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Bone Pain And Stiffness

KimmyJ

By KimmyJ
in Related Issues & Disorders

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KimmyJ Rookie
KimmyJ
Posted

I'm very young to be asking a question about this, but I'm finding that I am having a lot of stiffness and, more recently, have developed some pain in the bones of my legs. I'm a little concerned about possibly a Calcium deficiency. The bone density scan is one that I have not had yet, but I was wondering if these could be symptoms of something other than osteoporosis. Thanks!

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tom Contributor
tom
Posted

My pre-gluten-free constant every-bone pain and occasional bouts w/ "Stiff Man Syndrome" went away once I was 100% gluten-free.

Not while I was 98% gluten-free tho.

And it may have taken a few months 100% gluten-free.

Have you been gluten-free long?

missy'smom Collaborator
missy'smom
Posted

I used to have that in the large upper leg bone every month when I was menstuating. It's gone now that I'm gluten-free.

trents Grand Master
trents
Posted

You really need to get the bone scan done and I would highly recommend you consider putting yourself on 1000 mg of Vitamin D3 daily. Bone density, once lost, can be very difficult to regain.

KimmyJ Rookie
KimmyJ
Posted
  • Author

Thanks - I am definitely working on stepping up my supplements. My father and I were talking last night about the vitamin D thing. I went to see a doctor finally last Friday, but he refused to run vitamin/mineral tests. I swear, men here just think they know better, and it's twice as bad when they're doctors. Really pisses me off because a man who has known me for five minutes can't possibly know better than me what I need. This is a seriously frustrating disease to get doctors to help you with! :angry:

RiceGuy Collaborator
RiceGuy
Posted

The two supplements that helped me with pain, in muscles, nerves, and bones, are methylcobalamin (B12) and magnesium. The suggestion of vitamin D3 is a good one too. Just make sure it's D3 (cholecalciferol). There are really a lot of nutrients which have been proven to play an important role in bone health, but those are the main ones which come to mind.

trents Grand Master
trents
Posted

I wish to make a correction on my earlier recommendation about vitamin D3 supplementation. Not 1000 mg but 1000 IU.

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
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      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
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