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mysecretcurse

Hahaha! I Just Did It Again!

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It's almost funny.

I can't believe myself.

I went and did all my shopping at my favorite organic vegetarian grocery store. They have a HUGE gluten free selection there, I love it. Its even bigger than whole foods. You can get almost everything gluten free there. Well I got a lot of stuff and picked up these flax/hemp protien and nut bars..that were IN the gluten free section and said "Wheat Free!" on the box.

I'm so stupid. Why wasn't I more careful.

I chow one down then a while later feel sort of sick and actually LOOK at the label.

OATS. #&^#&*#(&*#*(&#* oats!

Oats are not ok for me. I get so sick from them, pretty much just as sick as wheat.

I've heard so many times people saying on this forum that be careful wheat free doesn't mean gluten free, and there I go, NOT checking. Those things were not cheap either.

I'm really annoyed. To me, putting "Wheat free!" (yay) on the box is pointless because most people who need

to be wheat free need to be GLUTEN free. It's like false hope. I mean it's my fault because I didn't check closer, but still..having them there in the gluten free section really makes me mad. Maybe I should mention it to the manager next time I'm there, but I don't want to look stupid lol.

Sorry all my posts are like "I got glutened %#*#$@" lately. It's just hard. I barely am starting to feel sort of better from the last time I got glutened and I go and screw it up and am messed up for another week. I already have cysts popping up on my skin. ARG.

Ok I'll stop complaining now.

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((((((((((Hugs)))))))))

Don't beat yourself up over it, your body is going to do that for you.

I hope your reaction isn't too bad and that it passes soon.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I even read EVERYTHING if it says "gluten free". Ive been burned twice. "Gluten Free" on the front in big letters, but in small print on the back "processed in a facility that also processes wheat".

Hope you feel better soon.


GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

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I even read EVERYTHING if it says "gluten free". Ive been burned twice. "Gluten Free" on the front in big letters, but in small print on the back "processed in a facility that also processes wheat".

Hope you feel better soon.

Thanks. I usually do too! I think the fact that it was just there in the gluten free section with all the other things (that was the ONE thing I didn't look too closely at, all the others were fine) that threw me.

Hopefully you won't see these posts from me anymore for awhile because I'm going into super careful red alert mode.

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I found "Wheat Crackers" in the gluten free section at WholeFoods. The only ingredient was wheat. The box is very similar to the "Rice Crackers" that the same company makes, which are gluten free. The store employees who stock the shelves do not , nor would I expect them to have, very much knowledge about a gluten free diet. I read all labels, even when the product is marked gluten free.

Hope you feel better soon.


Phyllis

Gluten Free - 30 years

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Feel free to mention to your store that "wheat free" doesn't mean "gluten free" - they sound like they might listen :)

Yah, I read every label too, ever since I got sick from unsalted butter that had "natural flavors" as an ingredient - who knew butter had 'ingredients' like that?!?

Hope you feel better soon.


gluten-free (except unintentionally) from 7 Dec 2007

3 gluten-free cousins and counting (1 gold standard, 1 pos blood/no endo, 1 self/dietary diagnosed)

suspect mother was celiac (also, cousin suspects my mother's twin is celiac)

Feb 08 testing 'normal range' for gluten antibodies, IBD and food allergies

Staying off gluten - dietary reaction is compelling for me!

"Hi, I'm the gluten-free diner at your table."

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I have learned the hard way I have to read every label, every time. I've forgotten a few times and now my daughter reminds me. She has more allergies than I do.

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I hope you quickly feel better. I think this has happened to most of us. I sometimes get in a hurry, even after spending years and years checking every label and ingredient, and somehow something will just get past me. It is my reminder to slow down and take better care of myself, so that is a good thing. I wanted to comment on your intolerance of oats, because I have some of the same intolerances as you do. Oprah has just started a 21 day gluten-free diet on her show, but is eating oatmeal. I also cannot handle oatmeal, so maybe that is one of our jobs--to tell people to be careful of eating oats, as well as checking all labels. Best of luck to you on your new pathway! Welda

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Feel free to mention to your store that "wheat free" doesn't mean "gluten free" - they sound like they might listen :)

Yah, I read every label too, ever since I got sick from unsalted butter that had "natural flavors" as an ingredient - who knew butter had 'ingredients' like that?!?

Hope you feel better soon.

Ha. Funny you say that, I was just thinking earlier how stupid it is that ANY butter would have gluten in it. I use challenge butter now. It's gluten free and pretty good quality.

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I hope you quickly feel better. I think this has happened to most of us. I sometimes get in a hurry, even after spending years and years checking every label and ingredient, and somehow something will just get past me. It is my reminder to slow down and take better care of myself, so that is a good thing. I wanted to comment on your intolerance of oats, because I have some of the same intolerances as you do. Oprah has just started a 21 day gluten-free diet on her show, but is eating oatmeal. I also cannot handle oatmeal, so maybe that is one of our jobs--to tell people to be careful of eating oats, as well as checking all labels. Best of luck to you on your new pathway! Welda

Oprah is going gluten free???

:D:)

Thats awesome. I really like Oprah. She is sort of ahead of the curve as a human being, I like everything she does and most of what she has to say, especially how she seems to think outside the box in the areas of spirituality and medicine. Cool! I missed this episode, I don't get home from work til 5 now and always miss her show.

And you are right, we do need to spread the word about oats. Whether or not some may be able to "tolerate" them I don't think they are good for any celiacs or even sensitives in the first six months or so at least. If you are going to go gluten free, might as well do it 100% so its not an effort wasted.

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Sorry all my posts are like "I got glutened %#*#$@" lately. It's just hard. I barely am starting to feel sort of better from the last time I got glutened and I go and screw it up and am messed up for another week. I already have cysts popping up on my skin. ARG.

can you explain the cysts thing? I have lots of cysts on my head... but by cyst do you mean things that go away? or like bumps that stay and get bigger???

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can you explain the cysts thing? I have lots of cysts on my head... but by cyst do you mean things that go away? or like bumps that stay and get bigger???

By cysts I mean cystic acne.

I have been suffering from horrible acne for years, turns out it was being caused by gluten. I don't even think

its really acne maybe some weird form of DH or another skin thing. They are big, dark red sometimes even purplish red lesions which are very painful and itchy and take forever to go away.

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Would be nice to be like Oprah...decide to go gluten-free and your nutritionist makes a plan and the chefs that travel with you do all the research and prepare all of your meals/snacks/drinks. All you do is consume....dang I want that!!

I have cysts on my head. :(


GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

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HaHaHa!

I just did this also. I felt quite cross with the company who made a delicious looking oreo cookie claiming to be "wheat free." I never actually ate one but when I went to get the box out of the cupboard to try one, a little lightbulb went off in my brain saying "wheat free? Now, what exactly does that mean? Shouldn't it say 'gluten free?'" Indeed, it was not gluten free. It had barley in it. Bummer. They are still sitting in my cupboard, making me angry every time I open it. I really need to give them away to someone else...LOL.

-Anna

It's almost funny.

I can't believe myself.

I went and did all my shopping at my favorite organic vegetarian grocery store. They have a HUGE gluten free selection there, I love it. Its even bigger than whole foods. You can get almost everything gluten free there. Well I got a lot of stuff and picked up these flax/hemp protien and nut bars..that were IN the gluten free section and said "Wheat Free!" on the box.

I'm so stupid. Why wasn't I more careful.

I chow one down then a while later feel sort of sick and actually LOOK at the label.

OATS. #&^#&*#(&*#*(&#* oats!

Oats are not ok for me. I get so sick from them, pretty much just as sick as wheat.

I've heard so many times people saying on this forum that be careful wheat free doesn't mean gluten free, and there I go, NOT checking. Those things were not cheap either.

I'm really annoyed. To me, putting "Wheat free!" (yay) on the box is pointless because most people who need

to be wheat free need to be GLUTEN free. It's like false hope. I mean it's my fault because I didn't check closer, but still..having them there in the gluten free section really makes me mad. Maybe I should mention it to the manager next time I'm there, but I don't want to look stupid lol.

Sorry all my posts are like "I got glutened %#*#$@" lately. It's just hard. I barely am starting to feel sort of better from the last time I got glutened and I go and screw it up and am messed up for another week. I already have cysts popping up on my skin. ARG.

Ok I'll stop complaining now.


Crohn's like GI symptoms, Multiple Sclerosis like Gluten Ataxia, Arthritis like joint pain, Myositis like muscle weakness, DTV like swelling, Chronic Fatigue, weight loss, hair loss, vision changes, anxiety & depression. I thought I was either dying or I had completely lost my mind!

Gluten Free since May 17, 2008

Started feeling like a new person after only 3 days gluten free and it is 100% worth LIFE!

-Anna

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Would be nice to be like Oprah...decide to go gluten-free and your nutritionist makes a plan and the chefs that travel with you do all the research and prepare all of your meals/snacks/drinks. All you do is consume....dang I want that!!

I have cysts on my head. :(

I was thinking that earlier too...and wondering why the hell someone doesn't tell her that oats are not gluten free? You would think all her "people" would be well read on what is and what isn't acceptable in a gluten free diet.

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HaHaHa!

I just did this also. I felt quite cross with the company who made a delicious looking oreo cookie claiming to be "wheat free." I never actually ate one but when I went to get the box out of the cupboard to try one, a little lightbulb went off in my brain saying "wheat free? Now, what exactly does that mean? Shouldn't it say 'gluten free?'" Indeed, it was not gluten free. It had barley in it. Bummer. They are still sitting in my cupboard, making me angry every time I open it. I really need to give them away to someone else...LOL.

-Anna

LOL! You have no idea how much stuff I keep giving my mom. I go over for a visit with a big bag of this or that and she is just like "again?" haha. Damn its hard.

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I was thinking that earlier too...and wondering why the hell someone doesn't tell her that oats are not gluten free? You would think all her "people" would be well read on what is and what isn't acceptable in a gluten free diet.

If she's eating the recipes the chef is preparing, she's not even close to gluten free.

http://www2.oprah.com/foodhome/food/cleans...ipes_main.jhtml

Oprah has decided to give it a try! The plan is to eliminate caffeine, sugar, alcohol, gluten and animal products from your diet for up to 21 days.

The tempeh scallopini and the tempeh creole both have spelt flour. :o I have to wonder about some of the other recipes as well. <_<

myst


"When you run out of red, use blue!" ~ Pablo Picasso

Self-diagnosed gluten intolerant

gluten-free since May '05

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. .

Oprah has just started a 21 day gluten-free diet on her show, but is eating oatmeal.

I didn't see the show, but her Recipes page has the poll question "Do you think you could give up animal products, caffeine, alcohol, bread and sugar for 21 days?"

It doesn't appear to me she's trying to be gluten-free at all.


>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03

Dairy-free since 10-04

Soy-free since 5-07

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I didn't see the show, but her Recipes page has the poll question "Do you think you could give up animal products, caffeine, alcohol, bread and sugar for 21 days?"

It doesn't appear to me she's trying to be gluten-free at all.

Maybe she is doing that no flour no sugar type diet, meaning actual flour stuff like noodles, but not caring about the gluten itself in other things.

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