Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hahaha! I Just Did It Again!

mysecretcurse

Recommended Posts

mysecretcurse Contributor
mysecretcurse
Posted

It's almost funny.

I can't believe myself.

I went and did all my shopping at my favorite organic vegetarian grocery store. They have a HUGE gluten free selection there, I love it. Its even bigger than whole foods. You can get almost everything gluten free there. Well I got a lot of stuff and picked up these flax/hemp protien and nut bars..that were IN the gluten free section and said "Wheat Free!" on the box.

I'm so stupid. Why wasn't I more careful.

I chow one down then a while later feel sort of sick and actually LOOK at the label.

OATS. #&^#&*#(&*#*(&#* oats!

Oats are not ok for me. I get so sick from them, pretty much just as sick as wheat.

I've heard so many times people saying on this forum that be careful wheat free doesn't mean gluten free, and there I go, NOT checking. Those things were not cheap either.

I'm really annoyed. To me, putting "Wheat free!" (yay) on the box is pointless because most people who need

to be wheat free need to be GLUTEN free. It's like false hope. I mean it's my fault because I didn't check closer, but still..having them there in the gluten free section really makes me mad. Maybe I should mention it to the manager next time I'm there, but I don't want to look stupid lol.

Sorry all my posts are like "I got glutened %#*#$@" lately. It's just hard. I barely am starting to feel sort of better from the last time I got glutened and I go and screw it up and am messed up for another week. I already have cysts popping up on my skin. ARG.

Ok I'll stop complaining now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

((((((((((Hugs)))))))))

Don't beat yourself up over it, your body is going to do that for you.

I hope your reaction isn't too bad and that it passes soon.

ShayFL Enthusiast
ShayFL
Posted

I even read EVERYTHING if it says "gluten free". Ive been burned twice. "Gluten Free" on the front in big letters, but in small print on the back "processed in a facility that also processes wheat".

Hope you feel better soon.

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
I even read EVERYTHING if it says "gluten free". Ive been burned twice. "Gluten Free" on the front in big letters, but in small print on the back "processed in a facility that also processes wheat".

Hope you feel better soon.

Thanks. I usually do too! I think the fact that it was just there in the gluten free section with all the other things (that was the ONE thing I didn't look too closely at, all the others were fine) that threw me.

Hopefully you won't see these posts from me anymore for awhile because I'm going into super careful red alert mode.

Phyllis28 Apprentice
Phyllis28
Posted

I found "Wheat Crackers" in the gluten free section at WholeFoods. The only ingredient was wheat. The box is very similar to the "Rice Crackers" that the same company makes, which are gluten free. The store employees who stock the shelves do not , nor would I expect them to have, very much knowledge about a gluten free diet. I read all labels, even when the product is marked gluten free.

Hope you feel better soon.

babysteps Contributor
babysteps
Posted

Feel free to mention to your store that "wheat free" doesn't mean "gluten free" - they sound like they might listen :)

Yah, I read every label too, ever since I got sick from unsalted butter that had "natural flavors" as an ingredient - who knew butter had 'ingredients' like that?!?

Hope you feel better soon.

Juliebove Rising Star
Juliebove
Posted

I have learned the hard way I have to read every label, every time. I've forgotten a few times and now my daughter reminds me. She has more allergies than I do.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Welda Johnson Newbie
Welda Johnson
Posted

I hope you quickly feel better. I think this has happened to most of us. I sometimes get in a hurry, even after spending years and years checking every label and ingredient, and somehow something will just get past me. It is my reminder to slow down and take better care of myself, so that is a good thing. I wanted to comment on your intolerance of oats, because I have some of the same intolerances as you do. Oprah has just started a 21 day gluten-free diet on her show, but is eating oatmeal. I also cannot handle oatmeal, so maybe that is one of our jobs--to tell people to be careful of eating oats, as well as checking all labels. Best of luck to you on your new pathway! Welda

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
Feel free to mention to your store that "wheat free" doesn't mean "gluten free" - they sound like they might listen :)

Yah, I read every label too, ever since I got sick from unsalted butter that had "natural flavors" as an ingredient - who knew butter had 'ingredients' like that?!?

Hope you feel better soon.

Ha. Funny you say that, I was just thinking earlier how stupid it is that ANY butter would have gluten in it. I use challenge butter now. It's gluten free and pretty good quality.

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
I hope you quickly feel better. I think this has happened to most of us. I sometimes get in a hurry, even after spending years and years checking every label and ingredient, and somehow something will just get past me. It is my reminder to slow down and take better care of myself, so that is a good thing. I wanted to comment on your intolerance of oats, because I have some of the same intolerances as you do. Oprah has just started a 21 day gluten-free diet on her show, but is eating oatmeal. I also cannot handle oatmeal, so maybe that is one of our jobs--to tell people to be careful of eating oats, as well as checking all labels. Best of luck to you on your new pathway! Welda

Oprah is going gluten free???

:D:)

Thats awesome. I really like Oprah. She is sort of ahead of the curve as a human being, I like everything she does and most of what she has to say, especially how she seems to think outside the box in the areas of spirituality and medicine. Cool! I missed this episode, I don't get home from work til 5 now and always miss her show.

And you are right, we do need to spread the word about oats. Whether or not some may be able to "tolerate" them I don't think they are good for any celiacs or even sensitives in the first six months or so at least. If you are going to go gluten free, might as well do it 100% so its not an effort wasted.

Aleshia Contributor
Aleshia
Posted
Sorry all my posts are like "I got glutened %#*#$@" lately. It's just hard. I barely am starting to feel sort of better from the last time I got glutened and I go and screw it up and am messed up for another week. I already have cysts popping up on my skin. ARG.

can you explain the cysts thing? I have lots of cysts on my head... but by cyst do you mean things that go away? or like bumps that stay and get bigger???

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
can you explain the cysts thing? I have lots of cysts on my head... but by cyst do you mean things that go away? or like bumps that stay and get bigger???

By cysts I mean cystic acne.

I have been suffering from horrible acne for years, turns out it was being caused by gluten. I don't even think

its really acne maybe some weird form of DH or another skin thing. They are big, dark red sometimes even purplish red lesions which are very painful and itchy and take forever to go away.

ShayFL Enthusiast
ShayFL
Posted

Would be nice to be like Oprah...decide to go gluten-free and your nutritionist makes a plan and the chefs that travel with you do all the research and prepare all of your meals/snacks/drinks. All you do is consume....dang I want that!!

I have cysts on my head. :(

FoxersArtist Contributor
FoxersArtist
Posted

HaHaHa!

I just did this also. I felt quite cross with the company who made a delicious looking oreo cookie claiming to be "wheat free." I never actually ate one but when I went to get the box out of the cupboard to try one, a little lightbulb went off in my brain saying "wheat free? Now, what exactly does that mean? Shouldn't it say 'gluten free?'" Indeed, it was not gluten free. It had barley in it. Bummer. They are still sitting in my cupboard, making me angry every time I open it. I really need to give them away to someone else...LOL.

-Anna

It's almost funny.

I can't believe myself.

I went and did all my shopping at my favorite organic vegetarian grocery store. They have a HUGE gluten free selection there, I love it. Its even bigger than whole foods. You can get almost everything gluten free there. Well I got a lot of stuff and picked up these flax/hemp protien and nut bars..that were IN the gluten free section and said "Wheat Free!" on the box.

I'm so stupid. Why wasn't I more careful.

I chow one down then a while later feel sort of sick and actually LOOK at the label.

OATS. #&^#&*#(&*#*(&#* oats!

Oats are not ok for me. I get so sick from them, pretty much just as sick as wheat.

I've heard so many times people saying on this forum that be careful wheat free doesn't mean gluten free, and there I go, NOT checking. Those things were not cheap either.

I'm really annoyed. To me, putting "Wheat free!" (yay) on the box is pointless because most people who need

to be wheat free need to be GLUTEN free. It's like false hope. I mean it's my fault because I didn't check closer, but still..having them there in the gluten free section really makes me mad. Maybe I should mention it to the manager next time I'm there, but I don't want to look stupid lol.

Sorry all my posts are like "I got glutened %#*#$@" lately. It's just hard. I barely am starting to feel sort of better from the last time I got glutened and I go and screw it up and am messed up for another week. I already have cysts popping up on my skin. ARG.

Ok I'll stop complaining now.

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
Would be nice to be like Oprah...decide to go gluten-free and your nutritionist makes a plan and the chefs that travel with you do all the research and prepare all of your meals/snacks/drinks. All you do is consume....dang I want that!!

I have cysts on my head. :(

I was thinking that earlier too...and wondering why the hell someone doesn't tell her that oats are not gluten free? You would think all her "people" would be well read on what is and what isn't acceptable in a gluten free diet.

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
HaHaHa!

I just did this also. I felt quite cross with the company who made a delicious looking oreo cookie claiming to be "wheat free." I never actually ate one but when I went to get the box out of the cupboard to try one, a little lightbulb went off in my brain saying "wheat free? Now, what exactly does that mean? Shouldn't it say 'gluten free?'" Indeed, it was not gluten free. It had barley in it. Bummer. They are still sitting in my cupboard, making me angry every time I open it. I really need to give them away to someone else...LOL.

-Anna

LOL! You have no idea how much stuff I keep giving my mom. I go over for a visit with a big bag of this or that and she is just like "again?" haha. Damn its hard.

myst Newbie
myst
Posted
I was thinking that earlier too...and wondering why the hell someone doesn't tell her that oats are not gluten free? You would think all her "people" would be well read on what is and what isn't acceptable in a gluten free diet.

If she's eating the recipes the chef is preparing, she's not even close to gluten free.

Open Original Shared Link

Oprah has decided to give it a try! The plan is to eliminate caffeine, sugar, alcohol, gluten and animal products from your diet for up to 21 days.

The tempeh scallopini and the tempeh creole both have spelt flour. :o I have to wonder about some of the other recipes as well. <_<

myst

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
If she's eating the recipes the chef is preparing, she's not even close to gluten free.

Open Original Shared Link

The tempeh scallopini and the tempeh creole both have spelt flour. :o I have to wonder about some of the other recipes as well. <_<

myst

*sigh* We should all write her.

tom Contributor
tom
Posted
. .

Oprah has just started a 21 day gluten-free diet on her show, but is eating oatmeal.

I didn't see the show, but her Recipes page has the poll question "Do you think you could give up animal products, caffeine, alcohol, bread and sugar for 21 days?"

It doesn't appear to me she's trying to be gluten-free at all.

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
I didn't see the show, but her Recipes page has the poll question "Do you think you could give up animal products, caffeine, alcohol, bread and sugar for 21 days?"

It doesn't appear to me she's trying to be gluten-free at all.

Maybe she is doing that no flour no sugar type diet, meaning actual flour stuff like noodles, but not caring about the gluten itself in other things.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. tiffanygosci
      - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After...
    2. knitty kitty
      - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

      On the AIP diet, all processed foods are eliminated. This includes gluten-free bread. You'll be eating meats and vegetables, mostly. Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well. Veggies should be fresh, or frozen without other ingredients like sauces or seasonings. Nightshade vegetables...
    3. Yaya
      - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

      Thank you for responding and for prayers. So sorry for your struggles, I will keep you in mine. You are so young to have so many struggles, mine are mild by comparison. I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of. Following surgery: multiple symptoms/oddities appeared including...
    4. larc
      - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back. My cardiologist offered me a collection of pharmaceuticals at the time...
    5. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

      So I should not eat my gluten free bread? I will try the vitamins. Thank you all so very much for your ideas and understanding. I'm feeling better today and have gathered back my composure! Thank you kitty kitty I am going to look this diet up right away. And read the paleo diet and really see if I can make this a better situation then it currently...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,919
    • Most Online (within 30 mins)
      7,748
    SB Willow
    Newest Member
    SB Willow
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Does anyone here also have Afib

      By Yaya · Posted

      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      Does anyone here also have Afib

      By larc · Posted

      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.