Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Know Any Groups, Etc. In Richmond, Va?


rvagirl

Recommended Posts

rvagirl Rookie

Hey y'all, just wondering if there are any groups in the Richmond, Virginia area. Please let me know if anyone knows anything. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

There is a really great group in the Richmond area.

Lots of involvement, and they have great speakers.

Richmond:

The West End Gluten Intolerance Group

dbmamaz Explorer

I've been trying to get ahold of them but havent been able to. The website lists meeting time and place, but not DAY, and I emailed asking if the group was still alive and if they had lists of good doctors, and got no response. I'm in the far-west-end . ..

happygirl Collaborator

Have you tried calling the branch manager?

dbmamaz Explorer

No, I guess I should try that - i dont like the phone that much, I much prefer electronic communication - the kids can interupt me, i can do it when its convenient, its there when i'm ready for it. Plus, I'm waiting for the test results to come back, cuz I wasnt sure if they'd be open to me w/out any dx. So i'll try calling after I'm more sure . . .

rvagirl Rookie

Thank you so much for the info! I just tried calling the branch manager but no one answered the phone. I'll also try emailing and see what comes of it. Since y'all are in the Richmond area, do you personally have any doctors, nutritionists, etc. that you know of to either recommend or avoid? Thank you!

  • 1 month later...
ar8 Apprentice
Thank you so much for the info! I just tried calling the branch manager but no one answered the phone. I'll also try emailing and see what comes of it. Since y'all are in the Richmond area, do you personally have any doctors, nutritionists, etc. that you know of to either recommend or avoid? Thank you!

Tina Shiver is an excellent nutritionist-- but she will likely try to give you the SCD diet book, it may help you, though it DIDN'T help me-- seems to help many people, though. You can find her at "tinashiver.com"


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Open Original Shared Link

Meeting dates/location have been updated.

flourgirl Apprentice

Hi Virginia! My Dr. sent me to the University of Va in Charlottesville to see Dr. Sheila Crowe, who's supposed to be the area's expert. I saw a nutrionitst there, too. I got a lot more out of the nutrionist than I did anyone else! I had to wait a very long time to go......might be worth it to you. Good luck!

happygirl Collaborator

VCU also has experienced GIs. They are participating in a Celiac research study.

  • 2 months later...
Guest LizzieO
VCU also has experienced GIs. They are participating in a Celiac research study.

Could you recommend anyone in particular at VCU. My family doctor and dermatologist have both recommended I go for a GI work-up for ?able DH/celiac. The only MD I've found in VA specializing in these areas is Dr. Sheila Crowe at UVA...but can't get in with her until the end of July. Her office offered an appointment with a physicians' assistant in June; however, I'm a little reluctant to go to her vs. an MD. Do you have any suggestions?

LizzieO

  • 5 months later...
EmmBee66 Newbie
Could you recommend anyone in particular at VCU. My family doctor and dermatologist have both recommended I go for a GI work-up for ?able DH/celiac. The only MD I've found in VA specializing in these areas is Dr. Sheila Crowe at UVA...but can't get in with her until the end of July. Her office offered an appointment with a physicians' assistant in June; however, I'm a little reluctant to go to her vs. an MD. Do you have any suggestions?

LizzieO

Dr. michael farrell with richmond gastrointestinal specialists diagnosed me and seems very aware of celiac and related issues. they have several offices and their web site is www.gastrova.com. Hope this helps! --emmbee

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748

    Rockette47
    Newest Member
    Rockette47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.