Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Eye Wont Stop Twitching!

dksart

By dksart
in Coping with Celiac Disease

Recommended Posts

dksart Apprentice
dksart
Posted

Has this ever happened to any of you? I guess it's celiac related, I've gotten accidentally glutened a few times in the past month and am having many other side effects from it as well. (The last time was yesterday at P.F. Chang's.....we're not safe anywhere.)

I have always had a mild version of this, with my eye jumping or eyelid twitching, but it is now happening every day, all day long. At least once every hour and more. It is really bothering me and it's becoming more apparent. No one could notice when it happened before, but now it's almost causing my eyelid to close.

Does anyone know if this a pinched nerve or something else? Should I get it checked out? I don't have any insurance. This is starting to worry me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenWrangler Contributor
GlutenWrangler
Posted

It really might just be a Magnesium deficiency. The same thing used to happen to me. You see, when I get glutened, I lose some of my electrolytes, creating a deficiency. It doesn't go away until the Magnesium is replaced. You could try some Magnesium rich foods or get a Megnesium supplement to see if it helps. Good luck.

-Brian

sickchick Community Regular
sickchick
Posted

LOL used to happen to me all the time! B)

HAK1031 Enthusiast
HAK1031
Posted

It's also a symptom of b12 deficiency. Have your doctor run a nutrient deficiency panel.

jewi0008 Contributor
jewi0008
Posted
Has this ever happened to any of you? I guess it's celiac related, I've gotten accidentally glutened a few times in the past month and am having many other side effects from it as well. (The last time was yesterday at P.F. Chang's.....we're not safe anywhere.)

I have always had a mild version of this, with my eye jumping or eyelid twitching, but it is now happening every day, all day long. At least once every hour and more. It is really bothering me and it's becoming more apparent. No one could notice when it happened before, but now it's almost causing my eyelid to close.

Does anyone know if this a pinched nerve or something else? Should I get it checked out? I don't have any insurance. This is starting to worry me.

The same thing happened to me, but I just got blood tests done for Celiac and they showed that I do NOT have it. Anyways, I agree with the B Deficiency as well as magnesium. I take a B Complex and Cal/Mag/Zinc vitamin every day now....my twitching has, for the most part, gone away.....

But I wonder why, if I don't have Celiac, I am deficient?!?

dksart Apprentice
dksart
Posted
  • Author
It really might just be a Magnesium deficiency. The same thing used to happen to me. You see, when I get glutened, I lose some of my electrolytes, creating a deficiency. It doesn't go away until the Magnesium is replaced. You could try some Magnesium rich foods or get a Megnesium supplement to see if it helps. Good luck.

-Brian

I am not taking any magnesium suppliments, but I do try to eat foods containing it. I suppose from being glutened so many times, I'm not absorbing nutrients as well as I should.

Any suggestions?

It's also a symptom of b12 deficiency. Have your doctor run a nutrient deficiency panel.

I just started taking b12 because of my energy level etc.

Plus, I don't have a doctor.

fedora Enthusiast
fedora
Posted

This happens to me too. BUT it hasn't happened once since not eating gluten!!!!

There were episodes it was so bad my eye barely would stay open too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted
This happens to me too. BUT it hasn't happened once since not eating gluten!!!!

There were episodes it was so bad my eye barely would stay open too.

Wow!!! I've only noticed it in the past six months, on and off, my bloody eye wouldn't STOP TWITCHING! It's not visible to tohers, but it's irritating as all get-out. I'll have to try supplementing with magnesium next time it happens, I already take extra B.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted

Do you have rosacea on your face? I found out through twitching that I had it in my eye and it was happening due to irritation. Sjogren's (Im not sure on the spelling was another option) was a possible option too but it ended up being ocular rosacea. It might not hurt to get it checked out and it never hurts to take extra b vitamins.

Sweetfudge Community Regular
Sweetfudge
Posted

i've experienced this off and on over the past couple years. it was really bad right before i went gluten-free, but i was also really stressed out. now it's been happening more frequently again, but i don't think i'm that stressed. i might have to try some B supplements. taking everything else. its so annoying though, i feel ya on that one!!

dksart Apprentice
dksart
Posted
  • Author
Do you have rosacea on your face? I found out through twitching that I had it in my eye and it was happening due to irritation. Sjogren's (Im not sure on the spelling was another option) was a possible option too but it ended up being ocular rosacea. It might not hurt to get it checked out and it never hurts to take extra b vitamins.

Thanks, I do have rosacea. I've had it for many years, but it's not nearly as bad now as it used to be. I will have to do some research on ocular rosacea, though. I've never heard of that.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted

Mine looks better on my face than it has in years so I was shocked to find out it went into my eyes.

I would see an opthalmologist to see if it is it and there are drops for about a week to put in. If left untreated it can lead to problems. If you do find out you have it, eyelid scrubs work wonders. I take burts bees baby soap and wash my eyelids with eyes closed twice a day and rinse thoroughly. It helps tremendously to keep breakouts down. I havent had a problem with it for quite a while due to my scrubs. Im sorry you dont have insurance, maybe they could set up a payment plan with you to pay off the visit?

Good luck in figuring out what it is :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,032
    • Most Online (within 30 mins)
      7,748
    CE1963
    Newest Member
    CE1963
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.