Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluttened Question


Rpm999

Recommended Posts

Rpm999 Contributor

hey everybody- i wanted to know if anybody has had anything similar happen...well, i've been fully gluten-free (or tried to :lol:) for about two months...thursday last week, i had a few utz chips and believe i got sick from them, because the bigger bag has wheat flour, and the site says that kind isn't, and all of that so it's not surprising

the thing is, i feel that i'm getting worst as time goes on here...for days and days and days, i feel like how i felt about 2 months ago...completely off, crying a lot for no reason, flush sensations, have barely been able to sleep at all for seriously about 4 days, bad anxiety....i feel like i keep walking back and forth and feel like i want to die here....i can't even really watch tv or do anything, my brain feels REAL frozen, like literally nothing is going on...and i forgot how bad i felt before, but having this happen reminded me that i haven't felt that way in a while....actually, for a while before this, i was sleeping great, i actually kept falling asleep early and not even trying to and it was definitely a change...but with so many symptoms, i guess you don't notice when things get better

the thing is, i think i was gluttened once before and it was NOTHING like this...it was terrible, but it wasn't like how i used to felt, only a couple of days, wasn't getting worst/got better as days went on i think....then again, that was about a month ago i believe

my question is, when first going gluten-free, is it normal to have a reaction THAT bad? with such crippling symptoms and getting worst as time goes on?

another strange thing is that around the time i started getting sick, i started taking b12, and i've heard some people have a hard time with that, and it makes me wonder if maybe this triggered something off in me....who knows, but this has been scary :(

thanks to anybody that can help me! you've all been a great help, this has just felt traumatizing and so severe so i'd like to know if any of that is common/possible/makes sense to happen like that


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



johnfrancis Newbie

Hi, I'm really sorry you are having such a hard time, this has never happened to me.

I never had any symptoms and was only diagnosed because I decided to get tested after my grandmother my mother and my sister all found out they had celiac disease. My blood tests and biopsy were both positive!

I have noticed that if I have any gluten now (after 5 years gluten free) I get really bad stomach aches and other nasty symptoms, so maybe as you have been gluten-free for a while your symptoms are just a lot worse when you do have gluten in your system.

Really watch what you eat, avoid anything that potentially has gluten in it.

I think your symptoms are severe enough to go see a doctor, maybe you need some anti-anxiety meds?

Rpm999 Contributor

you're a lucky one then :lol: you wouldn't believe some of the problems people have, congrats on finding it out early so nothing bad will develop

aikiducky Apprentice

It's funny, I've seen LOTS of people say that they felt better for the first two months and then felt worse again. Seems there's a typical third month dip or something. :huh:

It's true that your symptoms if you get some gluten in you can get worse when you have been gluten free for a while. That's quite normal. Your body isn't used to dealing with gluten every day anymore.

Hope you feel better soon!

Pauliina

Rpm999 Contributor

thanks! those things are just so hard to deal with, nothing feels right, i keep crying out of nowhere and everything just feels dead or something- hard to explain :o

Rpm999 Contributor

anybody else know anything about things like this? damn, i'm sick of crying a lot for no reason and running all over the place, on top of the flushness, i feel like a zombie on crack or something :lol:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,534
    • Most Online (within 30 mins)
      7,748

    RUKen
    Newest Member
    RUKen
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.