Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do We Go Gluten Free?


4blessings

Recommended Posts

4blessings Rookie

Hi

I am wondering how long you go on a gluten free diet to determine if gluten is actually a problem? Also what type of grains need to be cut out? Doing this for our 14mo daughter she has had little gluten to begin with...how long does it take to see results?

Thanks for any help you can give.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lizz7711 Apprentice
Hi

I am wondering how long you go on a gluten free diet to determine if gluten is actually a problem? Also what type of grains need to be cut out? Doing this for our 14mo daughter she has had little gluten to begin with...how long does it take to see results?

Thanks for any help you can give.

I don't have experience with little ones with gluten sensitivity, but from what I understand you should notice improvement fairly quickly with younger kids, like within a couple weeks up to a month. It's usually recommended to go off dairy as well. The gluten proteins and dairy protein casein, as well as the soy protein, are all very similar in structure, so often if a person has a problem with gluten, they also have problems with the other two. So you could try going off all three for a few weeks, then gradually introduce one (I'd do soy first), wait several days as some reactions take a few days, and then if it's ok, introduce the next one (dairy), again wait several days, and then you could try gluten. You may find the reactions are stronger than before, because once the body starts to heal, it reacts more strongly to the antagonist. (people also sometimes eliminate corn products as this is a common allergen as well)

You'd want to eliminate gluten that is in wheat, rye, barley, and oats (many people avoid oats although they do not have gluten in them--I personally still eat gluten free oats, but have only been doing this 3 months so that could change).

Here is a link to a good website that lists alot of info about gluten free casein free diets...it's on an autism website, but I found the info to be so helpful I refer to it often, there are also good links to more info and recipes etc : Open Original Shared Link

Good luck!

Liz

4blessings Rookie

Liz.

Thank you for the GREAT web site!! and the great info.

Ok I have some more questions...Is flax a gluten containing grain? Is spelt ok to eat I've heard it can sub for wheat.

Thanks for the great info.

Amy

Lizz7711 Apprentice
Liz.

Thank you for the GREAT web site!! and the great info.

Ok I have some more questions...Is flax a gluten containing grain? Is spelt ok to eat I've heard it can sub for wheat.

Thanks for the great info.

Amy

Your welcome! I was thinking that alternatively to the elimination plan I mentioned, you could just first eliminate gluten, because if you notice improvement off gluten, you don't want to go back on it to challenge it as that will just continue the damage. Then after that you could test the dairy and soy. Just another way to go about it. I'd personally recommend asking the doc for a blood test for IgG and IgA and antitissue transglutaminase antibodies before you go gluten free. Howver, that said, many people test negative on blood tests, so you could then try the diet if the test is negative. There's also stool testing which is good because it finds antibodies before they get in the blood, I used www.enterolab.com It's not covered by insurance, but you get gluten and casein testing, malabsorption testing, and gene testing (cheek swab) for $369.

Anyway! Flax is fine, spelt is not. I can't remember what the issue is with spelt but I know it's not acceptable on a gluten free diet.

take care,

Liz

kbtoyssni Contributor

Spelt is a derivative of wheat. So it's got the same gluten protein in it.

shelland Rookie
Doing this for our 14mo daughter she has had little gluten to begin with...how long does it take to see results?

We recently went gluten free for our 15 month old. By day 3 she was pooping less. By day 5 she was sleeping through the night. After a few days more her poops are normal smelling. I think it helpd that we cut out the oatmeal she was eating in the morning. They were probably cross-contaminated with gluten.

We're all happier now.

Good luck to you- hope you see results soon.

4blessings Rookie

Thanks for all the great advice!

We did have celiac panel done and it came back neg. she was also tested for CF and that was neg. We recently found out that my husbands (paternal) uncle and cousin have celiac so with symptoms I am thinking lets rule this one out.

My hope is that she will start gaining weight...she looks like we starve her. But we don't!

We also have a son with ADHD, hoping gluten free will help him. The med he takes is terrible!!

Thanks again all

Amy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.