Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Know?


jknnej

Recommended Posts

jknnej Collaborator

Hi all,

I have some questions for you...sorry for the ignorance but I am very new at this.

I was reading posts here about Snickers, Hersheys, etc and I am just wondering how you guys know if it's gluten-free or not.

I was reading a book that says that anything with corn syrup or natural or artifical flavoring added should be avoided unless you've contaced the manufacturer.

Does this mean people here have already called and asked?

I've read here that certain food makers post allergies on the label, but on those products it does not say "gluten free." How do you know if their corn syrup or starch has vanilla in it that is not gluten-free?

I'm so confused...also, does anyone know of gluten-free ice cream? All the labels at the store say they contain vanilla and I was told to avoid that unless I know FOR SURE that they're vanilla does not contain gluten. Help!

also, does maple syrup (100%) contain gluten?

Thanks, Jennifer


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

First of all, yes most of us have called the company. and also there are a lot of gluten-free candy lists floating around, and a lot of companies have gluten-free lists on their websites

MySuicidalTurtle Enthusiast

It is ALWAYS a good idea to contact the company. Most have a number right on the back. When I am at the store and find a new product I take out my phone and ring them even if I am pretty sure it's glutenfree. You can offical product websites and e-mail them if you want to research things before you purchase them. Good luck!

  • 2 weeks later...
jdlehman Newbie

I have an easy solution for the ice cream problem. I grew up making homemade ice cream which is delicous. All I had to change when I found out I was a Celiac was to get gluten-free vanilla. (I will post the recipe when I get home.) You can buy an electric ice cream maker for under $40 at Meijer or Walmart that will last for years if you take care of it.

darlindeb25 Collaborator
<_< geesh--i must be hiding under a rock or something :( i didnt know we couldnt have vanilla--artificial vanilla i could maybe understand, but real vanilla is made from vanilla beans--so--- :unsure: someone tell me what i have been missing--please :( deb
MySuicidalTurtle Enthusiast

I think it's just making sure you have pure vanilla.

jdlehman Newbie

Here is the recipe for homemade ice cream that I promised.

4 eggs

1/2 teaspoon of salt (I have never used salt in it)

2 Tablespoons of Vanilla

3 cups of sugar

1 quart of half and half

1 quart of milk

Mix completely, you will see some specks from the eggs, but don't worry about that. Put this in the ice cream maker and you're ready to go. When you are freezing the ice cream use lots of salt on the ice and keep the ice covering the ice cream container. After the machine stops unplug it and then recover with ice and let it sit for about 30 minutes.

Josh


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Certain companies, such as Kraft, promise to list gluten on the label. If it's in natural flavors, it will have wheat or whatever in parentheses.

Other than that, it's either that everything on the label is fine and not questionable (aka: no artificial flavors/colors, no natural flavors, no modified food starches, etc.) or that, most likely, we've called companies or e-mailed and received lists, etc.

KaitiUSA Enthusiast

Since I have been diagnosed I have called all the companies of everything I get and I ask for a gluten-free list from them and I have a journal book I paste them into that I bring along so I know what I can eat.

Some brands will not hide gluten in their products. With labels that have ingredients such as modified food starch and flavoring you have to call the company..when you know what brands won't hide anything in the flavoring it makes it a bit easier.

Nabisco, kraft, betty crocker, general mills are a few that will not hide anything. Also the STAX chips from Lays have marked on the side that it is free of gluten.

As for ice cream...TCBY yogurt and ice cream have many flavors that are gluten-free. I live in MD so I am not sure if that is nation wide. Dairy Queen soft serve vanilla and chocolate are safe as well as their M&M Blizzards w/o chocolate sauce.

Also there is a place you can order donuts and bread that taste very good. Kinnikinnick foods in canada ship the product overnight then you can freeze them and they are so good. Also I went to a celiac conference and they had Chebe bread. I bought 8 packs of garlic mix for breadsticks and they are delicious. Chebe also offers cinnamon, cheddar, and original flavored.

If anybody needs any info on some of these companies i would be glad to help in anyway I can:)

lovegrov Collaborator

Avoid corn syrup??? Corn syrup is ALWAYS gluten-free. Period. 100 percent maple syrup?? ALWAYS gluten-free. Period. Artificial and natural flavors? Yes, there's a small chance of gluten so check, especially with natural flavors (I've actually never found an artificial flavor with gluten). And never found a vanilla with gluten, either.

richard

darlindeb25 Collaborator
;) i agree about vanilla--i use real vanilla, but have used artificial and never thought about it--i asked my sister yesterday about vanilla--she never heard any reason we couldnt use it either--i think it's the caramel coloring that is confusing people--we were told at one time to be very careful of caramel coloring, but i think that opinion has changed---my sis is celiac and a dietician--i do trust her when she tells me something is safe--use vanilla------and true about corn syrup--that has always been on my gluten free lists but does anyone know this-----if i cant use corn flour or corn meal, does that mean i need to stay away from corn syrup--i am wondering if my problem is with the protein in corn and it may be gone once it has been heated to the syrup stage--always trying to figure these things out--will we ever be sure :blink: deb
Boojca Apprentice

Vanilla....it's bc of the alcohol they use to make the vanilla. Sometimes, although I haven't found one yet, they use a gluten-based alcohol. But McCormick's is gluten-free, and that's an easy one to find.

Ice Cream....Ben&Jerry's will list all ingredients, Breyers as well. Honestly, I've done a lot of ice cream searching and I have not found one yet that is not gluten-free that isn't obvious (ie cookies & cream,etc....) so, feast away!!

Candy...there are a TON of gluten-free out there. No Milky Ways, but Milky Way Midnight is ok, Snickers in the USA is ok (not in Canada, from what I understand from other boards I'm on...)

The product lists in the Celiac group at www.delphiforums.com is GREAT. I belong to that board as well, and the list is created entirely by the board members who are required to not only submit the product information but the date they confirmed it, how they confirmed it, and other pertinent information. I have not yet been burned by that board.

Bridget

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.