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Do You Still Enjoy Eating?


silk

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gluten15 Apprentice
On the Applebees thread. I also had a dissapointing meal there. I didn't want steak and plain potato so opted for the only other available menu option, grilled shrimp and salad. I told the waiter about the gluten-free, CF, soy free diet, handed a note (from the Celiac Soc website) about diet and was reassured that he knew all about being vegan! I knew from that point on that it might be difficult. They also broought the slip of paper back saying it was fine but they still brought me the salad with cheese all over it and croutons! :angry:

I was never a fan of Applebees before going gluten-free and am even less so now. However, when your out all day it's nice to know a restaurant you can go to and know what you can have in advance without too much anxiety. I've eaten at Red Robin 3 times and not had a problem, each time I spoke with the server they made sure the chef came to explain menu options and were careful to serve my food separate from everyone elses with a lovely "allergy allert" printed all over the receipt. At least it shows they were paying attention and they do great gluten-free fries to order. :)

Very nice to know about Red Robin. One of my favorite restaurants. While I won't be able to order what I used too..nice to know. We don't really eat out much..never have..but nice to know if I ever do. Nice to see their consistancy all over the us. We used to travel a lot and used to eat at Red Robin all over the US and always great service everytime.

Funny seeing Red Robin listed because the other night I was wondering what I would now order if we ever ate out again and went there.

Used to eat at Applebees all the time too years ago before my diet change. We actually found them on a vacation years ago then they came to our town. Used to love thier chicken strips, fries, and slaw. Problem is that it's depends which one you go to and where as far as what service you get and how the food will be.

Not so with Red Robin. While I won't be able to order what I used to..they have such a great menu that I could see being able to make something good.

As far as McDonald's fries go. Never at that way anyway. I went their a few times with a friend and they had me try a fry and I didn't get what the big deal was.

I try not to consume hydrogentated oils now anyway.

I think the safest bets with these different food problems is to eat as fresh stuff as possible that has been processed very little and things that don't contain very many ingredients.

Also when I don't consume things that have a lot of things in them..it's getting easier for me to tell what bothers me and what doesn't.

Oh yeah..great site and people here!


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gluten15 Apprentice
You may just find that your lactose intolerance goes away once your gut heals. We make lactose in the tips of the villi. So when we damage these with gluten we also stop producing lactase.

It is weird. I can eat tofu, eat edamame, I'm fine with soy sauce but I react to soy milk, rice milk and almond milk. I can't figure that one out at all. I wonder if their is some kind of preservative that is used in all three that my body can't tolerate. We are a facinating study.

Again..thanks for the info on the villa and lactase thing. I had never really heard about that in this way until coming here.

So many things are making more and more sense.

As far as the soy, rice and almond milk..and I don't mean to keep bringing up the carrageenan thing..but one part of me is doing much better since I cut out everything that had that in them.

There are som rice milks in the grocery isle that do not have it in them.

Not sure if your soy, rice or almond milk had carrageenan in them..but most likely they did.

I would be interested to see you try one of them that doesn't contain carrageenan and see how you do.

Although I don't know what your symptoms are from the 'milk' products. With carrageenan it can affect some peoples digestive symptoms.

I just learned about this rescently so it's something I am also eliminating to try and see so I just wanted to bring it up again in case it can help someone. So many healthy things contain carrageenan.

dbmamaz Explorer

I will actually keep red robin in mind, too - there's one near me and there was always a big line and i always wondered what the big deal was. I've never liked Applebees, so having a good excuse to stay away from there would make me happy!

I have to say i'm not having too much trouble staying on my current, very restrictive diet (I introduced cukes 2 days ago and didnt like the reaction, so i'm doing lemon today, and i'll try cukes again in case it was a fluke). But the depression about other foods is sinking in. We ordered papa johns a few days ago (since i'm not even trying to eat the same food they are any more) and there was one small slice of cheese pizza that I wanted so badly! I see people carefully choosing which sweet item in the bakery area they will buy - i never even bought that stuff, i'd make it, and not often . . but thinking that I cant just splurge and buy a caramel brownie or a big chewy cookie . .. grr.

I just hope that I eventually get enuf foods back in my diet that I can bake something. Right now my only treat is marshmallows lol.

Gwen B Rookie
"Chain family restaraunts are really not much different than fast food, in that the food is all created on an assembly line somewhere else so that basically unskilled workers can quickly put it together in to an appealing meal. These arent chef's working there - i cooked at Denny's for 8 months and was told I would be able to get a job anywhere in the country, that that was a huge amount of experience for a cook at that kind of restaraunt.

So - expecting them to be able to find some veggies to steam, or make you plain rice, isnt realistic, not at most of these kinds of restaraunts."

Thanks dbmamaz, for the info. Nice to have a better idea what goes on in the kitchen. I would still have to wonder though, if you can steam broccoli, why couldn't you steam any other veggies available and for that matter, how hard would it be to steam rice? At least when you order at Burger King you get to ask for it 'your way'. May not always get what you asked for and we all know that that resto is not really a viable option for most of us, but I guess by biggest problem was with the way the waitress reacted to my questions.

"I've eaten at Red Robin 3 times and not had a problem, each time I spoke with the server they made sure the chef came to explain menu options and were careful to serve my food separate from everyone elses with a lovely "allergy allert" printed all over the receipt. At least it shows they were paying attention and they do great gluten-free fries to order. "

GwenB, this is good news. We have a Red Robins and I would kill for fries made to order. Well, not kill maybe, but slightly maim. What else did you order that was good. I am only familiar with the burger fare. Do they have seafood, steaks???

Actually, I have not ventured past the burger fare and just had the bapless,cheesless burger with guacamole and bacon, salad and fries. I'm just grateful to be able to eat out safely once in a while. I did see seafood on the menu but I cannot recall whether it was not gluten-free or whether I didn't choose it beacuse dairy or soy was involved. Teryaki is endemic in restaurants these days!

Wonka Apprentice

As far as the soy, rice and almond milk..and I don't mean to keep bringing up the carrageenan thing..but one part of me is doing much better since I cut out everything that had that in them

I just checked the soymilk and almond milk in the fridge (read back porch) and they both have carrageenan in them. I bet that is the culprit that I'm reacting to.

darlindeb25 Collaborator

Ok, yes, my point was: This person running his hands through the flour with no glove on was disgusting. We don't know where that hand was, he had no business putting his hand in that flour without a glove on, be it wheat flour, or a gluten free flour. We have no idea what has been in any of the food we buy before we buy it and we probably do not want to know! It wasn't the fact that it was wheat flour that made it disgusting to me, it was the man using his bare hands that was wrong.

I have stated this before, and I stand behind my statement: McDonalds is as safe as any other place. My son was a manager in a McDonalds and they do have standards that they must work by. The fries are done separately in their own oil and it is always done that way, in all restuarants. There are just as many people who say they do not get sick as there are that say they do, if not more so, which leads me to believe, probably they are reacting to something else and not gluten. I, myself cannot have potatoes or corn/soy oil, which would rule out the fries altogether! There could be many factors as to why someone would react. Before I could no longer have potatoes, McDonald fries never bothered me and my sister still eats them, I agree they are fine for a celiac to eat. I would still eat them if I could.

There are so many things I wish I could still eat, none of them being gluten. I wish I could bite into a ripe, red tomato or eat morel mushrooms from the woods like I did as a child. Fresh corn from the garden, homemade cabbage soup, homemade chili--I miss so much now. No, I do not enjoy food any longer, but I am alive. Food isn't everything!

Glutina Rookie

Hi!

I personally have foudn that going gluten free has forced me to pay closer attention to a very obvious fact: I need to learn how to cook!! I was eating out so often before (still pretty healthy stuff though) and making "quick" food...and now, I am starting to enjoy building a repetoire of meal ideas and learning how to make my own meals. I find it almost.....fun!

Also, I ate fairly healthy before I went gluten-free, so many things have not changed....but cutting out bread entirely (I don't care for rice bread) has been a big one.

Mostly, I miss the convenience of being able to go out and enjoy a meal in a restaurant worry-free. I especially get annoyed when my friends want to go somewhere and I have to make sure they have somehting for me at whever it is...BUT, I feel that this inconvenience is worth my newfound and growing state of health.

:)

-Glutina


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silk Contributor
I recently read Gluten-Free Girl, by Shauna James Ahern, and it made me "fall in love" with food again!

I love to eat. I hate being restricted. I dislike cooking... but only because I have a tiny kitchen, not any other reason. But, I really do love food. So, I try to find a way to manage. =)

Just started reading this on my lunch hour today. OMG! I wanted to lick the words off of the pages. She writes about food so beautifully that I want to leave work now so I can go home and cook and I'm only into the first or second chapter! Thanks for the info. Looking forward to the rest of the book!

Wonka Apprentice
Just started reading this on my lunch hour today. OMG! I wanted to lick the words off of the pages. She writes about food so beautifully that I want to leave work now so I can go home and cook and I'm only into the first or second chapter! Thanks for the info. Looking forward to the rest of the book!

I've been reading it for a few days (found it on sunday). It's so nice to read her take on food. So much like my own. I love food. I do not eat to live but live to eat and eat well. Because of my love of good food I had to learn to cook it myself (I couldn't afford to eat out that way all the time lol). I worked with some fabulous cooks and took many cooking courses (still do) and now I adapt some of my favourites.

I get alot of my recipes from the great group of people that hang out at the fine cooking forum and from their excellent recipes on the web site. Some I will never be able to adapt but surprisingly many are easily adapted.

I've always loved to cook from scratch. My freezer is filled with beef and chicken stock waiting to become soups, stews or braises. Lots of fresh frozen fruit from the summer. Halibut straight from the boat, frozen on board and processed frozen. I am a farmers market junky. Luckily we have a winter market here (every second saturday) in Vancouver, BC.

I am a rampaging gardener. Lots of flowers, herbs, vegies and a large patch with raspberries and blueberries. I love to home can. Fruit syrups, jams/jellies, pickled beans, pickled beets, canned cherries (boozy for on icecream - homemade as I can't tolerate commercial due to the carregeenan). I'm looking forward to this summer because now my energy has increased it will much easier to do.

Well I'm off to cook. I'm having a potluck and I'm making Greek Briami (potatoes, zucchini, onion, tomato, greek cheese, oregano, olive oil etc..) and a gluten free chocolate cake. I'm am making a sign, double sided, asking that all serving spoons stay in their dish, if you can't find one ASK do not borrow another dishes spoon. I'm not the only celiac that will be at this party and my close friends have said that they will help police this.

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      Are Lindt chocolate balls gluten free?

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      Are Lindt chocolate balls gluten free?

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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