Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low Calcium Levels And Irregular Heart Beat


Guest marshlakemom

Recommended Posts

Guest marshlakemom

I had a ekg done in January, got the results yesterday, and was told that I have a regular heartbeat....and that is was most likely due to a calcium deficiency due to the malabsorption issues. I also have severe osteroporosis.

Anybody out been told this, or heard anything about this.

Deb


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

It is more likely because of a lack of magnesium. Low calcium usually goes along with low magnesium levels. And both could be caused by low vitamin D levels.

Most people with osteoporosis have extremely low vitamin D levels (due to malabsorption from damaged villi in our case, of course), and as a result can't absorb calcium and magnesium. Plus, low vitamin D has its own symptoms.

You may want to take cod liver oil (the Carlson brand is best, and doesn't taste bad) along with a good calcium/magnesium supplement. Try to find one that has a 1:1 calcium and magnesium level.

itchygirl Newbie

I assume the doc has checked you for hyperparathyroid secondary to low vit. D.?

I'm on 15000 iu of D twice a week and can barely keep my levels up.

Open Original Shared Link

Ursa Major Collaborator
I assume the doc has checked you for hyperparathyroid secondary to low vit. D.?

I'm on 15000 iu of D twice a week and can barely keep my levels up.

Open Original Shared Link

What kind of vitamin D supplement do you take? Most prescription vitamin D is the inferior vitamin D2, what you need is D3.

I had very low vitamin D levels when finding out I was gluten intolerant. I took two tablespoons of cod liver oil twice daily for a while, and my levels went up very quickly, in fact, they went a little too high! I now take one tablespoonful every second day to keep my levels normal (optimal vitamin D levels are around 120).

itchygirl Newbie

The standard prescription stuff, which I know is poorly absorbed. We're going to switch to the shots if I'm not better by next month. My Vit. D when first tested was, I kid you not...13. And in the US the absolute minimum level is 32. My doc had seen someone with a D of 7, though.

Cod liver oil makes me very nauseated, unfortunately. :(

Ursa Major Collaborator
The standard prescription stuff, which I know is poorly absorbed. We're going to switch to the shots if I'm not better by next month. My Vit. D when first tested was, I kid you not...13. And in the US the absolute minimum level is 32. My doc had seen someone with a D of 7, though.

Cod liver oil makes me very nauseated, unfortunately. :(

So why do you then keep taking that prescription crap? Just buy some decent vitamin D in the health food store and take that! You don't need your doctor prescribing vitamins (unless you are in Germany, that is, it is illegal there to buy most vitamins now), just buy them and take what you know you should!

itchygirl Newbie

Ursa-Its an insurance company "thing". Because I have to follow the protocol I'm on for my insurance to pay for the shots. And I need the shots. So I do this for a certain amount of time, and it does not work, then I get what I actually needed in the first place. :D

Hoop jumping for the insurance companies is a popular pastime among up ill people in the US. ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest marshlakemom

Thanks everyone for your responses. I forgot to mention that I did have 48 hour urine collection to check for calcium in my urine awhile back. My urine showed no signs of any problems with the calcium in my body being peed out (lol). Urine was clean.

I am going to start taking Cod Liver Oil, and go again on a CalMag supplement. I do take Foxomax once a week, and have been doing so for years, but it doesn't seem to be doing a heck of a lot for my osteoporosis.

I'll let you know if the cod liver oil and cal/mag changes anything. I do suffer a lot with restless leg syndrome at night, particulary if I do a long walk earlier in the day. Cramping and restless are a nightmare for me.

I have sufferered with chronic insomnia for over 30 years now, prob. average 3 hours/night of sleep...been out and had sleep studies done, and all they can tell me is that I have "sleep state misperception", which I think is a crock.

I often wonder if my sleep issue is due to years of going undiagnosed celiac disease, and years of malabsorption have done something to my serotonin/melatonin production. I also have vitilego......"isn't life grand". All contributed to celiac disease.

Deb

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,330
    • Most Online (within 30 mins)
      7,748

    TamSta214
    Newest Member
    TamSta214
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      It occurs to me that this might be a good application for gluten test kits, since the test kits seem to require samples in power form and pills can easily be rendered in that form. According to this article, and it seems to be current, there are three choices when it comes to gluten test kits: https://www.verywellhealth.com/gluten-detectors-and-test-kits-comparing-the-options-4126736 While it is not an inexpensive solution, at least it shouldn't be necessary to use very often once you establish a med either is safe or not.
    • maryannlove
      Same problem in Pittsburgh.  Have Hashimato's so been taking Mylan (generic) levothyroxine for many years.  Pharmicist tried to routinely order yesterday and called to tell me it's unavailable.  That I could try to find elsewhere and have script forwarded to them.  Just spent couple of hours online researching.  What a pain for so many of us!  Using http://glutenfreedrugs.com/newlist.htm (which know is old and doubt updated) reminded me that long ago I used to take Sandoz brand.  Just went on their website and appears they no longer make (maybe why switched to Mylan).  Back to square one.  Using chart from glutenfreedrugs.com says for manufacturers I'll list afterwards "Manufacturer doesn't knowingly add gluten, however since they don't do any final testing they won't guarantee it to be gluten-free but it is very unlikely that it is contaminated with gluten."  Might be best I/we can do.  Along with Mylan, those manufacturers on chart are: Lannett (per website still make) and Neopharma (didn't find on their website).  Paloma Health's website says CERTIFIED gluten free are:  Lannet brand of levothyroxine, Nature-Thyroid, Tirosint (expensive), WP Thyroid.  Other thyroid meds that are gluten-free but not certified:  Levoxyl, Synthroid, Euthyrax, Mylan Brand (wish could get), and Armor with a caution contains sodium starch glycate which may contain gluten.  I'll submit Lannett to pharmacist.  If successfull, will share.  
    • somethinglikeolivia
      Responding to both of your replies: thank you so much!! That makes a lot of sense and helps me feel better about it - I really appreciate the clarification and recommendations. You guys have been very helpful and this site is a gift. Thanks again! 
    • trents
      I think giving attention to the main sources of exposure such as direct consumption of gluten and gross cross contamination with reasonable attention to handwashing and thorough counter top cleaning and dishwashing should cover cross contamination issues. The biggest precautions would be eating in restaurants and at other's homes. Don't get paranoia over it and don't make trouble where there is none. As far a what you communicate with your physicians, just tell them what you know. Strongly positive antibody tests, negative biopsy, positive symptoms when consuming gluten with clearing of symptoms when gluten free.  
    • trents
      Occasionally we do see anomalies where celiac antibody tests are positive but biopsies are negative, and even visa versa. Sometimes, damage to the small bowel lining is patchy and unless numerous samples are taken from various areas, the damage can be missed. So, there's that issue as well. I think in your situation, the tell-tale indicator is the difference in symptoms between when you were off gluten and when you were consuming it.   
×
×
  • Create New...