you want me to elaborate on anything. Good Luck

Thanks,

Staci

b91hd7fjk Apprentice
b91hd7fjk
Posted
  • Author

I am going to seriously look into it...actually as we speak...how do i PM you because i would love more info (sorry I am pretty new at this) I know there is more work I need but will my insurance cover that king of doctor??? If not...is it affordable?? I am a college student and pretty broke to say the least but I am definately interested in giving the diet a shot...please tell me more!!

-STaci

  • 2 weeks later...
JanS Newbie
JanS
Posted
I am DESPERATE!!!

I have been gluten-free for almost 3 yrs now annd am still having severe symptoms regularly...I think I am allergic to other things but the quest to get an Allergix IGg blood test has been more than difficult!!!!

I have a general doctor who seems to know nothing about what I am going through and seems to think I am just ingesting gluten still!! HELLO?? I have been doing this for 3 yrs!! I can read ingredients in my sleep!!! anyways.......she wants so send me to ANOTHER GI doc (her last referral sent me to a GI who told me I needed Metamucill 3x daily for the rest of my life....no joke!!! IDIOT!) Bottom line is I dont think I need another GI doctor...I just need someone like and allergy specialist, celiac specialist, nutritionist or actually just someone who can call the testing center and ask them to give me the simple blood test!!!!

argggg...sorry to vent....I've been dealing with this for about 4 days now and no one seems to understand.

If you have any suggestions PLEASE let me know.

Thanks,

Staci

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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