Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tooth Decay And Very Noticeable Hair Loss


radgirl

Recommended Posts

Panopticism Rookie

Your best bet is just to not use anything unless you're 100% certain it's gluten free. For the hair, check your ingredients, MAKE SURE THERE IS NO WHEAT IN YOUR SHAMPOO/CONDITIONER. The shampoo and conditioners I was using listed Hydrolyzed wheat protein. I stopped using them, and my hair is soft again, but unfortunately other people who use the same shower as I do refuse to change to something else, and as a result, I get itchy feet every time I shower. It's pretty strange.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



itchygirl Newbie
Not to contradict, however for me just using baking soda to brush with works great. Plus it helps keep down the residual candida.

Yolo if you're not into flouride, the Caphosol I mentioned has no floride, only calcium and phosphate. Makes me feel like a mad chemist mixing it up B)

Caphosol is a preparation comprising two separately packaged aqueous solutions, a phosphate solution (Caphosol A) and a calcium solution (Caphosol B) which, when both ampule solutions are combined in equal volumes, form a solution supersaturated with respect to both calcium and phosphate ions.
radgirl Enthusiast
Your best bet is just to not use anything unless you're 100% certain it's gluten free. For the hair, check your ingredients, MAKE SURE THERE IS NO WHEAT IN YOUR SHAMPOO/CONDITIONER. The shampoo and conditioners I was using listed Hydrolyzed wheat protein. I stopped using them, and my hair is soft again, but unfortunately other people who use the same shower as I do refuse to change to something else, and as a result, I get itchy feet every time I shower. It's pretty strange.

Oh yes, my hair products are gluten free. I have been using Dove and my styling aids are gluten free as well. A couple of weeks ago, I ended up using a hair color with wheat germ oil in it. I about flipped because the color was already in my hair and it was too late. So, to avoid minimal ingestion, I had my mom wash my hair well, in the sink and then I showered. I think I was ok. I'm really bothered though by the amount of contradicting information. One person says this, someone says something else. one company says yes, another says no. I'm fed up with it. This is my life we are talking about - our lives. I need to be as safe as possible. I know that there is no way to be 100% completely safe, but for the love of Pete, if you know there is a possibility or a trace, something, anything, tell me so I can make the right decision.

Panopticism Rookie

I make my own food and hygiene products from natural ingredients. I trust myself! :lol: Been given the same bull**** from all the companies I've called. Customer service hotlines are useless. It's true that you have to be careful, with all the recent studies on Celiac disease and how it may lead to REALLY scary stuff if left untreated. People think I'm just being overcautious sometimes and refuse to accept the fact that it's not at all like lactose intolerance.

radgirl Enthusiast
I make my own food and hygiene products from natural ingredients. I trust myself! :lol: Been given the same bull**** from all the companies I've called. Customer service hotlines are useless. It's true that you have to be careful, with all the recent studies on Celiac disease and how it may lead to REALLY scary stuff if left untreated. People think I'm just being overcautious sometimes and refuse to accept the fact that it's not at all like lactose intolerance.

I'll take lactose intolerance over this crap any day of the week! I'm with you! For the most part, I do trust the companies when I call. But when I get contradicting information, my trust goes out the window. I know that no production line can ever be 100% tracked (unless it's a dedicated facility or line), but give me a break. You should know your QA and have a standards and procedures in line that should make this pretty darn safe. Don't give me this crap of, "oh well, we don't put any gluten in there, but we also don't know where the materials come from to make our product". Since celiac disease/GI and the like on are the rise, companies better start upping the standards to make things safe and start complying with what the customers needs. Or else we will go elsewhere to find what we need. And don't say it will cost more, because it won't. Ok, rant/vent = over.

MELINE Enthusiast

does anyone know about kerastage products?? (it is a trademark for shampoos...It's french I don't know if you are using it...)

radgirl Enthusiast
does anyone know about kerastage products?? (it is a trademark for shampoos...It's french I don't know if you are using it...)

I believe that product is produced by L'Oreal or Revlon. I don't know anything about it. Have you tried calling the manufacturer?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast
I believe that product is produced by L'Oreal or Revlon. I don't know anything about it. Have you tried calling the manufacturer?

I've never called any manufacturer before and ask him if there is gluten in his product...I guess I'll have to do that....I'm always afraid they are going to laugh at me..silly me...I'll get over it and have that question. Thank you!

YoloGx Rookie
Yolo if you're not into flouride, the Caphosol I mentioned has no floride, only calcium and phosphate. Makes me feel like a mad chemist mixing it up B)

If there is some problem using baking soda please let me know. I am not aware of any problem. No chemicals, just easy...And my teeth are great. Especially since as I say I do take various mineral supplements I listed previously -- plus fibronylitic agents which reduce scarring and inflammation and help me metabolize those above minerals I am taking. Marshmallow root taken internally helps soothe and heal the intestines too--and thus mineral absorption is better and down wind the teeth and gums.

  • 3 weeks later...
Kristin81 Newbie

Does anyone know if there is a direct correlation between hair products that contain gluten and hair loss? I've been on a gluten free diet for a month, but just learned that my Aveda conditioner has gluten in it. Of course I stopped using it immediately, but I was under the impression that celiac has to do with ingested gluten. Forgive me if this is a naive observation, I'm pretty new at this. But if anyone has any info on gluten hair products causing hair loss, I'd be very interested.

radgirl Enthusiast
Does anyone know if there is a direct correlation between hair products that contain gluten and hair loss? I've been on a gluten free diet for a month, but just learned that my Aveda conditioner has gluten in it. Of course I stopped using it immediately, but I was under the impression that celiac has to do with ingested gluten. Forgive me if this is a naive observation, I'm pretty new at this. But if anyone has any info on gluten hair products causing hair loss, I'd be very interested.

Kristin, this is a great question and by no means naive. I've wondered the same thing. Hopefully someone can shed more light on this issue.

ravenwoodglass Mentor
Does anyone know if there is a direct correlation between hair products that contain gluten and hair loss? I've been on a gluten free diet for a month, but just learned that my Aveda conditioner has gluten in it. Of course I stopped using it immediately, but I was under the impression that celiac has to do with ingested gluten. Forgive me if this is a naive observation, I'm pretty new at this. But if anyone has any info on gluten hair products causing hair loss, I'd be very interested.

Yes there is. Gluten is absorbed through mucous membranes, including those in the nose and mouth. Even a tiny amount that accidentally gets into your system will keep the autoimmune process going. For those of us who lose hair it is often this autoimmune process that is more at fault for the loss than poor nutritional uptake but both can be a factor.

Kristin81 Newbie
Yes there is. Gluten is absorbed through mucous membranes, including those in the nose and mouth. Even a tiny amount that accidentally gets into your system will keep the autoimmune process going. For those of us who lose hair it is often this autoimmune process that is more at fault for the loss than poor nutritional uptake but both can be a factor.

Raven - Thanks for the reply :) This gives me more hope that my hair will stop falling out and actually begin to re-grow soon!

jasmari Newbie

Hi there.

I started having hair loss problems last summer and it's been falling out steadily since then. My only saving grace is that I see new hair coming in but it's still getting so thin. I too had hair in the tub, on the pillow, etc. I saw a determatologist who ran all kinds of tests. All we could pin point was the low iron. Even the celiac bloodwork came back normal. However, I recently had a biopsy and that showed positive for celiac (I guess this happens). In any case, I'm confident that the celiac is at the root (no pun intended) of the problem. From what I've read on this subject, once the body starts responding to the gluten free diet, this usually takes care of the hair loss problem.

I know how you feel. It's a huge emotional issue especially for women and I"m so tired of people telling me to stop worrying. Hang in there!

Rita

jasmari Newbie

Hi there.

I started having hair loss problems last summer and it's been falling out steadily since then. My only saving grace is that I see new hair coming in but it's still getting so thin. I too had hair in the tub, on the pillow, etc. I saw a determatologist who ran all kinds of tests. All we could pin point was the low iron. Even the celiac bloodwork came back normal. However, I recently had a biopsy and that showed positive for celiac (I guess this happens). In any case, I'm confident that the celiac is at the root (no pun intended) of the problem. From what I've read on this subject, once the body starts responding to the gluten free diet, this usually takes care of the hair loss problem.

I know how you feel. It's a huge emotional issue especially for women and I"m so tired of people telling me to stop worrying. Hang in there!

Rita

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...