Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Get More Tests Or Just Go gluten-free?


CCM

Recommended Posts

CCM Rookie

Need a little feedback. I am new to this board and finding information very helpful.

I had an anti-endomysial test done in July 07, negative.

I had a biopsy done anyway, Nov 07, negative.

I had food allergy tests, Jan 08, negative.

I am intolerant of gluten and possibly dairy by way of elimination dieting since the beginning of this year. There has been cheating and experimenting with organic food so I am not completely gluten-free.

Would it be worth having other blood tests at this point? Need I still be on gluten for those?

Or just go gluten-free and consider instead something from the Enterolab or some other place?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
  CCM said:
Need a little feedback. I am new to this board and finding information very helpful.

I had an anti-endomysial test done in July 07, negative.

I had a biopsy done anyway, Nov 07, negative.

I had food allergy tests, Jan 08, negative.

I am intolerant of gluten and possibly dairy by way of elimination dieting since the beginning of this year. There has been cheating and experimenting with organic food so I am not completely gluten-free.

Would it be worth having other blood tests at this point? Need I still be on gluten for those?

Or just go gluten-free and consider instead something from the Enterolab or some other place?

Blood test can be inaccurate whether someone is on gluten or off. They are not conclusive.

I would say to go totally free of gluten. No cheating. Concentrate on the gluten and dairy for some time and see how you feel. Several months down the road, add the dairy back and test the waters.

I have no experience with Enterolabs, so I don't recommend. Others here have been quite please with them.

CCM Rookie

Thanks. That pretty much confirms what I have been thinking.

aikiducky Apprentice

As far as I know Enterolab can't tell you anything that you won't find out simply by trying to be gluten free. That is, they don't diagnose celiac, they can just tell you that you might feel better gluten free, which is what you would find out by trying the diet anyway. I suppose the gene test might be interesting.

Pauliina

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Help needed

    2. - Idnam replied to Jhona's topic in Introduce Yourself / Share Stuff
      21

      Does anyone here also have Afib

    3. - knitty kitty replied to SB04's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      False tTG3 Test?

    4. - Idnam replied to cristiana's topic in Related Issues & Disorders
      24

      Ectopic heartbeats - any relation to digestive issues?

    5. - Russ H replied to SB04's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      False tTG3 Test?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,717
    • Most Online (within 30 mins)
      7,748

    JohnnyKorn
    Newest Member
    JohnnyKorn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Thankyou I will definitely have a look your very  insightful and a lot is making sence 👍
    • Idnam
      Oh my, I have always had the symptoms for B12 deficiency, which is why I had the blood test that led to my celiac disease diagnosis I had been taking  B vits have been always been amazed that all ,my bloods were perfectly normal! I queried this many times with my doctor as to whether the B12 was active and being absorbed or whether it was just in my bloodstream. They dismissed this idea. And of course I still take them. Thank you so much, what a revelation and really quite understandable,  I am about due for my annual full blood test so maybe I will just stop taking them?
    • knitty kitty
      @SB04, Have you been checked for B12 deficiency?  A deficiency in Vitamin B12 will cause hives and also raise the tTg 3 IgG level, even in people without Celiac Disease.   You can have B12 deficiency without having Celiac Disease.   All eight B vitamins work together.  Do not supplement just a single B vitamin.   Best wishes.
    • Idnam
      I've just had 24 hr ECG monitoring but I am convinced the problem with my heart arythma  is due to Histamine intolerance. I was making and loving L reuteri yogurt, supposed to get rid of sibo, I was also having, on a daily basis, kefir, sauerkraut and loads of spinach plus Avacado. Bananas and cheese have long  been off my list of safe foods as I was having a sort of allergic reaction after eating them and my accupuncturist said I had a heart arrythma.  After the yogurt fest mentioned above, I had a racing heart rate and think I must have had far too many Histamine producing foods. Apparently celiacs have too much histamine in their system anyway and I was, on a daily basis, eating very...
    • Russ H
      The problem with a a multiple screening test like this is that it is likely to generate at least one result that is outside the normal range in a healthy person leading to futile investigations. The pathogenesis of dermatitis herpetiformis makes it unlikely that someone would have raised IgA-tTG3 but not raised IgA-tTG2. Suspected dermatitis herpetiformis should be referred to a specialist for diagnosis. dermatitis herpetiformis causes a specific rash and symptoms - not merely hives. https://bestpractice.bmj.com/topics/en-gb/3000326
×
×
  • Create New...