Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Why Do The Good Die Young


confused

Recommended Posts

confused Community Regular

I am so upset right now. I was reading our local paper this morning and found out an family member passed away last night, he was only 44. I am just in shock. My poor sil has to bury an young brother in november now an young bil now. He had been sick when my bil was so sick, but we had thought he was getting better. I guess i better get going on cleaning this house cause im sure i will have an houseful by the time the day is over. Keep us all in your thoughts and prayers.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ptkds Community Regular

I am so sorry to hear about this. I know what you mean about "Why do the good die young." Sometimes it just doesn't seem fair.

You guys will be in my thoughts.

blueeyedmanda Community Regular

Paula my prayers are with you.

It is tough with any death but it makes it worse when it is someone too young.

confused Community Regular

He did have such rough life tho, his parents had him late in life and he was born with cerebral or md, i cant think straight right now. But he was such an delight to be around. He always had a smile on his face, he couldnt talk much and when he did it was hard to understand, but he never let his condition let him down. He lived in a group home here and he loved it. They did so much with him. He started to go downhil when his dad passed away years ago. Last we heard was he was living with my sil, but something must have happened and he came back here. The paper just said he passed away and not much else.

paula

dlp252 Apprentice

I'm so sorry Paula!!! Sending {{{hugs}}} and prayers!

ravenwoodglass Mentor

I am so sorry to hear this.

I have endured a lot of loss in my life. I have come to believe that we are all here to teach something in our time here. Once that is accomplished we move on. Often that move comes much sooner than those who love us would prefer.

((((((((((((HUGS)))))))))))))))

confused Community Regular
I am so sorry to hear this.

I have endured a lot of loss in my life. I have come to believe that we are all here to teach something in our time here. Once that is accomplished we move on. Often that move comes much sooner than those who love us would prefer.

((((((((((((HUGS)))))))))))))))

I think you are so right especially with this guy. He taught so many to enjoy life no matter what, his disability never stopped him being happy. I do know he is in such an better place now were hopefully he can walk and talk and be with his dad. he was a very strong young man that meant so much to so many. I so hope they have the services here since he passed away here and that this doesnt come into a big ww3 like it did with my bil.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.