Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crazy Hunger, Need For Food

radgirl

By radgirl
in Coping with Celiac Disease

Recommended Posts

radgirl Enthusiast
radgirl
Posted

Why is it that after a "glutening" period, do I (maybe all of us go through this) feel this incredible need to eat. I'm starving. All I do is think of food. I'm famished. My appetite significantly increase and I'm obsessed with food. I eat and then I'm waiting for my next meal to arrive. At one point I thought I had this under control, but after a glutening period, it's coming back. Can someone please explain what is going on here?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

This is from: Open Original Shared Link

"Q: I feel hungry all the time. Is that normal?

Yes, it is very common. Your body is making up for the time it wasn't fully absorbing foods. Hunger levels tend to normalize within the first months after eliminating gluten and beginning a well balanced diet of gluten-free foods."

It is geared more towards when you go from undiagnosed to diagnosed/following the diet, but apparently, its a normal reaction.

radgirl Enthusiast
radgirl
Posted
  • Author
This is from: Open Original Shared Link

"Q: I feel hungry all the time. Is that normal?

Yes, it is very common. Your body is making up for the time it wasn't fully absorbing foods. Hunger levels tend to normalize within the first months after eliminating gluten and beginning a well balanced diet of gluten-free foods."

It is geared more towards when you go from undiagnosed to diagnosed/following the diet, but apparently, its a normal reaction.

Thank you Happygirl. I was being glutened for a while from a variety of things (silly me, didn't read the labels and trusted too much). I'm hungry within 20-30 minutes of finishing a meal. I'm obsessed with food. Heck, I just ate and I'm hungry again. Then to top it all off, I colored my hair yesterday, read the ingredient list AFTER the fact and found there to be wheat amino acids in the color. Hopefully I limited my CC by washing my hair in the sink and washing out with gluten-free shampoo. Let's hope!

JNBunnie1 Community Regular
JNBunnie1
Posted
Thank you Happygirl. I was being glutened for a while from a variety of things (silly me, didn't read the labels and trusted too much). I'm hungry within 20-30 minutes of finishing a meal. I'm obsessed with food. Heck, I just ate and I'm hungry again. Then to top it all off, I colored my hair yesterday, read the ingredient list AFTER the fact and found there to be wheat amino acids in the color. Hopefully I limited my CC by washing my hair in the sink and washing out with gluten-free shampoo. Let's hope!

I hope so too. I used to do the feel hungry all the time thing too, no mater what I ate. One thing that helped a lot was taking a vitamin B complex, it really took it down by about 15%. So I guess I needed more vitamins! Also, very filling dinner? Pasta alfredo. Lasts me for hours. I have a recipe if you like.

jewi0008 Contributor
jewi0008
Posted
I hope so too. I used to do the feel hungry all the time thing too, no mater what I ate. One thing that helped a lot was taking a vitamin B complex, it really took it down by about 15%. So I guess I needed more vitamins! Also, very filling dinner? Pasta alfredo. Lasts me for hours. I have a recipe if you like.

The B complex is VERY interesting to me. I'm eating a lot of wheat/gluten right now so that I can get tested. I have a GI appt on Thursday to see their thoughts. Anyways, been miserable with my stomach, starved and all oral tissues chronically annoyed. I got back on my B Complex last Thursday...I have been significantly better since Saturday? I have a really good B Complex that I get at whole foods. Very high levels and B12 as methylcobalamin. Will taking this vitamin mess with blood tests if they were to test my B levels?!

I feel that I'm highly deficient in B Vitamins. Why?

YoloGx Rookie
YoloGx
Posted
The B complex is VERY interesting to me. I'm eating a lot of wheat/gluten right now so that I can get tested. I have a GI appt on Thursday to see their thoughts. Anyways, been miserable with my stomach, starved and all oral tissues chronically annoyed. I got back on my B Complex last Thursday...I have been significantly better since Saturday? I have a really good B Complex that I get at whole foods. Very high levels and B12 as methylcobalamin. Will taking this vitamin mess with blood tests if they were to test my B levels?!

I feel that I'm highly deficient in B Vitamins. Why?

From what I have read in various texts it is completely normal to have B vitamin deficiency with celiac. Reason being the intestines can neither absorb or make the B's very well when the villi are flattened and/or scarred. For many this is also a hereditary trait too so you just need to make up for a basic malabsorption problem.

This lack of the B's compounds the difficulty with making use of various other basic nutrients like proteins and carbohydrates...which then wacks out your digestive and nervous systems etc. etc. etc. Even when avoiding gluten you will probably still need to take B complex. I find I have to take the co-enzyme ones since I am allergic to brewers yeast and the other synthetic ones do almost nothing for me.

You will probably also need a bunch of minerals: calcium, vitamin D (I like cod liver oil--some find it hard to digest but it is less so if you have that problem if you also take HCL), magnesium, sea minerals. I find kelp to be a help too.

And then the various enzymes: bromelain/papain and pancreatin.

jewi0008 Contributor
jewi0008
Posted
From what I have read in various texts it is completely normal to have B vitamin deficiency with celiac. Reason being the intestines can neither absorb or make the B's very well when the villi are flattened and/or scarred. For many this is also a hereditary trait too so you just need to make up for a basic malabsorption problem.

This lack of the B's compounds the difficulty with making use of various other basic nutrients like proteins and carbohydrates...which then wacks out your digestive and nervous systems etc. etc. etc. Even when avoiding gluten you will probably still need to take B complex. I find I have to take the co-enzyme ones since I am allergic to brewers yeast and the other synthetic ones do almost nothing for me.

You will probably also need a bunch of minerals: calcium, vitamin D (I like cod liver oil--some find it hard to digest but it is less so if you have that problem if you also take HCL), magnesium, sea minerals. I find kelp to be a help too.

And then the various enzymes: bromelain/papain and pancreatin.

And do you know...if I'm taking the B Supp right now and they tested my B levels, would they still find I'm deficient? I don't want to mess anything up. I KNOW there is something to be said about the B Vit for me because I'm still eating like crap and taking this supp is the only thing I've added and/or changed and it has already made a HUGE difference.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted
And do you know...if I'm taking the B Supp right now and they tested my B levels, would they still find I'm deficient? I don't want to mess anything up. I KNOW there is something to be said about the B Vit for me because I'm still eating like crap and taking this supp is the only thing I've added and/or changed and it has already made a HUGE difference.

I would say that if it's making a difference, then it's affecting your blood levels. But as far as I know, blood vitamin levels are not what they test to determine Celiac. They test for certain antibodies to determine Celiac, taking B vitamins should have no effect on your diagnosis. i'm hoping someone will chime in if I'm wrong. But I think the fact that the B vitamins are helping so much is just more proof of Celiac or whatever you feel like calling it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748
    Betty Siebert
    Newest Member
    Betty Siebert
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.