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Can't See Doctor For 3 Months!

LuvMoosic4life

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LuvMoosic4life Collaborator
LuvMoosic4life
Posted

So I've been in search for a primary doctor since my last one rejected me for rediculous insurance reasons (not good when you are a college student). I've been calling everywhere and cant see a GI doc until I have a primary doctor. The closest appointment I can get is in JULY!! UGGHH! So I'm in a dilema. I know that gluten bothers me and I'm reading a lot about people getting negative results and such. I feel like if I want the best results to see if my body is reacting or if I have celiacs, I should be eating gluten. I dont want to go back b/c I know how I feel when I'm on it. My problems arent quite as severe as some people's in here. I could probably put up with eating a small amount of it each day, but it would have to be at night b/c I wouldnt want to deal with bloating and discomfort all day. BUt then there is the chance that I may get a doctor that will refuse to test me, so if I go back to gluten for three months prior to july, it may be for nothing depending onthe docs decision......grrrrr...

any suggestions?

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CCM Rookie
CCM
Posted

I feel your pain! I had blood work done in July 07, but then couldn't get in to a GI doctor until October, for which a consult was required before the endoscopy. So the endoscopy was not done until the week AFTER THANKSGIVING. AND no one told me how much or how little gluten I needed to eat in order to take the test. So naturally I had all my favorite foods all the time and was soooo sick by Thanksgiving I could not wait to get off gluten regardless of what the test results were (neg, after all that).

As a college student, are you required to have health insurance? Is there an on campus clinic for students? Or a campus teaching hospital? Have you tried a public clinic? Decide what hospital you want the GI doctor to work out of and find out what offices refer patients to that location.

If you are under 25 and happen to be on a parent's health plan still (I think this is still possible, it was when I was in school), you might consider seeing your parent's family doctor/GI referral over the summer if they don't live too far away. You might be able to see someone faster. But they are still going to want to do a celiac blood panel first if you have not already had one done.

Just some ideas....hope they help! ;)

gfpaperdoll Rookie
gfpaperdoll
Posted

You could ask the doctor that cannot see you for three months to refer you to someone that can see you right away, if that does not work, then ask to talk to the physician's assistant - sometimes they will get you in when the scheduling person will not. I would not accept the three month wait period - keep looking...

LuvMoosic4life Collaborator
LuvMoosic4life
Posted
  • Author

thanks! I have tried the health clinic at school. They were completely unfamilar with gluten intolerance and I actually had to explian the testing process. They didnt take my problem seriously. I am under my brothers insurance, The Empire plan. My mom actually works for doctors and is going to try and do something to get me in sooner since I'm looking for a doctor in the group she works for. Funny thing I just foujd out she actually works for a family doctor who also specializes in GI. I was telling my mom acouple weeks ago about what the blood tests were called for celiacs, she said she's never seen those test done in the office, but today right after I posted this I called her and said there was a patient in today gettin his results back for celiacs....I'm crossing my fingers I can see this doc by summer. If I have to be in pain until then, I guess thats what I'll have to do........I just ate 1 half of a half of a mini bagel about 2 hours ago and I have a throbbing headace and dizziness, feels like my muscles are fatigued all of a sudden too...this will be fun (sarcasm)

LuvMoosic4life Collaborator
LuvMoosic4life
Posted
  • Author
You could ask the doctor that cannot see you for three months to refer you to someone that can see you right away, if that does not work, then ask to talk to the physician's assistant - sometimes they will get you in when the scheduling person will not. I would not accept the three month wait period - keep looking...

I've actually done that about 5 times......my first call was a five month wait. 4 referrals later I worked myself down to three months-ugh.

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    • Resada
      Work friends & food

      By Resada · Posted

      Yeah, that one is always hard, especially since life seems to revolve around food. That happened to me 2 weeks ago with hibachi and with Hungarian hot dogs. I used to be more picky, but now I would love to try all the things if I could. On the bright side, my husband is absolutely wonderful with it, and his mom often brings a few certified gluten-free things to family get-togethers just for me (and tries to make sure main dishes are safe too). Having the people closest to you be supportive can make a huge difference. 
    • trents
      Work friends & food

      By trents · Posted

      I hear you. My extended family is very good about factoring in my celiac disease safety needs when making family celebration meal plans but sometimes it breaks down in the spur of the moment decisions to "Oh, let's go out and get some teriyaki" or the like. Especially when my brother in law comes into town 'cause he's pretty particular about what he likes to eat. So, sometimes I just say, "You guys go ahead without me. I'll find some leftovers." But, still, I admit to feeling a little left out at such times and a little like a 5th wheel.
    • Resada
      Work friends & food

      By Resada · Posted

      Same, and I appreciate your comments. I just needed to get it off my chest. Sometimes, even when its a genuine mistake, it can feel all too hurtful and I didn't want to go back to work tomorrow still in my feelings. 
    • trents
      Work friends & food

      By trents · Posted

      Yes, probably slipped his mind. Grace is in order here is my thought.
    • Resada
      Work friends & food

      By Resada · Posted

      I should have added that, while I dont have access during the meetings, I do as soon as I leave them (same for him) so I would have seen before I even left work. He has my number since we've needed to coordinate by cell a few times for work and other stuff. I usually have a protein bar or two in my desk for emergencies so I could have grabbed one of those and gone to meet them at the right restaurant.  Someone else decided on the change of restaurant and it must have slipped his mind that I wasn't coming back to my desk.
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