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New With Celiac

Bayson

By Bayson
in Coping with Celiac Disease

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Bayson Newbie
Bayson
Posted

Hello, I found this place in thanks to my boyfriend who has been extremely supportive in my gluten struggle.

It all started a year ago (around December '06), I started getting sick badly but it was so little I didn't think much often. However by July '07 things were getting bad. I was in so much pain I would cry. Wake up feeling so sick. My doctor tried different meds but when nothing worked I was sent to the specialist and was scoped in November '07.

The tests came back in mid December that it was highly believed I had Celiac and needed to go gluten free. I knew little to nothing. Most of my meals were bunless burgers I grilled at home. In 2 weeks I felt great. I was cheerful, hanging out with friends, even dancing again. However on new years I got badly ill once more. Everyday it was worse and I layed off the burger and things got better (my boyfriend was eating the same burgers and was fine so maybe they some how got contaminated?).

I write down all that I eat which generally is gluten free chicken breast from walmart as well as other gluten free items some of the stores carry, just to see if I can find any patterns. However even with that, I still get tummy aches. In the past it felt like a certain area hurt but now its like my stomach as a whole. Its not as sharp either just my stomach over all. I also still suffer nausea often and lets just say my bathroom habits are different each day. I also tend to be very burpy too.

Is this normal? I know it differs for everyone, but truth be known I'm still scared over all this as its still new to me.

I work hard to make sure what I eat is gluten free. Personally while it sucks I can't eat what my friends eat, I dont mind it if it means I feel normal and can have fun with them. I miss being my old self who was carefree, I miss hanging out and going to the mall and stuff. I guess the main reason I post here is I would love to hear back from anyone with the same. I know I'm not alone with this. That small time when I felt normal around Christmas was wonderful. It was a small taste of what I want. I'm just curious if others deal with the same when they first started.

Thanks so much for reading this.

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holdthegluten Rising Star
holdthegluten
Posted

I have been gluten-free for a year and i am still tryingto figure out what foods are bothering me. When you first go gluten free you need to cut out all Dairy. Your Villi normally produce lactase when they arent damged, so you will have a hard time digesting milk until you heal. 2nd, you need to keep it simple. Just eat meat, veggies, fruit and rice until you heal. Give yourself 6 months just eating simple whole foods. Stay away from specialty gluten-free foods for now......give yourself some time. Many of us develop additional food intolerances for some reason, so it may be multiple foods that will cause gluten like reactions. Right now i am on a grain free diet...........all i eat is seafood,beef,chicken, some fruit and veggies......that's it. I am very determined to feel better. I just recently realized that i cant digest nuts well and i cut them out. Go slow and keep it simple.

jewi0008 Contributor
jewi0008
Posted
Hello, I found this place in thanks to my boyfriend who has been extremely supportive in my gluten struggle.

It all started a year ago (around December '06), I started getting sick badly but it was so little I didn't think much often. However by July '07 things were getting bad. I was in so much pain I would cry. Wake up feeling so sick. My doctor tried different meds but when nothing worked I was sent to the specialist and was scoped in November '07.

The tests came back in mid December that it was highly believed I had Celiac and needed to go gluten free. I knew little to nothing. Most of my meals were bunless burgers I grilled at home. In 2 weeks I felt great. I was cheerful, hanging out with friends, even dancing again. However on new years I got badly ill once more. Everyday it was worse and I layed off the burger and things got better (my boyfriend was eating the same burgers and was fine so maybe they some how got contaminated?).

I write down all that I eat which generally is gluten free chicken breast from walmart as well as other gluten free items some of the stores carry, just to see if I can find any patterns. However even with that, I still get tummy aches. In the past it felt like a certain area hurt but now its like my stomach as a whole. Its not as sharp either just my stomach over all. I also still suffer nausea often and lets just say my bathroom habits are different each day. I also tend to be very burpy too.

Is this normal? I know it differs for everyone, but truth be known I'm still scared over all this as its still new to me.

I work hard to make sure what I eat is gluten free. Personally while it sucks I can't eat what my friends eat, I dont mind it if it means I feel normal and can have fun with them. I miss being my old self who was carefree, I miss hanging out and going to the mall and stuff. I guess the main reason I post here is I would love to hear back from anyone with the same. I know I'm not alone with this. That small time when I felt normal around Christmas was wonderful. It was a small taste of what I want. I'm just curious if others deal with the same when they first started.

Thanks so much for reading this.

Are your stomach problems your only symptom?

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