Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Hate Er's


ptkds

Recommended Posts

ptkds Community Regular

Sorry, I just have to vent my frustrations somewhere!

Friday night, I wound up in the ER because I had a REALLY BAD headache, and my neck was hurting. I was dizzy, lightheaded, and just felt horrible. So my hubby took me in. First off, the nurse is just acting like I am faking or something. I was obviously crying from the pain, and she asked me if I was congested, then answered herself because I was sniffling. My dh says that I have not been congested at all, I was just crying, she had that look on her face. Then when she asked if I had taken any Tylenol that day, I couldn't remember (I still can't), and she had a hard time believing that I couldn't remember if I had taken some medicine. I was like HELLO! I am in way too much pain to think about whether I took some Tylenol or not. I mean, I had had a headache all week. The days just sort of blend together when you feel so bad.

When they put me in a room (really a curtained area), they put me right next to this old man (we felt so sorry for this man and his wife, though) that kept yelling and moaning with every breath, although there were plenty of empty beds further away. His yelling didn't help my head one bit. I noticed that there was no pillow on the bed, so we ask for one. Of course, they have no pillows! They offer me a few blankets! Like that will help my neck pain. Then we get this horrible dr we have met before. He blows all my symptoms off and tells me I most likely have the flu. We wait forever, they come do some tests. The lady that took my blood really hurt me (I normally don't have a problem with my blood being taken), and then says it isn't her fault that it hurts :unsure:

We overhear the same dr telling the ppl next to us that he probably has the flu, even though he has some rare palsey disease that affects the respiratory tract. So his choking is from the flu, not his disease :unsure: .

So they diagnose me with the flu, give me a dose of Tamiflu (which I didn't even confirm was gluten-free because I couldn't think straight) and three Tylenol 3's, a script that I can't afford, and send me home, even though my pain is still extreme and I can barely walk straight.

Today, I looked at the sheet they gave me, and under the title "Seek Immediate Medical Attention if:", they list "Severe headache; severe neck pain"

If I had been thinking straight that night, I would have looked at that paper, turned around and said "I have a severe headache and severe pain in my neck. Will you help me now??" The meds they gave me didn't touch my head pain at all. I was unable to do anything all weekend. Finally, the headache is gone and I am feeling much better. But I just wanted to die that night cuz the pain was so bad.

Why do ER's treat you like this?? We are told by the media and all these medical experts seek medical help when you have certain symptoms, then they treat you like you are wasting their time! It is just so frustrating!

Thanks for letting me vent!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I understand and I work in a hospital...we dont go near the ER...

Hope you are feeling better.

Rpm999 Contributor

i can't agree more, i've gotten TERRIBLE care at ER's, not to mention how much they lie to you...one nurse did the worst blood work i've ever had...she SLAMMED it in my arm so hard that if it slipped, my nerve would have collapsed...then told me to bend my arm, and when i did, it flew out and she blamed ME then slammed it in again (making ANOTHER hole) and my whole arm was bruised up and swollen....the same day, the doctor yelled at me for wanting a chest x-ray, the FOUR HOURS LATER came in and said OH WE'RE GONNA DO THE X-RAY NOW...i just left

tarnalberry Community Regular

I've been to the ER three times - three different ER's - all fairly minor. Once for stitches on my finger (and the nurse didn't want to believe me at first that she didn't fully numb my finger, but she did eventually), once for what was likely a kidney stone (and everyone was great, even though they were quite busy and there was a fairly long wait), and once for stitches to my face and chin (and again everyone was great, even though it took a while because we had to wait for the plastic surgeon to come down).

I'm not sure why the difference, but I suppose I also don't expect too too much out of them. :) I also count myself lucky if I get in within two hours, and get out in less than six. ;)

Green12 Enthusiast

Sorry you had to experience that.

I had a terrible ER experience myself over the summer. The Dr treated me horribly as well, terrible bed side manner. He didn't believe what I was going through and all but accused me of faking an anaphylactic reaction and severe all-over body swelling to get an Epi pen prescription to get a high off of.

I was there for 5 hours and nothing was accomplished, I only left with a bruised arm from the blood pressure cuff and all the poking and proding and IV line, and a HUGE bill.

confusedks Enthusiast

I'm sorry you had a bad experience too! I HATE ER's! They treat you like your medical problems aren't important. I went to the ER not too long ago because I had really low iron and my Hematologist told me to go, so I could get an iron IV and the Dr. said that anemia wouldn't cause exhaustion! :angry: She was such an idiot! I ended up leaving, after waiting in the waiting room for 6 hours!!! UGH! I hate ER's!

Adelle Enthusiast

So a few years ago I had an allergic reaction, just my lips swelled up. I called my insurance companies nurse line. They said to head to the ER just in case because the swelling was so close to my throat. I agreed. When we got there (at like 4am) the nurse took me seriously (I had my drivers license photo to prove my lips were 3x their normal size and beginning to split open) but the doc didn't. He accused me of drug seeking, said I was lucky to have big lips (after all women pay for lip injections), and then when I protested he gave me the "talk to the hand" gesture. That's when my husband kicked him out of the room. We left and found a dermatologist in the AM. She did a biopsy and found that it was an allergic reaction (I'd called my mom and turns out my dad had the same reaction to something, they never figured out what) and gave me shots in my lips (the only thing that fixes it as it turns out).

And the kicker, the freaking hospital had the nerve to charge me $600 ON TOP of what my insurance paid!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Seaperky replied to lizzie42's topic in Traveling with Celiac Disease
      2

      Trip to Anaheim/Disney

    2. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,349
    • Most Online (within 30 mins)
      7,748

    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.