Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hitting A Wall

cmsquyres

Recommended Posts

cmsquyres Newbie
cmsquyres
Posted

I've been on the gluten free diet for about a year now, and my dad was diagnosed with Celiac several years ago, so I'm very familiar with the diet and I'm careful not to eat anything with gluten. I felt quite a bit better after I started the diet (I never had many gastrointestinal problems but I did have skin issues) but I feel like I've hit a wall, or even regressed. My eczema, which had gotten better, has gotten worse again. I'm tired all the time and I've had blood tests done and my iron levels were fine and my B12 was just a little bit low, but I've started taking extra liquid supplements. I've even had little phases where I'm just so tired that I feel depressed. My doctor just tells me that because I'm in college I'm automatically supposed to be tired all the time, even though I get at least 8 or 9 hours of sleep every night, I don't party and I eat a lot healthier than anyone else I know my age because of the gluten free diet. Has anyone else had an issue with this kind of thing?

Carly

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Your talking about being really strict about the diet, which is good. But have you eliminated it from all your personal care products also? A lot of doctors either don't think to mention it or don't think it matters. Even stuff like hair color, shampoos and face makeup can be an issue. Also have you checked all your scripts and supplements for gluten? It sounds like you have gluten sneaking in somewhere. Even weird stuff like kissing someone who is drinking beer or has eaten a sandwich can get us. Gluten can be really sneaky.

Ursa Major Collaborator
Ursa Major
Posted

Are you still consuming dairy and soy? Either (or both) of those could be your problem. Dairy is known to cause horrible eczema. My oldest granddaughter used to be covered in eczema from head to toe, she looked like she had scales. It completely cleared up within weeks, to where she has the most beautiful skin now, after dairy was removed from her diet (incidentally, she is also gluten and soy intolerant).

gfcookie Newbie
gfcookie
Posted
I've been on the gluten free diet for about a year now, and my dad was diagnosed with Celiac several years ago, so I'm very familiar with the diet and I'm careful not to eat anything with gluten. I felt quite a bit better after I started the diet (I never had many gastrointestinal problems but I did have skin issues) but I feel like I've hit a wall, or even regressed. My eczema, which had gotten better, has gotten worse again. I'm tired all the time and I've had blood tests done and my iron levels were fine and my B12 was just a little bit low, but I've started taking extra liquid supplements. I've even had little phases where I'm just so tired that I feel depressed. My doctor just tells me that because I'm in college I'm automatically supposed to be tired all the time, even though I get at least 8 or 9 hours of sleep every night, I don't party and I eat a lot healthier than anyone else I know my age because of the gluten free diet. Has anyone else had an issue with this kind of thing?

Carly

sounds like fibromyalgia/depression. or, maybe something else is up besides celiac, alot of other autoimmune diseases can cause skin problems.

cmsquyres Newbie
cmsquyres
Posted
  • Author
Hi Carly,

Too bad you are not feeling as energetic as you need to be to do all that studying. You might consider that you have picked up a virus and your immune system is keeping it in control but not able to get rid of it. Echinaceae, a herb, may help a lot. You can buy the herb and make a tea or you can get one of the many preparation availale. The best are combiations of echinaceae, lysine and vitamin C with rose hips. You can also have a blood test for infectious mononudleosis. You might also stop the B12 supplement for a while to see if you feel better. It may claim to be gluten free, and maybe it is but there may be something else that is bothering you in it.

For the eczema you can read about a treatment that works for many people. Go to the Dr. Clark Information Center online and search for eczema.

I have made sure all my personal care products are gluten-free. I

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,948
    • Most Online (within 30 mins)
      7,748
    Stephanie94
    Newest Member
    Stephanie94
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.