Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms... Recovery Time?

veggiemama

Recommended Posts

veggiemama Rookie
veggiemama
Posted

Hi,

I posted in the "Parents of Kids or Babies With Celiac Disease" because both myself and my daughter are celiac. We just found out last week.

I've read that people will feel better within 3-5 days of not eating gluten. I still have stomach pain and nausea -- mostly at night.

Here is a snippet from my other post..

"

All my life I have had digestive problems and I knew that eating wheat in particular really aggravated my stomach from time to time. I actually went wheat-free and sugar-free for a long time (I'm vegan) and felt better. But during the pregnancy is really when I started having problems. My midwife wanted me to eat "protein protein protein!" so I added wheat to my diet again. I ate bagels, sandwiches... not to mention other gluten containing grains.

After the birth, my stomach problems got even worse. I felt nauseated lot but I did not know why. Recently, I got food poisoning which was awful and when I started feeling better and was able to eat again, I started eating rye bread sandwiches, spelt pretzels and wheat crackers (before I knew I was celiac obviously) and I started to feel bad again. Now my stomach is so aggravated I can hardly eat without feeling nauseated and having stomach pain. Its probably been about 3-4 weeks since I've had gluten. Shouldn't I start feeling better? I've been living on potatoes. My next approach is drinking fresh raw juices because I know they heal the digestive tract.

"

I know everyone is different too. I was just hoping to maybe be able to connect with other people and find out how they felt, etc... Thanks :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gwen B Rookie
Gwen B
Posted
Hi,

I posted in the "Parents of Kids or Babies With Celiac Disease" because both myself and my daughter are celiac. We just found out last week.

I've read that people will feel better within 3-5 days of not eating gluten. I still have stomach pain and nausea -- mostly at night.

Here is a snippet from my other post..

"

All my life I have had digestive problems and I knew that eating wheat in particular really aggravated my stomach from time to time. I actually went wheat-free and sugar-free for a long time (I'm vegan) and felt better. But during the pregnancy is really when I started having problems. My midwife wanted me to eat "protein protein protein!" so I added wheat to my diet again. I ate bagels, sandwiches... not to mention other gluten containing grains.

After the birth, my stomach problems got even worse. I felt nauseated lot but I did not know why. Recently, I got food poisoning which was awful and when I started feeling better and was able to eat again, I started eating rye bread sandwiches, spelt pretzels and wheat crackers (before I knew I was celiac obviously) and I started to feel bad again. Now my stomach is so aggravated I can hardly eat without feeling nauseated and having stomach pain. Its probably been about 3-4 weeks since I've had gluten. Shouldn't I start feeling better? I've been living on potatoes. My next approach is drinking fresh raw juices because I know they heal the digestive tract.

"

I know everyone is different too. I was just hoping to maybe be able to connect with other people and find out how they felt, etc... Thanks :)

Are you still eating dairy and soy? I got nausea and stomach pain just like I did with gluten a couple of weeks into the gluten-free diet although I had not noticed a problem before. I went lactose free but cassein also gave me a bad feeling in the gut although not as bad nausea. Soy also now has a similar effect on me, gas, nausea.

Some people on this forum have had to give up nightshades also and even grains (not sure if potatoes count as in the nightshade family). I am avoiding Tapioca in gluten-free products and just trying to eat foods that are naturally gluten-free as much as possible. Juices may be healing but you may find the high acidity just flushes the nutrients straight through you. I have not been able to eat much raw stuff, because of this but I can now (31/2 months) eat salads and a couple of pieces of fruit, oranges are better than apple for some reason. Pears are good, banana too.

Check out supplements too, are they gluten-free. I can't even take tabs that have vit E in them (from soy), same with lipsalves. You may need to cut out non-gluten-free shampoo etc.

Hope this helps. There is a lot more info in this area on this forum. Feel better soon. You have my sympathy. It is hard to know what to do when you feel sick so much of the time especially when you have a family to care for as well.

Hang in there. :) Feel better soon.

Gwen B Rookie
Gwen B
Posted
Are you still eating dairy and soy? I got nausea and stomach pain just like I did with gluten a couple of weeks into the gluten-free diet although I had not noticed a problem before. I went lactose free but cassein also gave me a bad feeling in the gut although not as bad nausea. Soy also now has a similar effect on me, gas, nausea.

Some people on this forum have had to give up nightshades also and even grains (not sure if potatoes count as in the nightshade family). I am avoiding Tapioca in gluten-free products and just trying to eat foods that are naturally gluten-free as much as possible. Juices may be healing but you may find the high acidity just flushes the nutrients straight through you. I have not been able to eat much raw stuff, because of this but I can now (31/2 months) eat salads and a couple of pieces of fruit, oranges are better than apple for some reason. Pears are good, banana too.

Check out supplements too, are they gluten-free. I can't even take tabs that have vit E in them (from soy), same with lipsalves. You may need to cut out non-gluten-free shampoo etc.

Hope this helps. There is a lot more info in this area on this forum. Feel better soon. You have my sympathy. It is hard to know what to do when you feel sick so much of the time especially when you have a family to care for as well.

Hang in there. :) Feel better soon.

Oops! sorry i misread your thread. I thought you said you were veggie, not vegan. But soy can make many people feel bad. Tomatoes are also difficult to digest uncooked. It is a bit of a minefield, but there is a lot of info here.

veggiemama Rookie
veggiemama
Posted
  • Author

Thanks Gwen. Potatoes are nightshades.

I am looking into my shampoos, supplements etc... I am not eating soy, nuts or grains period.

Thanks for your support :)

gluten15 Apprentice
gluten15
Posted
Thanks Gwen. Potatoes are nightshades.

I am looking into my shampoos, supplements etc... I am not eating soy, nuts or grains period.

Thanks for your support :)

As far as supps go almost all of this company's products are free of so many things we all need-Contains no yeast, sugar, salt, starch, soy, wheat, gluten, corn or milk. and the link I made to the website to get them from..I order from them all the time. Great customer service, fast cost effective shipping, and great prices.

Open Original Shared Link

veggiemama Rookie
veggiemama
Posted
  • Author

Thanks gluten15. I've taken Now products before. I'll check out the web site.

I just found out the multi I've been taking contains gluten...

Katester Enthusiast
Katester
Posted

I can't believe you feel it too! I've had that since I went gluten free and have had no relief. It makes me feel so happy to know I'm not the only one! If you find anything that helps, please let me know!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


veggiemama Rookie
veggiemama
Posted
  • Author
I can't believe you feel it too! I've had that since I went gluten free and have had no relief. It makes me feel so happy to know I'm not the only one! If you find anything that helps, please let me know!!!

I found out that my multi-vitamin contained gluten so cutting that out has helped. Other than that, I am doing things to speed the recovery of my digestive tract so that I can start digesting things properly again. Taking herbs like slippery elm, marshmallow, chamomile, and aloe all help coat the digestive tract and help it heal.

Mary Louise Newbie
Mary Louise
Posted

Hi,

I posted in the "Parents of Kids or Babies With Celiac Disease" because both myself and my daughter are celiac. We just found out last week.

I've read that people will feel better within 3-5 days of not eating gluten. I still have stomach pain and nausea -- mostly at night.

________________

from Mary Louise:

it was close to 6 MONTHS before i felt much difference. now, 13 months post dignosis i keep feeling better and better, stamina, sleep. Irritable bowel (IBS) and diarrhea rarely a problem now, am gaining (way too much) weight.

a friend of my husband's who found out about my celiac told him it took her 2 years before she finished recovery. Of course she may experience better health as time goes on, but she said at the 2 year mark she noticed a "settling" in symptom relief and is very pleased with where she is now.

I recall reading that sometimes the gut damage is permanent and does not improve health. that's a chilling thought...

I am on this site, just joined today, because i wonder if there are researach/studies that follow people who are gluten free after a long time being celiac, for me 50 odd years and identify other things to be aware of or be careful with...

i am not vegan/veggie so my diet is less complicated - wish i could help with ideas, etc., but cannot.

thanks for sharing.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK. Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs. If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend...
    2. trents
      - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods". Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy...
    3. Dizzyma
      - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her on a full gluten free diet. my concerns are that she wasn’t actually physically s...
    4. Scott Adams
      0

      Better-Than-Takeout Gluten-Free Chicken Fried Rice

    5. Kimmy88
      - Kimmy88 commented on Scott Adams's article in Winter 2026 Issue
      2

      Gut Healing After a Celiac Diagnosis: What Science Says About Recovery Time (+Video)

      Excellent article!! I shared with my family, so they would understand!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,921
    • Most Online (within 30 mins)
      7,748
    Rusty49
    Newest Member
    Rusty49
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Newly diagnosed mam to coeliac 11 year old

      By cristiana · Posted

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.