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Thyroid, Meds, & celiac disease/gi


radgirl

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radgirl Enthusiast

After finding out you were celiac disease/GI and moved to a gluten-free diet, were you able to come off your thyroid meds? I ask because I've been on thyroid meds for a year and half (truly convinced that I was hypoT). I'd like to see myself come off these meds if I truly don't need them because I was hypoT due do celiac disease/GI.


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LoriG Contributor
After finding out you were celiac disease/GI and moved to a gluten-free diet, were you able to come off your thyroid meds? I ask because I've been on thyroid meds for a year and half (truly convinced that I was hypoT). I'd like to see myself come off these meds if I truly don't need them because I was hypoT due do celiac disease/GI.

I haven't gotten off my meds because I don't think I will ever be able to, but I have noticed my numbers getting better since gluten-free. Hope that helps.

mftnchn Explorer

I don't expect to be able to come off, but am still tracking the numbers to see if I'll need an adjustment. Right now the doctor thinks my dose is still exactly right.

mommida Enthusiast

I was dx with hashimoto's at least ten years befroe going on the gluten free diet. The endo has decreased my dose of synthroid since I started on the gluten free diet.

tuxedocat Apprentice

This is interesting because I have Graves Disease. We don't know yet if my GI symptoms were aspects of Graves. I was negative on my Celiac blood tests. But I DID get a rash taht doc thought was DH (which is how celiac was brought up) and I start having recurrence of symptoms when I eat gluten. I just dont have severe GI symptoms now that Graves is under control.

wowzer Community Regular

So far my thyroid levels have stayed pretty much the same. I can't remember how many months between the blood test and going gluten free. So we will see if they change with the next blood test.

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      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
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