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rmmadden

Cd & Exercise

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Kaiti I think your are probably right...a combination of not getting enough carbs & protein can sap your energy. I thing I have taken in the past is Endurox...although now, I am waiting for the company to contact me regarding gluten-free status of the product. It combines carbs and protein in a 4:1 ratio for rapid rehydration and rejuventation. There is a gluten-free product called Carb=BOOM I just ordered that others who exercise frequently may want to try.

I think priming your body is vital to being able to perform and sometimes supplementation is necessary for those of us on the go and don't have time to eat 10 small meals a day :D

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Interestingly enough, during a "gluten episode", my stomach tends to feel better when I'm running than when I'm just sitting around (perhaps because blood is directed to the leg muscles instead of the stomach??) - Anyone else find this to be the case? Afterwards, however, it can be just as bad as before running (or sometimes worse).

Yes, I find this to be absolutely the case. And I thought the same before, it is, because the blood is NOT in the stomach or guts, but somewhere else. And before my diagnosis, I tried to work out as much as I could, because when I was working out I almost never had any pain. But afterwards then, I always had a lot of pain (or sometimes even worse than before as well). Now I'm all better since going glutenfree. But sometimes (very rare though) I still have a little stinging in my guts where the pain was before. Oh well, i think, I'm just adjusting.

Hugs, Stef


Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

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Does anyone who races or particpates with a group wear Celiac related clothing or work to bring awareness about celiac disease? I wear a Gluten Solutions jersey, but that's it (oh and I talk about it), anyone else have "athlete tested" ways of promoting awareness?

Yes, I'm planing a Sweater and/or T-shirt for our travel team. That will have the team-name on the back and on the front something like: "sponsored by Stef G...glutenfree". I don't know, still working on it. I wanted to put it in a rhyme though. But at the moment i'm really busy with finishing all our team suits first. I will give you guys the Pic-Url, when the suits and/or the celiac awareness clothes are done. It will be quite nice, I'm sure :lol: .

Hugs, Stef


Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

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I had almost no energy before I went gluten-free. Now I can walk for 1 or 2 hours a day and ride a bike also. Before going gluten-free I could barely do any of these things. When i don't get to exercise I have less energy the next day.

Ianm


If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.

Nobody cares about losers and quitters never win. If you fail with the cowards then what's the message you send?

Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.

Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.

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I'm finding it a real challenge to do any excercise at all. I get really short of breath, and my balance isn't good at the best of times, but if I'm tired :rolleyes: ...when aren't I tired? ...I'm worse.

My heart races all the time too. I have a faster than normal heartrate. I can't remember exactly what the rate is, but I'm over 60 beats per minute sitting down.

I get a weird feeling just above my heart quite often. It's hard to descibe. Sorta like my heart is weary. Does that make sense?

Sorry for taking over this thread at this point. I'm a bit worried about myself. My doctor isn't giving me a lot of answers. I think he thinks I'm a bit of a hypercondriac (sp??) . :(


SUNSHINE COAST, QUEENSLAND, AUSTRALIA

Maggie

Working towards wellness.

gluten-free (or trying to be) since December 1st 2004

positive blood test - Oct. 2004

positive biopsy -Nov. 2004

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i exercise at least six times a week, (training for a half marathon) i love running and i do totally fine, you just have to make sure you're getting enough carbs and protien, my doctor put me on a protien supplement. and it helps


diagnosed w/ ibs '02

tested positive naet '02

positive dietary changes

tested positive enterolab

allergies to:

almonds

pineapple :(

dairy

sugar cane (WHO in the world has ever heard of that??!!!!)

corn

gluten-free since 06/2003

<oooo>

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I'm finding it a real challenge to do any excercise at all. I get really short of breath, and  my balance isn't good at the best of times, but if I'm tired  :rolleyes: ...when aren't I tired? ...I'm worse.

My heart races all the time too. I have a faster than normal heartrate. I can't remember exactly what the rate is, but I'm over 60 beats per minute sitting down.

I get a weird feeling just above my heart quite often. It's hard to descibe. Sorta like my heart is weary. Does that make sense?

Sorry for taking over this thread at this point. I'm a bit worried about myself. My doctor isn't giving me a lot of answers. I think he thinks I'm a bit of a hypercondriac (sp??) .  :(

Hey Maggie, I know the being short of breath and balance problem real good. I had that in my "end-stadium" so to speak, before I got my diagnosis. Since going glutenfree however it got better and better everyday. But when i'm sitting down, I have something around 60, too. Sometimes more and sometimes (very seldom though) less. And I still do now after being glutenfree. And with ingesting gluten I do have heart problems, too. But a rate around 60 while sitting is fine. And I have that weird heart feeling, too, sometimes. It's really weird, I can't describe it either, but I guess I know what you're talking about.

Hugs, Stef


Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

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Stef, thanks for that. I feel so useless at times. I've only been gluten-free since December 1st 2004, so I guess it's still very early days, and as you said, it improves.

It's good to know people know what it feels like.

Thanks for the encouragement. :)


SUNSHINE COAST, QUEENSLAND, AUSTRALIA

Maggie

Working towards wellness.

gluten-free (or trying to be) since December 1st 2004

positive blood test - Oct. 2004

positive biopsy -Nov. 2004

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Hello Maggie,

if you started in December with your glutenfree diet and your like I was, then around now it should be much better. It took me like three month, too. I started with the glutenfree diet end of July and around September/October I already felt much better and in December I haven't had any heart problems at all any more.

Hugs, Stef


Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

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By the end of the year you should be feeling better than you ever have before. The first three months you won't feel that much better because you body is trying to heal and clean the poisons out. In another three months you should really start feeling different. Patience is required but it will be worth the wait.

Ianm


If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.

Nobody cares about losers and quitters never win. If you fail with the cowards then what's the message you send?

Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.

Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.

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Yeah, Ianm is right. You "poisoned" your body all these years, you can't expect that it's better in two weeks.

Hugs, Stef


Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

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Boy, I'm tired out just READING about all this exercise!!! :lol:

If you count running after four kids, including four year old twin boys exercise, then yep, I exercise 24/7!!!!!! :D

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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I'll hold onto those thoughts, Steph and ianm. This past few days especially, I feel really wrung out. So I'll try and look to the future and see that light at the end of the tunnel.

:huh::)


SUNSHINE COAST, QUEENSLAND, AUSTRALIA

Maggie

Working towards wellness.

gluten-free (or trying to be) since December 1st 2004

positive blood test - Oct. 2004

positive biopsy -Nov. 2004

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If you have not been active in a while or tend to get out of breath, you might want to try stretching exercises such as Pilates. We also have a therapy tub (a hot tub if you don't have a doctor's note for it). We had fibromyalgia so badly that initially exercising was very difficult. The hot tub really helped and now we have begun the initial Pilates program. There are several out there that are similar. They can be order off the TV, internet, or at HSN.


Donna

South Georgia

9 yrs gluten-free

...also DH, fibromyalgia, neuropathy, osteopenia, hypothyroid...

After almost 10 years, I am doing soooo much better!

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Yes, it can be tough, if you didn't do much for a while. Even if you actually DID do something for a while it can be tough. I'm the best example. And the last couple of days I had my celiac student with fibro also standing in the gym and being real tired because all of that. A couple of weeks since diagnosis she was good now. And thursday she came to the lessons and complained about being extreme fatigue and short of breath and condition. I told here it sounded to me like she ingested gluten accidentaly. And then she said, yeah, she remembered questioning some food the day before. And at the weekend it just got worse. And yesterday she stood in the gym and couldn't do some kicks with her right leg anymore, because she "overdid" a muscle. So she has muscle fatigue, too. Just like me. That's how it can go, even if you work out like a nutball. So take it easy at the beginning. ;)


Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

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Maggie,

I could have written your post ... your symptoms sound so similar to mine. Low energy, rapid heart rate, and that funny feeling (almost like an awareness of it beating in a empty drum?) I have never been able to get energy from exercising, it usually makes me feel sick. I am taking the words of advice from the experienced celiac disease folks "that it will get better".

I was diag. Nov 2004, and sort of watched what I ate until a month ago. So, I am really only a month gluten-free and waiting for the energy .... I am going out today to look into supplements to take to help as well.

The rapid heart rate I have is a result from taking beta-blockers for migraines for 25 years and now my normal/resting heart rate is around 95. I now take the same beta-blockers to keep the rate below 100! If I had know migraines could be a symptom for celiac disease I would have checked it out sooner. :angry:

Blessings to you,

Laura

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Laura

I had high pulse and low blood pressure when standing and my heart felt like it was racing and I would get so tired. They found out I have Graves Disease which is Hyperthyroid. You may want to have your thyroid checked it runs with celiac alot. My doctor told me there are rarely any celiacs with just celiac.


Kaiti

Positive bloodwork

Gluten-free since January 2004

Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

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;):):P How many of you guys and gals jog? I am thinking of trying to start it again

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There is no way in the world that I could jog at this time. OHHH even thnking about it makes me feel ill. (I am going to take Kati's advice and have the doctor check thyroid issues.)

There is a cool web site about running and it has an agenda "From couch potato to 5 K in -------- I forgot how long" I tried it when I wasn't symptomatic and did ok.

I just do not do well with exercise. Also, forgot where it is, but I remember I found it in a search using couch potato and 5K. :(

Good luck, my hubby runs @5 miles a day and he loves it. Get good shoes and a buddy to run with. B)

Blessings

Laura

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I jog for about a mile mostly. When I don't have my daily excerise I get cranky :lol:


Kaiti

Positive bloodwork

Gluten-free since January 2004

Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

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Boy can I relate. In fact I find these posts so comforting to know I was not alone. I hadn't read much when I first looked into celiac disease about being short of breath and was panicked something else was wrong with me!

In the beginnings of my gluten-intolerant symptoms, I was so fatigued and short of breath walking up a short flight of stairs it was insane. My fiance was terribly worried, I couldn't make it through half a shopping trip at Sams Club without feeling completely wiped out. He'd take one look at me, recognize that dazed look on my face and say "We need to go don't we?" Anyhow, I am happy to report being gluten-free has resolved that. Not right away, bt with time it has. In fact I have a lot of energy back and am trying to exercise regularly. Even running. (Its just a matter of getting back in the habit, not because I can't.) I do struggle with the normal getting back into shape woes and building my lung capacity.

So take great comfort knowing you're not alone, and that it does improve. But as a safety precaution I'd have those other lovely medical issues looked into such as you stated your thyroid etc. Better safe than sorry. Because there are other health issues that cause these symptoms. Fortunately I've had everything tested and ruled out int he process of trying to find a cause of digestive issues. Good luck on resolving your issues and hopefully you'll feel like your old self soon!


Positive Dietary Challenge, firmly believing gluten-free is the way to be!

gluten-free since Nov. 18, 2004.

Always learning along with the rest of everyone else... a never ending process.

Dana :)

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Hi there!

I'm a marathon runner & was diagnosed in August, 2004. My main problem before going gluten-free was anemia - got so bad that my skin tone changed (i.e., no "rosy cheeks") not to mention that I often had to walk up hills. After going gluten-free & taking iron pills, I ran my personal best marathon in October (yahoo!).

Although it's more difficult to "refuel" nowadays - at races, for example, the organizers often provide bagels for breakfast & sponsor a pre-race pasta dinner, etc. - if you're careful, there's lots of runner-friendly stuff you can still eat (e.g., some flavors of Balance bars, dried fruit, GU, trail mix,... are some of my favorites). Of course, as a runner, you have to make sure you eat lots of carbs (i.e., "high energy" food). Just do the pre-race pasta dinner with rice noodles...

happy trails!

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Guest BellyTimber

I walk at least a couple of miles a day, but most people say, too slowly.

I've just joined a gym attached to my work place and I was 'inducted' on two bikes, a walking machine and a cross-trainer. Looks fun, and simple, and not strenuous. Was out of breath trying it.

Not putting enough muscle on when young and malabsorbing is probably something to do with it.

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This is a response to all you who exercise. I have been diagnosed as a celiac for about three years. In the beginning I continued to exercise (Jazzercise), sometimes three or four times a week. Just lately I have found myself sometimes short of breath, so I have tried to cut back. But, I really like exercising, it makes me feel healthy. I enjoy this group so much. It's just great.

Dick's gal

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