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Strange Stools


kim26

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kim26 Apprentice

hi everyone,

my daughter was recently diagnosed, and doing sooo much better! my question today is about my 4 year old son. he's been having green and orange stools, sometimes normal in consistency, sometimes loose but not what i would call diarrhea, and lately some pellet like stool mixed in.....almost always green and orange in color, his appetite has definitely decreased and he complains of tummy aches at least once a day. this has been going on for a while but has gotten worse in the past 2 months. his pcp ordered a celiac panel and we had his blood taken today so we will see what the results are soon, hopefully...although i know they aren't hugely reliable in young children. does this sound familiar to anyone, or does anyone know if this has anything to do with celiac? or something entirely different? these symptoms are different than my daughter's so im just not sure. any help would be appreciated.... thx ~K


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shayesmom Rookie
my question today is about my 4 year old son. he's been having green and orange stools, sometimes normal in consistency, sometimes loose but not what i would call diarrhea, and lately some pellet like stool mixed in.....almost always green and orange in color, his appetite has definitely decreased and he complains of tummy aches at least once a day. this has been going on for a while but has gotten worse in the past 2 months. his pcp ordered a celiac panel and we had his blood taken today so we will see what the results are soon, hopefully...although i know they aren't hugely reliable in young children. does this sound familiar to anyone, or does anyone know if this has anything to do with celiac? or something entirely different? these symptoms are different than my daughter's so im just not sure. any help would be appreciated.... thx ~K

It has been my experience wth my dd that different colored/textured stools are often due to a food allergen or intolerance going on. For my dd, dairy gives yellowish stools, soy and egg give orange stools, gluten gives a clay colored one. Food colorings or artificial sweeteners give the pellet-like stool. (How sad is it that I've recognized what goes with what???).

Hopefully testing will help determine some of what is behind this. Otherwise, I would keep a food journal and start keeping track of what went in and what came out.

Also, I've found this site to be helpful in explaining some of what you've described: Open Original Shared Link

feedmykids Rookie

It's a strange question to ask but - Do his Poops float? That is a sign tht he is not digesting his fats. My DN has Cystic Fibrosis and that it if how they found out is that she had orange greasy poop that floated, and got tested for it. There is such a similarity between cystic fibrosis and celiac. The doctors at our childrens hospital say the only real big difference is the salt the body makes. If he tastes salty or his poop floats get him tested for Cystic fibrosis too.

RiceGuy Collaborator

Given the unreliability of the tests for young children, and you've already gotten the blood work ordered, I'd be inclined to put him an a gluten-free diet even before the blood test results are in. That would be far more accurate anyway.

kim26 Apprentice

thanks everyone for the replies! i have considered putting him on the gluten-free diet since my daughter and i are on it anyway(i tested negative for celiac, but have been "diagnosed" with IBS and duodenitis and hypothyroidism), but he is a very picky eater and i think i would have a hard time keeping him on it unless i know in my own head its necessary. he was a preemie by just a few weeks and his stay in the nicu broke my heart so im the first to admit that im a bit a of a sucker when it comes to giving in to him lol! i am just wondering if i should even be worried, sometimes his poop is normal, and im not sure if it floats....i think I've been so distracted by the color i haven't paid attention to much else lol any suggestions or helpful hints, things to look into would be helpful in addition to the replies I've already gotten :-)~K

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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