Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy In One Week

KristaleeJane

Recommended Posts

KristaleeJane Contributor
KristaleeJane
Posted

I have a biopsy in one week, and I am 95% sure I have celiac according to my blood work, which came back high for IgA. So I am just having the biopsy as a confirmation. Does anyone know that if I started the gluten free diet now if my test would be affected, my biopsy is on Apr 14-08, and I really don't want to eat like this anymore. I have heard that It can take months to heal, so would a week really matter? Any info would be greatly appreciated. Also where can I buy sublingual tablets, I heard from another blogger I should be taking those since I may not be absorbing any vitamin tablets I am taking.

Thanks

Krista

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Do not start gluten free until after the testing. I know its tough, but you want as accurate results as possible. If you go gluten free now, you can get a false negative. The damage from Celiac is patchy, and can be easily missed. Going gluten free before the test negates the point of the test-to see the damage.

The nutritionist from the Celiac Center at Univ of Maryland, Baltimore, spoke and said that changes to the intestines does occur within one week and CAN affect the biopsy results.

Speak with your GI before the procedure and confirm that he is taking 4-6 biopsies. One biopsy specimen is not enough to have confidence in your results (if negative).

Best of luck!

KristaleeJane Contributor
KristaleeJane
Posted
  • Author
Do not start gluten free until after the testing. I know its tough, but you want as accurate results as possible. If you go gluten free now, you can get a false negative. The damage from Celiac is patchy, and can be easily missed. Going gluten free before the test negates the point of the test-to see the damage.

The nutritionist from the Celiac Center at Univ of Maryland, Baltimore, spoke and said that changes to the intestines does occur within one week and CAN affect the biopsy results.

Speak with your GI before the procedure and confirm that he is taking 4-6 biopsies. One biopsy specimen is not enough to have confidence in your results (if negative).

Best of luck!

Ok well that explains things for me, I will definalty tell him to do that, and he said he can give me an idea of the results right after the test, and then they will be sent away for a more in depth tests. I will post my results as soon as I know

Thanks for your advise!!!! Really appreciate it

happygirl Collaborator
happygirl
Posted

He can give you an idea, but you won't know for certain until you receive the pathologist's report. A doctor may say, "no you don't have Celiac" but your biopsy could prove otherwise.

Open Original Shared Link is a great resource for info. Open Original Shared Link talks about needing adequate biopsies.

Which bloodwork did you have done? There are five tests that make up the Celiac panel---you may want to ask your doctor about this.

Spend the week eating your "favorite foods" and read up on label reading, safe/unsafe foods, places to eat, etc. Good luck!

KristaleeJane Contributor
KristaleeJane
Posted
  • Author
He can give you an idea, but you won't know for certain until you receive the pathologist's report. A doctor may say, "no you don't have Celiac" but your biopsy could prove otherwise.

Open Original Shared Link is a great resource for info. Open Original Shared Link talks about needing adequate biopsies.

Which bloodwork did you have done? There are five tests that make up the Celiac panel---you may want to ask your doctor about this.

Spend the week eating your "favorite foods" and read up on label reading, safe/unsafe foods, places to eat, etc. Good luck!

My test result say:

(NEW) ANTI TISSUE TRANSGLUT AB (CELIAC SCREEN)

92 UNITS, NORMAL RANGE AT 20 UNITS

PRESENCE OF IgA ANTIBODY TO TISSUE TRANSGLUTAMINASE SUGGESTS GLUTEN SENSITVE DISEASE. SENSITIVITY AND SPECIFICITY FOR GLUTEN ENTEROPATHY ARE APPR 95%

So do you know what test this is??

happygirl Collaborator
happygirl
Posted

Yes, that is the tTG IgA test, which is one of the best/most accurate predictors of Celiac. You are well on your way!

Let us know what else we can do to help.

nora-n Rookie
nora-n
Posted
My test result say:

(NEW) ANTI TISSUE TRANSGLUT AB (CELIAC SCREEN)

92 UNITS, NORMAL RANGE AT 20 UNITS

PRESENCE OF IgA ANTIBODY TO TISSUE TRANSGLUTAMINASE SUGGESTS GLUTEN SENSITVE DISEASE. SENSITIVITY AND SPECIFICITY FOR GLUTEN ENTEROPATHY ARE APPR 95%

So do you know what test this is??

I have read some articles where they discuss the numbers on this tissue transglutaminase test, and the latest news is that if the numbers are jsut slightly elevated, celiac is not sure (but we here would say they did not biopsy the right place...) , whereas a high number like yours is definitely celiac.

Forgot where I read that, but found the link at the delphi celiac forum and i might have been a university in canada that publsiched this. The researcher publiching the article was someone's doctor (and she discussed it with him; they did not classify increased lymphocyes and something else I forgot as positive....sounded like they were quite strict in diagnosis so the lower ttg numbers did not correte sith celiac...)

nora

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    2. knitty kitty
      - knitty kitty replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Water filters are a potential problem for Celiac Disease

      Reverse osmosis water pulls electrolyte minerals out of the body. If used for cooking, RO water will even pull even more electrolytes out of the food. If you're not replacing electrolytes because you're eating food cooked with RO water, you can suffer from Electrolyte Imbalance. The symptoms of Electrolyte Imbalance are similar to those that occur...
    3. Wheatwacked
      - Wheatwacked replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Water filters are a potential problem for Celiac Disease

      Library paste and paper mache. I have in passing read of wheat based glue used to glue fish tank filters together so it is not surprising they might be in refridgerator filters. Seems the issue with bottled water would be at the personal filters rather than the mass filtering. Just have to boycott the brands that effect you. Gatorade drinks all have...
    4. YoshiLuckyJackpotWinner888
      - YoshiLuckyJackpotWinner888 replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Water filters are a potential problem for Celiac Disease

      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If...
    5. Scott Adams
      - Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Reverse Osmosis (RO) Water

      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,577
    • Most Online (within 30 mins)
      7,748
    Claire Carucci
    Newest Member
    Claire Carucci
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Water filters are a potential problem for Celiac Disease

      By knitty kitty · Posted

      Reverse osmosis water pulls electrolyte minerals out of the body.  If used for cooking, RO water will even pull even more electrolytes out of the food.  If you're not replacing electrolytes because you're eating food cooked with RO water, you can suffer from Electrolyte Imbalance.  The symptoms of Electrolyte Imbalance are similar to those that occur with being exposed to gluten.   Also consider that many people with Celiac disease have malabsorption issues and may already be low in electrolytes.  Exposure to RO water may create some health changes more quickly than in healthier individuals.   RO water impacts the body in many ways.  Read this fascinating study.   Long-Term Consumption of Purified Water Altered Amino Acid, Fatty Acid and Energy Metabolism in Livers of Rats https://pmc.ncbi.nlm.nih.gov/articles/PMC11122726/ Drink mineral water.  
    • Wheatwacked
      Water filters are a potential problem for Celiac Disease

      By Wheatwacked · Posted

      Library paste and paper mache.  I have in passing read of wheat based glue used to glue fish tank filters together so it is not surprising they might be in refridgerator filters. Seems the issue with bottled water would be at the personal filters rather than the mass filtering.  Just have to boycott the brands that effect you.  Gatorade drinks all have either gums, modified starches or stevia that might be affecting you.  Looking for energy or hydration try Red Bull.  It has the vitamins, minerals, antioxidant Taurine, sugar and glucose to process the sugar from mouth to ATP and clean up. Taurine is essential for protecting mitochondria from damage, such as from reactive oxygen species (ROS) or calcium overload. If you are exclusively drinking bottled water you may want to consider taking Lithium Orotate 5 mg.  We need about 1 mg a day of Lithium and mostly it is gotten from ground water.  Lithium deficiency can cause anxiety and suicide.  I find it helpful. Lithium in the public water supply and suicide mortality in Texas: Journal of Psychiatric Research Is Lithium a Micronutrient? From Biological Activity and Epidemiological Observation to Food Fortification
    • YoshiLuckyJackpotWinner888
      Water filters are a potential problem for Celiac Disease

      By YoshiLuckyJackpotWinner888 · Posted

      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in  such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If I went to physician to get checked for other possible triggers from a water bottle, I don’t think that will go anywhere. Again, distilled water containers cause no reactions. I’m not an industry expert, but something is there.  I don’t think that this is a case of microplastics causing this. Too bad we can’t call upon some third party investigation.  
    • Scott Adams
      Reverse Osmosis (RO) Water

      By Scott Adams · Posted

      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, it would not pass through RO membranes or remain in finished bottled water at clinically meaningful levels. Plain water — filtered, RO, or bottled — does not contain gluten unless it is intentionally added (which would require labeling). Steam-distilled water is certainly safe, but it is not considered medically necessary for people with celiac disease. If reactions are occurring, it may be helpful to explore other potential explanations with a healthcare provider rather than assuming filter-related gluten exposure.
    • Scott Adams
      Yeast extract

      By Scott Adams · Posted

      It’s understandable to look for bigger explanations when you’re dealing with complex symptoms, but the current scientific consensus does not support the idea that celiac disease evolved as a defense against Candida. Celiac disease is a well-characterized autoimmune condition triggered specifically by gluten in genetically susceptible individuals (HLA-DQ2 or HLA-DQ8). While some laboratory studies have shown that certain Candida proteins (like Hwp1) share limited sequence similarities with gluten or tissue transglutaminase (tTG), that does not mean Candida causes celiac disease or commonly produces false-positive tTG tests in clinical practice. Anti-tTG IgA remains a highly specific and validated marker for celiac when used appropriately (especially alongside total IgA testing and, when indicated, biopsy). IgG antibodies to Saccharomyces cerevisiae (ASCA) are more commonly associated with Crohn’s disease and are not considered diagnostic for celiac. There is ongoing research into microbiome interactions and immune cross-reactivity, but at this time there is no evidence that yeast exposure from foods triggers celiac autoimmunity in people without gluten exposure. If symptoms persist despite a strict gluten-free diet, it’s best to work with a gastroenterologist to rule out other conditions such as IBD, SIBO, non-celiac food intolerances, or refractory celiac disease rather than assuming a fungal-driven mechanism.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.