Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Healing? Please Help


JgeorgeSCR

Recommended Posts

JgeorgeSCR Apprentice

Is it possible your stomach can feel a bit worse as you heel? Other symptoms seem to be improving? However, never had much D before diagnosis, now it seems more frequent? Maybe reacting to soy or vitamins? vitamins probably aren't doing much though if they aren't being absorbed right?

Also, Anyone else find it difficut to digest some gluten free food early on in the gluten-free Diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Those special gluten-free foods are very hard to digest and are not recommended when starting the diet. And yes, you may be intolerant to soy as well, and it can certainly stop you from healing. Have you checked your vitamins for gluten? You may have to find out what the filler is, it might be wheat.

missy'smom Collaborator

Many use a liquid or powdered multivitamin because they are more easily absorbed. For a while, sesame seeds, flax seeds and tomato seeds irritated my system and gave me D. Later on I was able to re-introduce them.

Kritter Rookie

As a matter of fact, I am having a very similar experience. I don't ever remember being as gassy or having as frequent D as I do now that I'm gluten free for two solid months. I am not happy that you are having this problem too, but I can say I'm a little bit relieved not to be the only one for whom this issue has worsened since going g.f.

I was wondering why things should be worse in the stomach/intestinal area and better in all other aspects. With the help of some great folks on this site we did a little trouble-shooting. You might be interested in what we tried, since perhaps some of these ideas could help you. At first we considered that my magnesium intake might be too high, and now that I'm absorbing nutrients better, that I should cut my magnesium down (that can cause "loose stools") Then I tried upping my calcium (this can cause the opposite - the big C - if you use Calcium Carbonate.) Both of those ideas were really good ones, but not particularily helpful in my case.

My Mom, who is a nurse (but not a celiac) thinks that the grains that we use to substitute for regular old white flour are quite a bit harder on my system. UrsaMajor seems to have the same viewpoint. Based on that, I'm going to try to cut grains way down in my diet (like only have them for breakfast, and then just eat fresh meat, fruit, vegies, nuts etc. the rest of the day.) I, for one, am hoping this helps. I certainly see a significant worsening in the D on days when I eat a ton of grains and nothing else.

Good luck to you! If you find something that helps, please let me know. I'll let you know how cutting down on the grains goes for me.

Kristin

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,965
    • Most Online (within 30 mins)
      7,748

    Cbear
    Newest Member
    Cbear
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      It has been known for some years that celiacs suffer from migraines at a higher rate than the general populatation. It is an established symptom.
    • Ynotaman
      I suffer so bad with migraines when I eat gluten! Yes diagnosed celiac disease n 2015 and it took me years to discover gluten was behind me having severe migraines.  So yes it happens there has to be others like me!
    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.