Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Diease And Anaphylactic Nut Allergy?

JJJ

By JJJ
in Coping with Celiac Disease

Recommended Posts

JJJ Newbie
JJJ
Posted

I have been diagnosed with severe Celiac disease for about a year now. Also, I have an Anaphylactic tree nut allergy as well which i have known about for 2 years. My question is what are the chances of both!!!!??? And is there anyone else out there with the same problem??? :(

Food is such a chore because everything has to be nut free too! I haven't had a cookie in forever!! Someone help!! The local gluten free bakery uses nuts so I have nothing but a tiny gluten free section in Loblaws and about 7 of the many products on that shelf. :angry:

Can anyone shed some light on this?? My doctors have no answer for me, at least the ones who actually know what Celiac is! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


HAK1031 Enthusiast
HAK1031
Posted

There are others with both, yes. I have other anaphylactic allergies, but not nuts. (latex and squash...wtf??? lol)

As for cookies, its time to get creative in the kitchen! Homemade= sooo much better than store bought :-) But there are plenty of gluten and nut free cookies out there- I suggest you try a health food store, such as whole foods or trader joes, or order online. There's a brand called enjoy life that makes products free of all common allergens, including gluten and nuts. Their products are pretty hit or miss, and I haven't tried the cookies, but they're safe! I'm sure there are other brands as well.

PS- My cousins have anaphylactic nut allergies, and a dessert that works for all of us is meringues or chocolate dipped strawberries (one's also egg-allergic) or something like that.

home-based-mom Contributor
home-based-mom
Posted
I have been diagnosed with severe Celiac disease for about a year now. Also, I have an Anaphylactic tree nut allergy as well which i have known about for 2 years. My question is what are the chances of both!!!!??? And is there anyone else out there with the same problem??? :(

Food is such a chore because everything has to be nut free too! I haven't had a cookie in forever!! Someone help!! The local gluten free bakery uses nuts so I have nothing but a tiny gluten free section in Loblaws and about 7 of the many products on that shelf. :angry:

Can anyone shed some light on this?? My doctors have no answer for me, at least the ones who actually know what Celiac is! :)

If you can eat peanuts there are several recipes that use peanut butter and chocolate chips and are really good! :)

lizard00 Enthusiast
lizard00
Posted

The good life brand double chocolate brownies (i think that's the name) are pretty stinkin good!!! My husband and my son, both of whom eat gluten, loved them and thought they were great. Check them out for a cookie fix!

The great thing about good life is that they do not use the "dirty eight" allergens, and have facilities dedicated to these items so there's no risk of CC. LOVE THAT!

jayhawkmom Enthusiast
jayhawkmom
Posted

My 6 year old daughter is in the same boat. She's anaphylactic to peanuts, and ALL tree nuts are off limits. She's also intolerant to soy, as well as allergic to dairy and eggs.

Lins Rookie
Lins
Posted

You are absolutely not the only one!!! I've known I was allergic to tree nuts for years. Even as a little kid I had a hard time explaining how weird my throat felt if I ate a cookie with walnuts or something in it. (Hello?!?!? That's the feeling of your throat closing!) I'm not sure if I would be considered anaphylactic or not, but I react with a swelling throat, I get all sweaty and shaky, and then I vomit. My reactions have actually gotten a little worse over the years, but I've never had to carry a shot or medication or anything. It's still a meserable and terrifying experience to get a nut by mistake though.

Anyway, I was diagnosed with Celiac this Spring. I have been pretty happy with the Enjoy Life Brand products I've tried. I've eaten the Snickerdoodle cookies and the trail mix, and they aren't bad. It's very nice to know I can trust they are nut and wheat free. I am lucky enough to NOT be allergic to peanuts, and hope the same is the case with you. I just made peanut butter cookies this weekend: 1 cup peanut butter, 1 cup sugar, 2 eggs, 1 teaspoon of vanilla, and a glug of molasses. (Chill the does as it's sticky) Bake at 350. Nobody should have to love without cookies!!! Plus, with these you don't have to go buy any special flours or anything. Hope it helps!!

gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

My family is in a similar position.

My oldest has an anaphylactic nut allergy. No peanuts or tree nuts or shared equipment products. She also is extremely lactose intolerant.

My youngest is a celiac, dairy allergy, shellfish allergy, egg allergy is suspect, and she can't have nuts due to sibling anaphylactic allergy.

I just have Celiacs. So although we don't have the nut and Celiac combo, we eat like it. And yes, we have the why me days! And the "This SUCKS!!" days. But overall, we eat pretty well. Of course, I have learned to love baking, so that helps.

The Enjoy Life chocolate chips and cookies are great. We love their brownie cookies too.

Also try the CherryBrook Kitchen Chocolate Cake mix. Sooo good!

Namaste Blondies are yummy!

gluten-free Pantry Brownie mix, Coffee Cake mix, etc are great!

Start learning to love lists, because it is the only way I can keep track of all of this!

Good luck and it does get better.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kbtoyssni Contributor
kbtoyssni
Posted

I'm celiac and allergic to peanuts. I'm not anaphylactic so that makes things a bit easier, but I do somewhat understand the difficulty. I was at a party the other night and all the stuff that didn't have gluten had peanuts! Seriously, what are the odds? Usually my friends are really good at having something I can eat, but that night it was like everyone had gluten-induced brain fog and forgot what I couldn't eat :P Not that I minded, I always come prepared.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,650
    • Most Online (within 30 mins)
      7,748
    Alexandersgirl
    Newest Member
    Alexandersgirl
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Medication

      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
    • Julie 911
      Medication

      By Julie 911 · Posted

      Good day! New members here and I have a question about medication. My gastroenterologist made me stop some medication during the gluten challenge beforenthe screening test but I have a little surgery tomorrow and I need to know if I can use tylenol for half a day or if it will give me false results using it.   Thanks 
    • Scott Adams
      Buckwheat

      By Scott Adams · Posted

      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Buckwheat

      By trents · Posted

      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.