Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Venting - Glutened By Diet Pepsi? Or Cc?


cyberprof

Recommended Posts

cyberprof Enthusiast

I have to vent here because y'all are the only ones who can understand how frustrating this is.

I have been so overloaded. My hubby has had a back-ache for two weeks and has been doing zilch, so I have had to do more of the cooking, shopping, cleaning etc. Our horse got sick, so hubby isn't able to help with that. My son was sick last week.

I also teach at a community college part time, and grades were due Monday, and I worked on them all weekend and didn't get enough sleep.

Yesterday the cat got sick! After working a whole day, I drove to get the cat at the vet's (envision rush hour city traffic for 1.5 hours), and indulged myself by treating myself to a diet Pepsi from Dairy Queen drive thru. It's a very rare treat-once a month or less. And it was all the dinner I'd be getting before going to my son's soccer game. And it's better than drinking alcohol and driving (kidding!).

I hadn't eaten anything before that so I know it was the pepsi. Burping and heartburn started after 2-3 sips and I then got my stomach ache. I didn't finish it but got enough SOMEHOW to have cramps, D and naseous all day. And I couldn't call in sick because the woman who reports to me at work was at a conference. All day, back and forth to the restroom. Scary, sometimes.

It can't be simple. I guess I have to go into the DQ, get the cup and fill it up myself, making sure that there are no wheat crumbs in the cup. Either that, or the DQ CC'd the Diet Pepsi dispenser. Yuk!

Sorry for the long-winded rant. People at work just don't understand and I try not to tell my family these horror stories because my son just went gluten-free a couple weeks ago, and I don't want to depress him.

~Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

The real sensitive in my family avoid any 'dark' sodas regardless of how gluten free they are said to be we both react. There is also the possibility that the soda in the machine will have a different and possibly gluten filled formula that the bottled stuff does not have.

Sandi* Apprentice

Could it have been the sweetener? Diet Pepsi uses two kinds - aspartame and sucralose (aka Splenda). The way sucralose works is that it passes through our guts undigested, hence the "no calories" part. However, because of that it can also cause tons of gastrointestinal distress (bloating and diarrhea being the most common). Since you bought it in a cup you probably don't know which kind was used. I would suggest next time getting the bottled kind sweetened with aspartame and seeing if you still have symptoms.

Plus, the fact that you had nothing else to eat probably didn't help either because that way your stomach wasn't "buffered" with anything safe.

shayesmom Rookie

It may not have been a reaction to gluten, but rather a reaction to the artificial sweetener in the Diet Pepsi. Many people have problems with that and the reaction can be similar to a gluten reaction. I also have found that the regular Pepsi isn't any better. I've noticed that drinking Pepsi will trigger psoriasis in me, especially over the past year. I called Pepsico and asked if they'd changed the ingredients in Pepsi as I've been able to drink it for decades up until recently. They said they haven't changed a thing. But upon further research, I did find that all soda manufacturers had to reformulate their drinks because of law suits involving benzene in their products. So while they may not have changed the ingredients per se, they may have changed the quantities of certain ingredients in their drinks. So now, I avoid them all like the plague....

Steaz makes a "cola" green tea which is reminiscent of cola soft drinks. It isn't as carbonated, but I find it works better for me. You may want to look into it as well.

I have to vent here because y'all are the only ones who can understand how frustrating this is.

I have been so overloaded. My hubby has had a back-ache for two weeks and has been doing zilch, so I have had to do more of the cooking, shopping, cleaning etc. Our horse got sick, so hubby isn't able to help with that. My son was sick last week.

I also teach at a community college part time, and grades were due Monday, and I worked on them all weekend and didn't get enough sleep.

Yesterday the cat got sick! After working a whole day, I drove to get the cat at the vet's (envision rush hour city traffic for 1.5 hours), and indulged myself by treating myself to a diet Pepsi from Dairy Queen drive thru. It's a very rare treat-once a month or less. And it was all the dinner I'd be getting before going to my son's soccer game. And it's better than drinking alcohol and driving (kidding!).

I hadn't eaten anything before that so I know it was the pepsi. Burping and heartburn started after 2-3 sips and I then got my stomach ache. I didn't finish it but got enough SOMEHOW to have cramps, D and naseous all day. And I couldn't call in sick because the woman who reports to me at work was at a conference. All day, back and forth to the restroom. Scary, sometimes.

It can't be simple. I guess I have to go into the DQ, get the cup and fill it up myself, making sure that there are no wheat crumbs in the cup. Either that, or the DQ CC'd the Diet Pepsi dispenser. Yuk!

Sorry for the long-winded rant. People at work just don't understand and I try not to tell my family these horror stories because my son just went gluten-free a couple weeks ago, and I don't want to depress him.

~Laura

Panopticism Rookie

Caffeine? Last time I had a soda(or pop as it's called here), was a Mountain Dew about a year ago... I literally almost killed myself to put an end to my misery. I was so sick that night. Coffee, chocolate and tea all do the same to me. Coffee is the worst.

With that having been said, I sometimes drink Canada Dry ginger ale(caffeine free) with no problems.

cyberprof Enthusiast

Thanks everyone. Venting helps.

Another small pleasure down the drain. I don't like diet pepsi in the can - only the soda fountain kind.

I may be the sucralose, as I have eliminated that when found in other items because it caused bloating and gas. I don't drink coffee but have no problem with caffine in tea. But this felt like a gluten reaction not a sucralose reaction. But I guess I'll just give it up and have a flavored water or something (after I research that). I drink a ton of water and usually just have that but wanted a treat.

~Laura

shayesmom Rookie

I think we all can relate to wanting a "treat". I recently discovered that I like kombucha teas....and it is a great replacement for carbonated drinks. And the sweet/sour flavor is peculiar and yet I find it addictive. lol! Plus, it's just fermented tea and is full of probiotics. So it's actually very good for you. That is my new "treat". It will quell a soda craving in no time. You may want to give it a try and see how it works for you.

Thanks everyone. Venting helps.

Another small pleasure down the drain. I don't like diet pepsi in the can - only the soda fountain kind.

I may be the sucralose, as I have eliminated that when found in other items because it caused bloating and gas. I don't drink coffee but have no problem with caffine in tea. But this felt like a gluten reaction not a sucralose reaction. But I guess I'll just give it up and have a flavored water or something (after I research that). I drink a ton of water and usually just have that but wanted a treat.

~Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Hi Laura,

If you're sure it was a gluten reaction, I'll bet it was due to the person filling your cup after handling a hamburger bun or ice cream cone.

I understand about just wanting a convenient treat once in a while. I love to go to Starbucks and get tea. I now always ask for the tea bag still in the wrapper because I think something similar happened to me when the barista made the tea. I got sick later in the day, probably the person handled a pastry or sandwich before making my tea.

It's a pain in the neck for sure, and I'm glad you got to get it off your chest :D

Sandi* Apprentice
I recently discovered that I like kombucha teas....and it is a great replacement for carbonated drinks. And the sweet/sour flavor is peculiar and yet I find it addictive. lol! Plus, it's just fermented tea and is full of probiotics. So it's actually very good for you. That is my new "treat". It will quell a soda craving in no time. You may want to give it a try and see how it works for you.

I LOVE kombucha teas! I just wish they were just as cheap as soda :-). I thought about making my own but I'm afraid I will just kill the mushroom, lol!

ellen123 Apprentice

Hi Laura,

Sorry to hear your treat turned out to be so much trouble. I'll bet it was just something the DQ employee handled just before pouring and handing you your drink. I had a bad reaction from "treating" myself to a Starbucks latte (what could be bad about a coffee and steamed milk, I thought). I thought it would be safe because the person who makes the coffee drinks does not hand out the muffins and pastries. But anyone at Starbucks or Dairy Queen or any of those kinds of fast-paced, fast food places could be handling anything right before your order. There could be crumbs on the counters, stuck on their sleeves, etc. Anyway, every now and then we just have to take those gambles, I guess (especially teachers -- it can be exhausting sometimes).

Hope you, your family, the horse, the cat, everyone else, feel better soon!

Ellen

cyberprof Enthusiast
Hi Laura,

Sorry to hear your treat turned out to be so much trouble. I'll bet it was just something the DQ employee handled just before pouring and handing you your drink. I had a bad reaction from "treating" myself to a Starbucks latte (what could be bad about a coffee and steamed milk, I thought). I thought it would be safe because the person who makes the coffee drinks does not hand out the muffins and pastries. But anyone at Starbucks or Dairy Queen or any of those kinds of fast-paced, fast food places could be handling anything right before your order. There could be crumbs on the counters, stuck on their sleeves, etc. Anyway, every now and then we just have to take those gambles, I guess (especially teachers -- it can be exhausting sometimes).

Hope you, your family, the horse, the cat, everyone else, feel better soon!

Ellen

Thanks Ellen.

~Laura

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents commented on Dr. Ron Hoggan, Ed.D.'s article in Winter 2005 Issue
      1

      New Data on Used Oats

    2. - trents replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      25

      Blood results

    3. - Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      25

      Blood results

    4. - DAR girl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Celiac and allergic to common subs and adds in prepared foods

    5. - Scott Adams replied to Jmartes71's topic in Doctors
      1

      Disregarded


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,178
    • Most Online (within 30 mins)
      7,748

    Stephanreyes242
    Newest Member
    Stephanreyes242
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
×
×
  • Create New...