Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ate Gluten Just To See!

LoriG

By LoriG
in Coping with Celiac Disease

Recommended Posts

LoriG Contributor
LoriG
Posted

Ok, I've been gluten-free 7-1/2 months, but haven't gotten better. My main complaint is chronic fatigue. I also have Hashimoto's. So I decided to try some gluten because I really don't have an obvious symptom when I eat it. Last night we went to Pizza Hut and I ate pizza/breadsticks. I was expecting something awful to happen, but honestly no reaction!! After avoiding it for this long, something is wrong! I am meticulous about where it is in my food, don't eat at restaurants, careful in the kitchen..... I am so paranoid that I must be getting it in, but cannot figure this out at all. Why wouldn't I feel terrible from eating all of that? I was diagnosed by enterolab. Maybe they mixed me up with someone else? How can I continue this process when this happened? Any thoughts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

After being gluten-free for 2 1/2 years, I have a very delayed reaction from gluten. The D and stomach cramps don't usually hit me for 24 to 48 hours after being exposed to gluten. So, your reaction might still come. Some get reactions nearly a week after the fact.

If you haven't had a reaction within a week, you can be sure you didn't react. Also, some people have to consistently eat gluten for a few days to a couple of weeks before it catches up with them and they get sick. Everybody is different. Just because you haven't reacted doesn't mean that you didn't do intestinal damage by eating the pizza.

JNBunnie1 Community Regular
JNBunnie1
Posted
After being gluten-free for 2 1/2 years, I have a very delayed reaction from gluten. The D and stomach cramps don't usually hit me for 24 to 48 hours after being exposed to gluten. So, your reaction might still come. Some get reactions nearly a week after the fact.

If you haven't had a reaction within a week, you can be sure you didn't react. Also, some people have to consistently eat gluten for a few days to a couple of weeks before it catches up with them and they get sick. Everybody is different. Just because you haven't reacted doesn't mean that you didn't do intestinal damage by eating the pizza.

Ditto. For me it's 48 to 72 hours.

AliB Enthusiast
AliB
Posted

The fact that you haven't really recovered after going gluten-free may suggest that some other food or foods could also be preventing your recovery. Those who are gluten-intolerant often also have problems with other things like dairy, corn, soy, etc. If the other foods are preventing recovery and still making you feel ill they could also be masking any reaction from the gluten. Because there is no noticeable improvement, you can't assume that your problem is not gluten.

There is also the possibility that you are getting a continuous 'supply' of hidden gluten without being aware of it, which would also restrict recovery. The stuff is so insidiously ingratiated into so many seemingly innocuous products that it is very difficult to avoid it at times.

You might get a better response by doing an elimination diet. Eating simply will help your body start to heal. It can take a while but is worth the effort. Try and restrict your diet to plain unprocessed and unadulterated meat, fish and poultry, fresh fruit and vegetables, some tolerated nuts and a little honey if you want something sweet.

It's annoying when you have gone through all this and don't seem to be getting anywhere, but there is likely to be a reason behind it somewhere!

kbtoyssni Contributor
kbtoyssni
Posted

It could also be that you get very mild reactions. I also had mostly chronic fatigue and joint/muscle pain as symptoms. My joints have been really painful recently, and I finally discovered I was eating some packaged Indian food with CC issues. It took a few weeks of eating the stuff for my joints to get really bad. But that doesn't mean it wasn't doing damage! It seems like non-GI symptoms take longer to show up.

Annaem Enthusiast
Annaem
Posted

I get a reaction several days after. Your symptoms don't have to be stomach related it may manifest in another way. My mom gets joint problems and heat to her feet. Also i dont know if 7 1/2 months is enough time to completely heal. Some people take longer than that, depending on age and how long youve had it. I wouldn't judge my body's response based on 7 1/2 months. I'd say give it another 4 months.

LoriG Contributor
LoriG
Posted
  • Author
I get a reaction several days after. Your symptoms don't have to be stomach related it may manifest in another way. My mom gets joint problems and heat to her feet. Also i dont know if 7 1/2 months is enough time to completely heal. Some people take longer than that, depending on age and how long youve had it. I wouldn't judge my body's response based on 7 1/2 months. I'd say give it another 4 months.

Thank you all for your responses. I did have a long talk with both my ND and nutritionist about this and why I didn't seem to react at all and neither one of them were surprised at all. They said based on how much damage I still have and because I have the chronic fatigue. I was just disappointed because I am paranoid I'm getting gluten in even though I'm so careful and now I truly won't know because I don't have an immediate reaction. I guess I'll keep plugging along like everyone else :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MELINE Enthusiast
MELINE
Posted
Thank you all for your responses. I did have a long talk with both my ND and nutritionist about this and why I didn't seem to react at all and neither one of them were surprised at all. They said based on how much damage I still have and because I have the chronic fatigue. I was just disappointed because I am paranoid I'm getting gluten in even though I'm so careful and now I truly won't know because I don't have an immediate reaction. I guess I'll keep plugging along like everyone else :)

hello LoriG

Just want to say that for me too the reaction can take up to 2 days and has to be more than one gluten accident to realy feel it......

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748
    Jeanette K.
    Newest Member
    Jeanette K.
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.