Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Know Any Groups, Etc. In Richmond, Va?

rvagirl

By rvagirl
in Introduce Yourself / Share Stuff

Recommended Posts

rvagirl Rookie
rvagirl
Posted

Hey y'all, just wondering if there are any groups in the Richmond, Virginia area. Please let me know if anyone knows anything. Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

There is a really great group in the Richmond area.

Lots of involvement, and they have great speakers.

Richmond:

The West End Gluten Intolerance Group

dbmamaz Explorer
dbmamaz
Posted

I've been trying to get ahold of them but havent been able to. The website lists meeting time and place, but not DAY, and I emailed asking if the group was still alive and if they had lists of good doctors, and got no response. I'm in the far-west-end . ..

happygirl Collaborator
happygirl
Posted

Have you tried calling the branch manager?

dbmamaz Explorer
dbmamaz
Posted

No, I guess I should try that - i dont like the phone that much, I much prefer electronic communication - the kids can interupt me, i can do it when its convenient, its there when i'm ready for it. Plus, I'm waiting for the test results to come back, cuz I wasnt sure if they'd be open to me w/out any dx. So i'll try calling after I'm more sure . . .

rvagirl Rookie
rvagirl
Posted
  • Author

Thank you so much for the info! I just tried calling the branch manager but no one answered the phone. I'll also try emailing and see what comes of it. Since y'all are in the Richmond area, do you personally have any doctors, nutritionists, etc. that you know of to either recommend or avoid? Thank you!

  • 1 month later...
ar8 Apprentice
ar8
Posted
Thank you so much for the info! I just tried calling the branch manager but no one answered the phone. I'll also try emailing and see what comes of it. Since y'all are in the Richmond area, do you personally have any doctors, nutritionists, etc. that you know of to either recommend or avoid? Thank you!

Tina Shiver is an excellent nutritionist-- but she will likely try to give you the SCD diet book, it may help you, though it DIDN'T help me-- seems to help many people, though. You can find her at "tinashiver.com"

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Open Original Shared Link

Meeting dates/location have been updated.

flourgirl Apprentice
flourgirl
Posted

Hi Virginia! My Dr. sent me to the University of Va in Charlottesville to see Dr. Sheila Crowe, who's supposed to be the area's expert. I saw a nutrionitst there, too. I got a lot more out of the nutrionist than I did anyone else! I had to wait a very long time to go......might be worth it to you. Good luck!

happygirl Collaborator
happygirl
Posted

VCU also has experienced GIs. They are participating in a Celiac research study.

  • 2 months later...
Guest LizzieO
Guest LizzieO
Posted
VCU also has experienced GIs. They are participating in a Celiac research study.

Could you recommend anyone in particular at VCU. My family doctor and dermatologist have both recommended I go for a GI work-up for ?able DH/celiac. The only MD I've found in VA specializing in these areas is Dr. Sheila Crowe at UVA...but can't get in with her until the end of July. Her office offered an appointment with a physicians' assistant in June; however, I'm a little reluctant to go to her vs. an MD. Do you have any suggestions?

LizzieO

  • 5 months later...
EmmBee66 Newbie
EmmBee66
Posted
Could you recommend anyone in particular at VCU. My family doctor and dermatologist have both recommended I go for a GI work-up for ?able DH/celiac. The only MD I've found in VA specializing in these areas is Dr. Sheila Crowe at UVA...but can't get in with her until the end of July. Her office offered an appointment with a physicians' assistant in June; however, I'm a little reluctant to go to her vs. an MD. Do you have any suggestions?

LizzieO

Dr. michael farrell with richmond gastrointestinal specialists diagnosed me and seems very aware of celiac and related issues. they have several offices and their web site is www.gastrova.com. Hope this helps! --emmbee

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      results from 13 day gluten challenge - does this mean I can't have celiac?

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st worst 12 days of my life Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    2. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks. Even at 8000 I felt no noticeable difference. Then after...
    3. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

      I don't know if I am getting sufficient Omega Threes. I read about phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    4. Scott Adams
      0

      Gluten-Free Cantonese Steamed Fish with Ginger, Scallions, and Sizzling Oil

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      results from 13 day gluten challenge - does this mean I can't have celiac?

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue. I have eaten a supposedly high lectin diet (I say supposedly because lectin...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.