Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tooth Decay And Very Noticeable Hair Loss


radgirl

Recommended Posts

Panopticism Rookie

Your best bet is just to not use anything unless you're 100% certain it's gluten free. For the hair, check your ingredients, MAKE SURE THERE IS NO WHEAT IN YOUR SHAMPOO/CONDITIONER. The shampoo and conditioners I was using listed Hydrolyzed wheat protein. I stopped using them, and my hair is soft again, but unfortunately other people who use the same shower as I do refuse to change to something else, and as a result, I get itchy feet every time I shower. It's pretty strange.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



itchygirl Newbie
Not to contradict, however for me just using baking soda to brush with works great. Plus it helps keep down the residual candida.

Yolo if you're not into flouride, the Caphosol I mentioned has no floride, only calcium and phosphate. Makes me feel like a mad chemist mixing it up B)

Caphosol is a preparation comprising two separately packaged aqueous solutions, a phosphate solution (Caphosol A) and a calcium solution (Caphosol B) which, when both ampule solutions are combined in equal volumes, form a solution supersaturated with respect to both calcium and phosphate ions.
radgirl Enthusiast
Your best bet is just to not use anything unless you're 100% certain it's gluten free. For the hair, check your ingredients, MAKE SURE THERE IS NO WHEAT IN YOUR SHAMPOO/CONDITIONER. The shampoo and conditioners I was using listed Hydrolyzed wheat protein. I stopped using them, and my hair is soft again, but unfortunately other people who use the same shower as I do refuse to change to something else, and as a result, I get itchy feet every time I shower. It's pretty strange.

Oh yes, my hair products are gluten free. I have been using Dove and my styling aids are gluten free as well. A couple of weeks ago, I ended up using a hair color with wheat germ oil in it. I about flipped because the color was already in my hair and it was too late. So, to avoid minimal ingestion, I had my mom wash my hair well, in the sink and then I showered. I think I was ok. I'm really bothered though by the amount of contradicting information. One person says this, someone says something else. one company says yes, another says no. I'm fed up with it. This is my life we are talking about - our lives. I need to be as safe as possible. I know that there is no way to be 100% completely safe, but for the love of Pete, if you know there is a possibility or a trace, something, anything, tell me so I can make the right decision.

Panopticism Rookie

I make my own food and hygiene products from natural ingredients. I trust myself! :lol: Been given the same bull**** from all the companies I've called. Customer service hotlines are useless. It's true that you have to be careful, with all the recent studies on Celiac disease and how it may lead to REALLY scary stuff if left untreated. People think I'm just being overcautious sometimes and refuse to accept the fact that it's not at all like lactose intolerance.

radgirl Enthusiast
I make my own food and hygiene products from natural ingredients. I trust myself! :lol: Been given the same bull**** from all the companies I've called. Customer service hotlines are useless. It's true that you have to be careful, with all the recent studies on Celiac disease and how it may lead to REALLY scary stuff if left untreated. People think I'm just being overcautious sometimes and refuse to accept the fact that it's not at all like lactose intolerance.

I'll take lactose intolerance over this crap any day of the week! I'm with you! For the most part, I do trust the companies when I call. But when I get contradicting information, my trust goes out the window. I know that no production line can ever be 100% tracked (unless it's a dedicated facility or line), but give me a break. You should know your QA and have a standards and procedures in line that should make this pretty darn safe. Don't give me this crap of, "oh well, we don't put any gluten in there, but we also don't know where the materials come from to make our product". Since celiac disease/GI and the like on are the rise, companies better start upping the standards to make things safe and start complying with what the customers needs. Or else we will go elsewhere to find what we need. And don't say it will cost more, because it won't. Ok, rant/vent = over.

MELINE Enthusiast

does anyone know about kerastage products?? (it is a trademark for shampoos...It's french I don't know if you are using it...)

radgirl Enthusiast
does anyone know about kerastage products?? (it is a trademark for shampoos...It's french I don't know if you are using it...)

I believe that product is produced by L'Oreal or Revlon. I don't know anything about it. Have you tried calling the manufacturer?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast
I believe that product is produced by L'Oreal or Revlon. I don't know anything about it. Have you tried calling the manufacturer?

I've never called any manufacturer before and ask him if there is gluten in his product...I guess I'll have to do that....I'm always afraid they are going to laugh at me..silly me...I'll get over it and have that question. Thank you!

YoloGx Rookie
Yolo if you're not into flouride, the Caphosol I mentioned has no floride, only calcium and phosphate. Makes me feel like a mad chemist mixing it up B)

If there is some problem using baking soda please let me know. I am not aware of any problem. No chemicals, just easy...And my teeth are great. Especially since as I say I do take various mineral supplements I listed previously -- plus fibronylitic agents which reduce scarring and inflammation and help me metabolize those above minerals I am taking. Marshmallow root taken internally helps soothe and heal the intestines too--and thus mineral absorption is better and down wind the teeth and gums.

  • 3 weeks later...
Kristin81 Newbie

Does anyone know if there is a direct correlation between hair products that contain gluten and hair loss? I've been on a gluten free diet for a month, but just learned that my Aveda conditioner has gluten in it. Of course I stopped using it immediately, but I was under the impression that celiac has to do with ingested gluten. Forgive me if this is a naive observation, I'm pretty new at this. But if anyone has any info on gluten hair products causing hair loss, I'd be very interested.

radgirl Enthusiast
Does anyone know if there is a direct correlation between hair products that contain gluten and hair loss? I've been on a gluten free diet for a month, but just learned that my Aveda conditioner has gluten in it. Of course I stopped using it immediately, but I was under the impression that celiac has to do with ingested gluten. Forgive me if this is a naive observation, I'm pretty new at this. But if anyone has any info on gluten hair products causing hair loss, I'd be very interested.

Kristin, this is a great question and by no means naive. I've wondered the same thing. Hopefully someone can shed more light on this issue.

ravenwoodglass Mentor
Does anyone know if there is a direct correlation between hair products that contain gluten and hair loss? I've been on a gluten free diet for a month, but just learned that my Aveda conditioner has gluten in it. Of course I stopped using it immediately, but I was under the impression that celiac has to do with ingested gluten. Forgive me if this is a naive observation, I'm pretty new at this. But if anyone has any info on gluten hair products causing hair loss, I'd be very interested.

Yes there is. Gluten is absorbed through mucous membranes, including those in the nose and mouth. Even a tiny amount that accidentally gets into your system will keep the autoimmune process going. For those of us who lose hair it is often this autoimmune process that is more at fault for the loss than poor nutritional uptake but both can be a factor.

Kristin81 Newbie
Yes there is. Gluten is absorbed through mucous membranes, including those in the nose and mouth. Even a tiny amount that accidentally gets into your system will keep the autoimmune process going. For those of us who lose hair it is often this autoimmune process that is more at fault for the loss than poor nutritional uptake but both can be a factor.

Raven - Thanks for the reply :) This gives me more hope that my hair will stop falling out and actually begin to re-grow soon!

jasmari Newbie

Hi there.

I started having hair loss problems last summer and it's been falling out steadily since then. My only saving grace is that I see new hair coming in but it's still getting so thin. I too had hair in the tub, on the pillow, etc. I saw a determatologist who ran all kinds of tests. All we could pin point was the low iron. Even the celiac bloodwork came back normal. However, I recently had a biopsy and that showed positive for celiac (I guess this happens). In any case, I'm confident that the celiac is at the root (no pun intended) of the problem. From what I've read on this subject, once the body starts responding to the gluten free diet, this usually takes care of the hair loss problem.

I know how you feel. It's a huge emotional issue especially for women and I"m so tired of people telling me to stop worrying. Hang in there!

Rita

jasmari Newbie

Hi there.

I started having hair loss problems last summer and it's been falling out steadily since then. My only saving grace is that I see new hair coming in but it's still getting so thin. I too had hair in the tub, on the pillow, etc. I saw a determatologist who ran all kinds of tests. All we could pin point was the low iron. Even the celiac bloodwork came back normal. However, I recently had a biopsy and that showed positive for celiac (I guess this happens). In any case, I'm confident that the celiac is at the root (no pun intended) of the problem. From what I've read on this subject, once the body starts responding to the gluten free diet, this usually takes care of the hair loss problem.

I know how you feel. It's a huge emotional issue especially for women and I"m so tired of people telling me to stop worrying. Hang in there!

Rita

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,915
    • Most Online (within 30 mins)
      7,748

    marcusdarrell1
    Newest Member
    marcusdarrell1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
    • Xravith
      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.