Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy


Mr. Pep'r

Recommended Posts

Mr. Pep'r Contributor

I am once again getting frustrated. There have been a few times that I was CC and we have figured out why. At the time of sending in my Entrolab sample was one of the times I was CC. My casein IgA antibody was 26 units. So the past two weeks I took dairy out of my diet. Dairy is something I would have everyday from milk to yogurt to cheese. I never felt bad after having dairy. I tried a goats milk cheese on Monday and all week I have not been right. What is going on?

Did my IgA antibody show high because I CC myself?

Is taking dairy out of my diet really a good idea?

Could this IgA antibody reading come down over time and is this a real accurate test? (all the email just gave me was numbers, when I send my truck's oil in for an analysis ($26) I get the lab tech statement on how my oil is doing and what I could expect. This test I ordered was $300 and got nothing... just numbers.)

When does this all end and when will a normal life begin?

How do I get my GI to return my two phone calls from December and January?

,

When can I get some kind of help or information other than "watch what you eat" from my GP and GI?

In order for me do my job I need to get this under control, when it seems it be something else gives me a problem. Any addition resources or pointing me in another direction would be very helpful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

I would go straight to the enterolab site and read your results, cause i bet the rest got cut out of the info you got in email. I had to do that cause all i got was numbers and no range and i thought i was normal til i read on the site that i was far from normal lol.

I would cut out all casein for at least 6 months to an year and then see if u can add back it back in. I keep telling myself i need to try it back in but im so afraid to.

paula

Mom23boys Contributor
I am once again getting frustrated. There have been a few times that I was CC and we have figured out why. At the time of sending in my Entrolab sample was one of the times I was CC. My casein IgA antibody was 26 units. So the past two weeks I took dairy out of my diet. Dairy is something I would have everyday from milk to yogurt to cheese. I never felt bad after having dairy. I tried a goats milk cheese on Monday and all week I have not been right. What is going on?

Did my IgA antibody show high because I CC myself?

a single CC will not spike an Enterolab test that high, that fast.

It takes more than 2 weeks to get dairy out of your system. Plan on at least 2 months.

Goats cheese has a similar casein to cow cheese. Some react more to goat while some react more to cow. It you are testing casein/dairy, take it all out.

Nancym Enthusiast
Did my IgA antibody show high because I CC myself?

No, it is casein, not gluten. Two different things.

Is taking dairy out of my diet really a good idea?

Yes. You can get plenty of calcium in your diet by eating things like broth made from cooking chicken bones for a long time, or veggies like broccoli. Remember that dairy is kind of new to human kind, humans didn't start dairying until at most 10,000 years ago, in some places in the world they still don't eat dairy products and they're doing pretty good (parts of Africa, lots of Asia).

When does this all end and when will a normal life begin?
This is your life. Your labels of normal or whatever don't really mean anything. You get to choose now between doing things to improve your health or not. We all have to make choices like that. I suppose when I was a smoker I could call that "normal" and I could be resentful of having to give up something that is harmful to me. Or being someone that has to struggle with my weight I could call eating sugar and flour everyday all day "normal" and be resentful that I'm not normal. Or I could actually come to grips with reality as it stands and realize that I have choices here and that making the wrong choices will have consequences. Maybe not today, but years down the road.

Also, goat cheese or milk is dairy too. I also react to it. My reactions to dairy are much different than to gluten. I break out, I get muscle spasms and I get sinus problems. On dairy, I can't breathe through my nose at night. Off dairy, I can. Also dairy sometimes constipates the heck out of me.

Try to give it a few weeks dairy free... really dairy free this time, and see if you feel better. Yes making changes is tough but it is a mental game. Once you figure out what to eat it becomes easy.

In order for me do my job I need to get this under control, when it seems it be something else gives me a problem. Any addition resources or pointing me in another direction would be very helpful.

Probably the best resources are right here asking people that are going through it questions, like you're doing.

fedora Enthusiast

I have been having dairy questions also.

I got my enterolab test results back last monday.

Fecal anti-casein (cow's milk) IgA antibody 26 Units (Normal Range <10 Units)

I have only noticed problems with lots of cheese. But I realized it could be damaging me without me knowing. Someone on here said that casein and gluten are similar on a molecular level. Does this mean I need to stay off casein forever or that eventually I might be able to reintroduce after I heal the damage from gluten. I know I should not eat any now, Just wondering about many months down the road. If you make antibodies to other things than gluten(casein, egg, soy....) are these also life time intolerances or just caused from the intestional damge from gluten. Thanks

Mom23boys Contributor
But I realized it could be damaging me without me knowing. Someone on here said that casein and gluten are similar on a molecular level. Does this mean I need to stay off casein forever or that eventually I might be able to reintroduce after I heal the damage from gluten. I know I should not eat any now, Just wondering about many months down the road. If you make antibodies to other things than gluten(casein, egg, soy....) are these also life time intolerances or just caused from the intestional damge from gluten.

I was told by our nutritionist that you don't mess with gluten and casein -- they are life long issues. The problem with this is that they often do not remain constant -- symptoms can morph and fool people into thinking they are healed yet often new symptoms show up that the sufferer doesn't always associate with the trigger.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,235
    • Most Online (within 30 mins)
      7,748

    kssynlson37
    Newest Member
    kssynlson37
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.