Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low Calcium Levels And Irregular Heart Beat


Guest marshlakemom

Recommended Posts

Guest marshlakemom

I had a ekg done in January, got the results yesterday, and was told that I have a regular heartbeat....and that is was most likely due to a calcium deficiency due to the malabsorption issues. I also have severe osteroporosis.

Anybody out been told this, or heard anything about this.

Deb


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

It is more likely because of a lack of magnesium. Low calcium usually goes along with low magnesium levels. And both could be caused by low vitamin D levels.

Most people with osteoporosis have extremely low vitamin D levels (due to malabsorption from damaged villi in our case, of course), and as a result can't absorb calcium and magnesium. Plus, low vitamin D has its own symptoms.

You may want to take cod liver oil (the Carlson brand is best, and doesn't taste bad) along with a good calcium/magnesium supplement. Try to find one that has a 1:1 calcium and magnesium level.

itchygirl Newbie

I assume the doc has checked you for hyperparathyroid secondary to low vit. D.?

I'm on 15000 iu of D twice a week and can barely keep my levels up.

Open Original Shared Link

Ursa Major Collaborator
I assume the doc has checked you for hyperparathyroid secondary to low vit. D.?

I'm on 15000 iu of D twice a week and can barely keep my levels up.

Open Original Shared Link

What kind of vitamin D supplement do you take? Most prescription vitamin D is the inferior vitamin D2, what you need is D3.

I had very low vitamin D levels when finding out I was gluten intolerant. I took two tablespoons of cod liver oil twice daily for a while, and my levels went up very quickly, in fact, they went a little too high! I now take one tablespoonful every second day to keep my levels normal (optimal vitamin D levels are around 120).

itchygirl Newbie

The standard prescription stuff, which I know is poorly absorbed. We're going to switch to the shots if I'm not better by next month. My Vit. D when first tested was, I kid you not...13. And in the US the absolute minimum level is 32. My doc had seen someone with a D of 7, though.

Cod liver oil makes me very nauseated, unfortunately. :(

Ursa Major Collaborator
The standard prescription stuff, which I know is poorly absorbed. We're going to switch to the shots if I'm not better by next month. My Vit. D when first tested was, I kid you not...13. And in the US the absolute minimum level is 32. My doc had seen someone with a D of 7, though.

Cod liver oil makes me very nauseated, unfortunately. :(

So why do you then keep taking that prescription crap? Just buy some decent vitamin D in the health food store and take that! You don't need your doctor prescribing vitamins (unless you are in Germany, that is, it is illegal there to buy most vitamins now), just buy them and take what you know you should!

itchygirl Newbie

Ursa-Its an insurance company "thing". Because I have to follow the protocol I'm on for my insurance to pay for the shots. And I need the shots. So I do this for a certain amount of time, and it does not work, then I get what I actually needed in the first place. :D

Hoop jumping for the insurance companies is a popular pastime among up ill people in the US. ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest marshlakemom

Thanks everyone for your responses. I forgot to mention that I did have 48 hour urine collection to check for calcium in my urine awhile back. My urine showed no signs of any problems with the calcium in my body being peed out (lol). Urine was clean.

I am going to start taking Cod Liver Oil, and go again on a CalMag supplement. I do take Foxomax once a week, and have been doing so for years, but it doesn't seem to be doing a heck of a lot for my osteoporosis.

I'll let you know if the cod liver oil and cal/mag changes anything. I do suffer a lot with restless leg syndrome at night, particulary if I do a long walk earlier in the day. Cramping and restless are a nightmare for me.

I have sufferered with chronic insomnia for over 30 years now, prob. average 3 hours/night of sleep...been out and had sleep studies done, and all they can tell me is that I have "sleep state misperception", which I think is a crock.

I often wonder if my sleep issue is due to years of going undiagnosed celiac disease, and years of malabsorption have done something to my serotonin/melatonin production. I also have vitilego......"isn't life grand". All contributed to celiac disease.

Deb

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,411
    • Most Online (within 30 mins)
      7,748

    Rebekah1922
    Newest Member
    Rebekah1922
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.