Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Dh Always Have A Rash?


AliB

Recommended Posts

AliB Enthusiast

My daughter who is 29 has been getting little occasional rashes that are sometimes itchy but not always. At the moment she has a very itchy area on her back but there does not yet seem to be any rash. A few months ago she had rashes on both hips although they weren't particularly itchy.

I too have had odd itchy skin areas occasionally over the years - so itchy I have sometimes drawn blood with the scratching! I had a patch on my right hand just before my digestion collapsed in January (I had had IBS for years and finally had a very bad painful stomach for the last 6 months) that was itchy for weeks. There was one small spot in the area, that I thought was just where I had knocked my hand or something. Eventually I suddenly noticed there was a small pimply sandpapery rash that had spread out about 2 inches around the spot. The skin went very dry but after that it started to clear up and stopped itching. By then I had already started gluten-free and dairy free.

I am pretty confident my Mum was Celiac although she died before it could be diagnosed. My blood test came back negative and I was in too much pain to wait for a biopsy so I started gluten-free straight after the blood test. My daughter has had major depression and emotional problems and suffered with things like night terrors as a child and I am wondering whether she (or even we) may have silent Celiac.

I do not know much about DH. Any advice would be helpful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AliB Enthusiast

Just bumping this up as I would like to know more about DH.

My daughter's itchy area did end up as a rash - it came out the next day.

Can DH start small and occasional and get larger and more regular and problematic over time?

Just out of interest we also have a friend who has had what was diagnosed as Erythema Nodosum. Has anyone ever suffered with that? could it be confused with DH?

Quite a few have looked at the thread but no one has responded. Can I tempt anyone? Please?

trcn Apprentice
Just bumping this up as I would like to know more about DH.

My daughter's itchy area did end up as a rash - it came out the next day.

Can DH start small and occasional and get larger and more regular and problematic over time?

Just out of interest we also have a friend who has had what was diagnosed as Erythema Nodosum. Has anyone ever suffered with that? could it be confused with DH?

Quite a few have looked at the thread but no one has responded. Can I tempt anyone? Please?

Probably not much of a response, but I've asked myself that since I went gluten-free. My only symptoms, I mean really... ONLY symptoms were itchy scalp and arms. That's it. No rash, even. Definitely years of drastic hair loss, but no rash on scalp or arms. Nooo GI stuff at all.

Since going gluten-free I have no itch whatsoever... I had to cut out all beauty products that contain gluten. If I touch shampoo to my head that has wheat protein or some such thing... I dig at my scalp for days.

I have anti gliadin anitbodies but negative for celiac via blood work... go figure. Also, severe Vitamin D deficiency. No other nutrient levels tested, but i can imagine... Who cares, I cut the gluten. Hair is coming back quickly. But now, I really react to glutening. Itchy arms, scalp, and now face and ears and hair shedding for a week. Oh, and i forget to mention pimples... they all cleared up when I went gluten-free.

I have a feeling there is something different for everybody. I haven't found anybody who has my experience, yet I feel we are all the same because our experiences are all so different.

Good luck on your search.

Tracy

Tracy

AliB Enthusiast

Thanks Tracy - it's good to get some feedback and to hear another experience.

I don't think I am Celiac although very GI but I do wonder, in view of the fact that my Mum was Celiac, whether it can skip generations. That happens with diabetes sometimes apparently, and as diabetes and celiac seem to be linked then I would imagine it is possible. Although I may not have it, I may have passed on the gene to my children or grandchildren.

I don't think enough is really known about it yet for any conclusion to be drawn on that but it is still an interesting thought.

missy'smom Collaborator

What you're describing sounds like eczema. My son had it for years and I finally asked for him to be allergy tested. I had read that it can be caused by allergies. He had both blood and skin testing. He reacted to all but one or two out of 40 and had big swollen blisters on several of the dots they put on his back. The allergist said that the fact that he wasn't going crazy and was just calmly standing there showed that he was so used to it. Poor kid. We're going to eliminated the foods sometime and see which one/s are causing the eczema. He had a mild reaction to wheat, soy and tree nuts. We were given some cream that works well to help with the itching but I'm very cautious and use it only sparingly and occasionally.

Here's some info about DH.

Open Original Shared Link

RiceGuy Collaborator

I used to have an incessantly itchy back, but it has gone away since gluten-free. There was never a rash. I have gotten itchy arms a few times, which I determined was from ground celery seed. The whole celery seed doesn't do it, and I read the ground product is not always from the seeds of "table celery".

A sensitivity to things like nightshades can do it also. I'm sure other things can too.

AliB Enthusiast
I used to have an incessantly itchy back, but it has gone away since gluten-free. There was never a rash. I have gotten itchy arms a few times, which I determined was from ground celery seed. The whole celery seed doesn't do it, and I read the ground product is not always from the seeds of "table celery".

A sensitivity to things like nightshades can do it also. I'm sure other things can too.

Funny, you know I hadn't thought about it but for years I have had an area on my back just inside my right shoulder-blade that would get extremely itchy. It would also feel slightly numb. It seems to have been better since I went gluten-free although I think I have had to get the back-scratcher out a couple times - maybe I was reacting to something I'd eaten!

That's interesting about celery. i have wondered if I have a problem with it - I have a couple of herbal bouillon powders that I use in cooking and have found that they leave me with a strange taste in my mouth and a cough - although they don't seem to have any wheat in them I do wonder if it might be the celery. Perhaps they use celery seed as part of the flavour.

Are you ok with fresh celery stalk? I'm not sure about nightshades. I don't usually eat potatoes or tomatos at the moment but I did have a potato fairly recently and I cooked with some tomato paste the other day - I wonder if that is when I had to get the scratcher out??! I will monitor that one! Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    4. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    5. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.