Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Any Celiac Symptoms Correlate To Pesticide Effect?


CCM

Recommended Posts

CCM Rookie

I am a newbie to this, please point me in the right direction if answers on this topic already exist.

I have been dealing with celiac symptoms over the past year. My blood work and endoscopy came up negative; however, all my symptoms say "yes." Going gluten-free makes me feel much better. I am transitioning to that now, however, my GI doc suggested organic wheat first in case the chemicals were bothering me. Lo and behold, I am able to tolerate organic bread.

My questions:

Is there any research linking gluten sensitivity symptoms to the effects of pesticides?

Without the blood work or biopsies positive, can I still be diagnosed as gluten "sensitive" or "intolerant" (is there a difference between these two terms?) by the gluten-free diet alone?

If any one can recommend a good doctor in SLC, UT, by the way, that would help too!

Look forward to your responses.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Maybe you don't actually have celiac, rather have chemical sensitivities. If you had celiac disease, it wouldn't matter whether the wheat was organic or not.

lightening16 Rookie

Hey

I hate to tell you this but wheat is rarely sprayed with any pesticides and if it is then it is for a fungal disease that is so toxic to humans ( the fungal wheat disease that is) that wheat that gets this disease and is harvested is actually considered toxic waste. They only spray for this when weather conditions are exactly right... once every 4-5 years at the most and only in specific areas not all .The only thing that might be sprayed on wheat would be herbicide that has fairly low human toxicity and sprayed very early in the season. So what I am saying is that pesticide residues in wheat are actually nil even when they are not organic.

CCM Rookie

I do have a past history of chemical sensitivity so that part would not surprise me, but the gluten sensitivity symptoms and the fact that I respond positively to a gluten free diet is all new to me. I am wondering if the chemical sensitivity is just the trigger my body needs to start me down that path. I also have not paid much attention to determining my exact symptoms after ingesting barley or rye. I pay more attention to wheat because the symptoms are most noticeable. So I have some work to do still.

I am wondering if I go gluten-free for a few days, would that have been long enough for me to handle any wheat organic or not, if I am just gluten sensitive...I don't understand whether or not folks find a certain personal threshold of tolerance...or are we just fooling ourselves and damaging our bodies anyway?

Would lightning16 please share where I can learn more regarding his/her comment about wheat and the pesticides/herbicide use? I would love to read more online.

Thanks so much for such quick responses.

lightening16 Rookie

Hi again

My comments are from work experience and personal experience. I am not sure where you can read about this but I will look into it. I used to work for the Ontario government as a specialist in integrated pest management. So I worked with Traditional farmers, ecological farmers and organic farmers to find when pests would actually be in their fields. I have my masters in weed science and had many years training in agronomy. Currently, I work part time for a government agency that is involved in the registration of new products for use on crops. There are certain foods that I would rather consume that are organic and others that I would rather that they were grown by ecological farming practices over organic. OFten times organic also has "organic pesticides " sprayed on them as well. They are minerals such as sulfur and copper or naturally produced pesticides. Just because a plant produces the pesticide does not mean that it does have human toxicity.

Wheat is really not being sprayed often enough for there to be pesticide residues. If they spray it you want it to be sprayed as opposed to consuming grain infected with fusarium (which produces the DON toxin)

This is a site that helps predict when a Fusarium outbreak might occur Open Original Shared Link and here is a site that discussed DON

Open Original Shared Link

Hope this helps

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    3. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

    4. - Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
      1

      About Celiac Remission

    5. - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Scott Adams
      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold; if it’s <0.025 mcg per kilogram, it would be extremely low and well within GF limits. Without the denominator, the result is incomplete. It’s reasonable to follow up with the company and ask them to confirm the result in ppm using a validated method (like ELISA R5)—that’s the standard used to assess gluten safety.
    • Scott Adams
      Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fact that it helped bloating suggests it may be affecting gut–nerve signaling, which makes sense in the context of SIBO, but that doesn’t mean the side effects should be ignored. You’re carrying a heavy load right now with ongoing skin, eye, and neurological uncertainty, and living in that kind of limbo is exhausting on its own. It’s understandable to feel overwhelmed and discouraged when systems and providers don’t meet you where you are—your experience is valid, and continuing to advocate for yourself, even when it’s hard, really does matter. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.