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Fiding A New Doc Or Educating The Old?

dollamasgetceliac?

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dollamasgetceliac? Explorer
dollamasgetceliac?
Posted

I am having one of those days, the dilelma day? should I jump ship and find a new doc( taking the risk that He or She knows less about Celiac or stick with the old guy who likes to diagnose each patient with this same sentense" You have IBS. What I am about to tell you is that you are not going to die from this you need to get your mind body to function , you need to go to a class and learn about reducing stress" and then he goes on to tell me that he repeats this many many times a day . I tell him that I think the pain is related to the food I eat, and he says no, after my class you can eat anything.

Then I went on to the psychologist so she could tell me that every patient who comes from that office goes to her.

So she is wise enough to tell me that the pain is not an imaginary pain but it is real.

The thing that upsets me is that after my visit with this particular G.I Doc , he did agree with me to run a tTG test that was positive. He wanted a biopsy and I said " no you took one 12 months ago which was normal?" I am not getting a straight forward answer. He is the second opinion Doctor , my first G.I doctor was dazzeled by my symptoms and never recomeded a Celiac test , even though the the writing is on the wall.

So can someone tell me exactly which genetic tests must be done to cover all what we know here and in Europe? So that I can come with a list and a quote that Celiac is painful. Perhaps an article by a famous doctor ?

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tom Contributor
tom
Posted
I am having one of those days, the dilelma day? should I jump ship and find a new doc( taking the risk that He or She knows less about Celiac .. . .)

Hard to tell if it's POSSible for a doc to know less!!

(I certainly hope not)

I don't have the links but I did have the gut pain.

Maybe the celiac part of Columbia.edu would be reputable enough to satisfy him.

Univ of Chicago's site also has much info on celiac.

purple Community Regular
purple
Posted

I heard about a man in our tiny town that thought he had IBS. Come to find out he is allergic to gluten. I took my daughter to an osteopath and he diagnosed her on the first visit allergic to gluten. Find a doc that knows all about gluten.

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      ttg iga high (646 mg/dl) other results are normal

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    • knitty kitty
      Is this celiac?

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      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
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      Fiber Supplement

      By trents · Posted

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