Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pulling My Hair Out!

L.A.

By L.A.
in Coping with Celiac Disease

Recommended Posts

L.A. Contributor
L.A.
Posted

Having a bad hair day here...need to know what shampoo folks are using, is it gluten free and do you like it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jodi Mills Apprentice
Jodi Mills
Posted

I have the same question, right now I am using sunsilk extra body shampoo and conditioner, I am still losing hair, but not nearly as much as I was when I was using Tresseme...

tarnalberry Community Regular
tarnalberry
Posted

I use ShiKai's shampoo and conditioner, and am quite happy with it. Definitely need the conditioner in the winter, though. :)

jerseyangel Proficient
jerseyangel
Posted

I also like ShiKai very much. I've used the Everyday Shampoo and Conditioner.

Dove is good, and will list any gluten on the label. I'm currently using Desert Essence.

Garnier has many gluten-free products--their Long and Strong Shampoo and Conditioner are gluten-free.

Ursa Major Collaborator
Ursa Major
Posted

I am using the Dove pro-age products (for people over 50) and love them.

My youngest daughter uses Dove as well, and did by choice before knowing about being gluten intolerant, because their shampoos, conditioners and gels are great. The same goes for the soap.

Mango04 Enthusiast
Mango04
Posted

I just started using Burt's Bees shampoo and conditioner (the grapefruit scented one). I really like it.

Some scents have wheat protein, so check the label.

L.A. Contributor
L.A.
Posted
  • Author
I have the same question, right now I am using sunsilk extra body shampoo and conditioner, I am still losing hair, but not nearly as much as I was when I was using Tresseme...

I think Sunsilk has gluten in it...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted

I use Ecover dish soap for shampoo, and Nature's gate conditioner. I'm cheap. But it works really good! My hair is so manageable now. And shiny. But I have lots of fine, light, long, fluffy hair. Might not work for different types of hair.

Jodi Mills Apprentice
Jodi Mills
Posted
I think Sunsilk has gluten in it...

I think it does too, But thats why I was asking what other people used, I am def. not going to go out and buy anymore shampoos and conditioners till i know for sure it has no gluten, and since my hair isnt falling out too bad, i figure ill use it till i get a brand, And thanks to all of you on here, I can finally go out and get some gluten-free shampoos!!!!!

I am new to the whole label reading thing, and sometimes Ill see something, and think its okay, but then find out its not.....

Thanks!!!!

L.A. Contributor
L.A.
Posted
  • Author
I think it does too, But thats why I was asking what other people used, I am def. not going to go out and buy anymore shampoos and conditioners till i know for sure it has no gluten, and since my hair isnt falling out too bad, i figure ill use it till i get a brand, And thanks to all of you on here, I can finally go out and get some gluten-free shampoos!!!!!

I am new to the whole label reading thing, and sometimes Ill see something, and think its okay, but then find out its not.....

Thanks!!!!

Read the label because I know I ended up giving mine away after checking the label. I know the Neutrogena clean shampoo is gluten-free but wanted a change. I did go and buy the Garnier Long and Strong and am having a good hair day today :D (thanks jerseyangel) L.A.

VioletBlue Contributor
VioletBlue
Posted

I use Pantene. Never had a problem with it. I can't do most of the "natural" or "organic" hair care products on the market because everyone seems to want to put sunflower oil in them. Whatever. If it's isn't one thing it's another.

Violet

jerseyangel Proficient
jerseyangel
Posted
I did go and buy the Garnier Long and Strong and am having a good hair day today :D (thanks jerseyangel) L.A.

Glad to hear it! :D

Jodi Mills Apprentice
Jodi Mills
Posted
Read the label because I know I ended up giving mine away after checking the label. I know the Neutrogena clean shampoo is gluten-free but wanted a change. I did go and buy the Garnier Long and Strong and am having a good hair day today :D (thanks jerseyangel) L.A.

Looks like its time to buy some new shampoo again!!! my BF will love this..lol i think he is tired of buying shampoo and conditioner, i must have given away 10 bottle by now...lol I am not so good at the label, although I am improving..looks like I will try me some dove...

Jodi Mills Apprentice
Jodi Mills
Posted

I dont remember which thread it was on, but I want to thank the person who told me about everyday minerals, I got my free samples in yesterday, and am wearing them today, which is a great pick me up, since I have been down the past 2 days. I love how light weight the makeup is, it looks flawless! Thank You!!

JNBunnie1 Community Regular
JNBunnie1
Posted
I dont remember which thread it was on, but I want to thank the person who told me about everyday minerals, I got my free samples in yesterday, and am wearing them today, which is a great pick me up, since I have been down the past 2 days. I love how light weight the makeup is, it looks flawless! Thank You!!

Isn't that stuff great? I like it too. I don't usually wear makeup, but I need good stuff for the rare occasion when I do, so I got some of their stuff and I love it. I wish they made mascara. But if you're feeling the pocketbook pinch for shampoos, the Ecover dish soap idea might work for you, because its so much cheaper than shampoo. It's expensive for dish soap, but awful cheap for shampoo. And if you hate it for your hair, at least you can use it for something else instead of having to give it away. It works for shampoo because it's a lot more liquidy than normal dish soap, it pours like water instead of goo. It's very gentle. Doesn't last as long as normal dish soap for washing dishes though, it dissolves fatser and you have to use more. It also smells a lot gentler, I'm so tired of shampoo that makes me sneeze.

jaime1103 Rookie
jaime1103
Posted

hi,

I was just diagnosed in december.... at the time my scalp was a mess (now I know why). I just switched to Dove and my hair and scalp are really healing.

Good luck with your search!

osusanna Newbie
osusanna
Posted

I also had noticable hair loss before gluten-free and after a few months began using lotions and shampoos that do not have wheat. It made a dramatic difference with my skin, scalp and hair problems.

I recommend Pureology zerosulfate purifyshampoo (pale green bottle) expensive but you use a very small amount so it lasts. It has tea tree oil in it also. Check carefully because not all of the pureolgy products are wheat free.

Neutrogena Clean Replenishing shampoo and conditioner are also great.

Chloe77 Newbie
Chloe77
Posted

What ingredients in make up and shampoo have gluten in them? Obviously wheat. But can it be hidden in other ingredients?

Jodi Mills Apprentice
Jodi Mills
Posted
Isn't that stuff great? I like it too. I don't usually wear makeup, but I need good stuff for the rare occasion when I do, so I got some of their stuff and I love it. I wish they made mascara. But if you're feeling the pocketbook pinch for shampoos, the Ecover dish soap idea might work for you, because its so much cheaper than shampoo. It's expensive for dish soap, but awful cheap for shampoo. And if you hate it for your hair, at least you can use it for something else instead of having to give it away. It works for shampoo because it's a lot more liquidy than normal dish soap, it pours like water instead of goo. It's very gentle. Doesn't last as long as normal dish soap for washing dishes though, it dissolves fatser and you have to use more. It also smells a lot gentler, I'm so tired of shampoo that makes me sneeze.

I love it, I just became their biggest fan..lol It is so light weight, and natural looking and feeling. Thanks for the tips with the shampoo thing its getting expensive..lol Anyhow things are going alot better, and I feel beautiful today(new makeup and all) Its been a while since I have felt this good.

Mango04 Enthusiast
Mango04
Posted
I dont remember which thread it was on, but I want to thank the person who told me about everyday minerals, I got my free samples in yesterday, and am wearing them today, which is a great pick me up, since I have been down the past 2 days. I love how light weight the makeup is, it looks flawless! Thank You!!

Hey, have you joined our Everyday Minerals Cult yet? If not, come over to the thread! :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.