Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Your Ideas


holdthegluten

Recommended Posts

holdthegluten Rising Star

I thought maybe you could help me figure ot what is wrong with me......you all are very knowledgeable and your insight might be very helpful.

When i wake up i feel hungover and really tired. I have had upper abdominal tenderness on my right side along my ribcage. have burning eyes a lot of the time and nausea usually just right when i wake up. When my stomach feels real sore i have a really dry mouth. My legs feel weak and stiff off and on, stiff neck and if i overexert myself, my stomach will get really tender (in the area of the liver). My thyroid has gone from 1.3 to 2.16 and i have an elevated liver enzyme of 52 (ALT) and all of the other enzymes are on the upper normal. I do have an H.Pylori infection (Biohealth) and abundant E. Coli. I am worrried if my liver is in danger. My ALT went from 26 to 52 in about 6 months and my liver is always really tender. I eat extremely simple and clean, so gluten is most likely not the problem. Before all of these problems started, even celiac disease, I got really sick where i was vomitting and pooping blood. I went to the hhospital and the bleeding stopped and they said i had the stomach flu. I have never been the same since. My brainfog has improved, but my body feels beat down. Im only 27. The best way i can describe how i feel is toxic. My eyes are always red and irritated, dry mouth, nausea, weak, upper abdominal tenderness (worse on empty stomach), moody. And my adrenals are out of whack. High cortisol in the morning and night, but normal in the day. Cortisol/Dhea ratio 9:1. Please help


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Janeti Apprentice

Hello Wayne,

I have been reading your posts for a while now, and I feel so bad for you. Alot of what you said, is the way that I feel. Have the Drs ever checked to see if your gallbladder is still functioning? I know that when I was at my sickest, my liver functions were abnormal, and within the following months, it was removed, but....I still didn't feel better. I recently started seeing a ND, who I think has helped me to some degree. I am still loaded with fungal overgrowth and it is doing a number on my entire system.

Have you ever been tested for that? It seems like something toxic is pouring into your system and making you feel like crap...And I know, you're scared and fustrated. I get the weakness in my legs at times, muscles pains, tenderness in my abdomen. Do you have any Dr at this point that you think might be able to test you for foods that you might be allergic to? I hope you get some answers soon, and that you'll be on your way to feeling better. :)

AndreaB Contributor

H pylori can do a number to you along with ecoli. Also, when your body is overun by something it gives other things that may have been held in check the opportunity to proliferate.

I really recommend coming over to the OMG I Might Be On To Something thread and posting your story there. Some there have had h pylori and can see if their symtpoms match with yours or not. There are so many variables it could be or it might just be these two things you're dealing with.

Sounds like you need liver support. A good naturopath/holistic doctor or LLMD will be able to suggest what would be best.

I would also recommend muscle testing if you aren't against alternative treatment......in particular one called ART (autonomic response testing). If you are in the west it would be pretty easy to track down someone who does that, I'm guessing your in the SW or south midwest by an earlier picture you had. ART will tell you what your stressors are at this time and also what will be most effective in dealing with and supporting the body while treating it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    2. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,921
    • Most Online (within 30 mins)
      7,748

    Rusty49
    Newest Member
    Rusty49
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.