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Possible Celiac Syptoms


jharris

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jharris Newbie

I was diagnosed with indeterminate colitis a year ago. A very sensitive GI told me that I wouldnt get better and I would likely get worse. I decided not to go back to her. I was taking a drug called Asacol for inflammation in my colon. I still had cramps diarrhea bloating and bleeding. I also get raised itchy welts on the palms of my hands and frequently have canker sores in my mouth. When I learned of celiac I decided to cut out gluten and see what happened. My cramps subsided, I was going to the restroom less frequently and there was less blood and no bloating. I also stopped taking the medications and my syptoms didnt worsen. This was after only two weeks. I decided to get the blood test to know for sure so I ate bread two days ago and pizza last night. I woke up this morning with a lump in my chest, I can barely swallow (possibly indegestion). One of the lympnodes in my neck is severly swollen and over the past two days the welts on my hand have flared up worse than ever. One of my questions is, is it possible for symptoms to subside in two weeks and do my syptoms today sound like they could be from the reintroduction of gluten? Im really nervous about the swollen lympnodes.


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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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