Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ciao, Just Need Some Help.


snowbunnyok15

Recommended Posts

snowbunnyok15 Newbie

Hello Everyone.

Yesterday morning I had some oatmeal and low carb wheat bread as I am working out with a trainer and losing weight, well more weight. My doctor calls me to give me the pathology results of my colonoscopy and endoscopy a couple weeks ago. She begins to tell me that in the small intestine the biopsy came back as I had a gluten intolerance. I said a what? She says, you can't eat anything with wheat, stuff like that.

Upon telling my mother she has a co-worker who has celiac disease and gave me the address to this site. I knew nothing about it really until a little over 24 hours ago. Anything I need to know Id appreaciate anyone telling me. I've been reading and reading it just all seems so overwhelming.

Even though this is a pain in the neck, I am very thankful for knowing I'm not crazy. The doctors made me feel stupid putting me on medications, nothing worked and making me feel like I was making all of this up. Different problems that made no sense. Then I finally found a "good" doctor. Who sent me to a specialist to find out the "problem" versus just giving me another pill that just wouldn't work. So, I'm very thankful that I know what's wrong with me. I just have no idea everything I must know.

Thanks for taking the time to read this...

Michelle

Claremore, Ok


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cardine45 Newbie
Hello Everyone.

Yesterday morning I had some oatmeal and low carb wheat bread as I am working out with a trainer and losing weight, well more weight. My doctor calls me to give me the pathology results of my colonoscopy and endoscopy a couple weeks ago. She begins to tell me that in the small intestine the biopsy came back as I had a gluten intolerance. I said a what? She says, you can't eat anything with wheat, stuff like that.

Upon telling my mother she has a co-worker who has celiac disease and gave me the address to this site. I knew nothing about it really until a little over 24 hours ago. Anything I need to know Id appreaciate anyone telling me. I've been reading and reading it just all seems so overwhelming.

Even though this is a pain in the neck, I am very thankful for knowing I'm not crazy. The doctors made me feel stupid putting me on medications, nothing worked and making me feel like I was making all of this up. Different problems that made no sense. Then I finally found a "good" doctor. Who sent me to a specialist to find out the "problem" versus just giving me another pill that just wouldn't work. So, I'm very thankful that I know what's wrong with me. I just have no idea everything I must know.

Thanks for taking the time to read this...

Michelle

Claremore, Ok

My best suggestion for you when first going gluten-free is to do everything really bland and start with meats, veggies, and fruits. I just started the gluten-free diet about 2 1/2 weeks ago, and I'm so scared to mess up that I don't care that my food isn't incredibly flavorful. Until you do research on the best ways to find the "hidden gluten," it's easier just to avoid anything that might have gluten in it.

Be prepared to spend a lot of time making your own food. Also be prepared to be VERY frustrated when you do your first shopping trips. I would suggest sticking with the above mentioned items because I tried reading labels on my first shopping trip, and I almost walked out of the store in tears because I didn't know what items were actually safe. If you're interested in an item, start making a list of the product and manufacturer and do a quick google search when you get home. I typically search something similar to "gluten-free kraft." Most larger companies have some type of information on their websites, and otherwise you can find some other good resources through on-line product lists.

No one will claim it's easy, especially at first, and I'm definitely no expert, but I wish someone would have given me this same advice when I first started.

One last thing, if you choose to go out to eat, either be prepared to be VERY specific about what you can and cannot have, or at least make sure that they do things such as clean the grill and utensils before they make your steak (just an example) and that they don't put any spices on it. Also remember something as simple as a hamburger could have fillers in it to make it more flavorful, so actual pieces of meat are safer.

gfp Enthusiast
My best suggestion for you when first going gluten-free is to do everything really bland and start with meats, veggies, and fruits. I just started the gluten-free diet about 2 1/2 weeks ago, and I'm so scared to mess up that I don't care that my food isn't incredibly flavorful. Until you do research on the best ways to find the "hidden gluten," it's easier just to avoid anything that might have gluten in it.

Be prepared to spend a lot of time making your own food. Also be prepared to be VERY frustrated when you do your first shopping trips. I would suggest sticking with the above mentioned items because I tried reading labels on my first shopping trip, and I almost walked out of the store in tears because I didn't know what items were actually safe. If you're interested in an item, start making a list of the product and manufacturer and do a quick google search when you get home. I typically search something similar to "gluten-free kraft." Most larger companies have some type of information on their websites, and otherwise you can find some other good resources through on-line product lists.

No one will claim it's easy, especially at first, and I'm definitely no expert, but I wish someone would have given me this same advice when I first started.

One last thing, if you choose to go out to eat, either be prepared to be VERY specific about what you can and cannot have, or at least make sure that they do things such as clean the grill and utensils before they make your steak (just an example) and that they don't put any spices on it. Also remember something as simple as a hamburger could have fillers in it to make it more flavorful, so actual pieces of meat are safer.

Well, Cardinemight be new with only 2 posts but that is exactly what I would have said!

More tommorow (hopefully) meanwhile try searching this site for cross contaimnation (we say CC) and hidden gluten.

NLpacker-fan Newbie

Hi Michelle,

Welcome to the wonderful world of gluten-free living! It's quite a transition, but the best news is that it becomes second nature once you get the swing of things. Don't think about what you're giving up, but what you're getting in return.

My first advice is to visit the following blog: Open Original Shared Link

Shauna is the name of the woman who writes it and she has some inspiring words & recipes for everyone who is diagnosed with Celiac. She also has a load of fabulous links to check out for more information and she's written one of the best books on the subject, as it's from a very personal point of view.

Get friendly with your local health food store, as they often carry gluten-free items.

Best of luck! :)

Janel

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,583
    • Most Online (within 30 mins)
      7,748

    Caleb.rice
    Newest Member
    Caleb.rice
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.