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Fiding A New Doc Or Educating The Old?

dollamasgetceliac?

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dollamasgetceliac? Explorer
dollamasgetceliac?
Posted

I am having one of those days, the dilelma day? should I jump ship and find a new doc( taking the risk that He or She knows less about Celiac or stick with the old guy who likes to diagnose each patient with this same sentense" You have IBS. What I am about to tell you is that you are not going to die from this you need to get your mind body to function , you need to go to a class and learn about reducing stress" and then he goes on to tell me that he repeats this many many times a day . I tell him that I think the pain is related to the food I eat, and he says no, after my class you can eat anything.

Then I went on to the psychologist so she could tell me that every patient who comes from that office goes to her.

So she is wise enough to tell me that the pain is not an imaginary pain but it is real.

The thing that upsets me is that after my visit with this particular G.I Doc , he did agree with me to run a tTG test that was positive. He wanted a biopsy and I said " no you took one 12 months ago which was normal?" I am not getting a straight forward answer. He is the second opinion Doctor , my first G.I doctor was dazzeled by my symptoms and never recomeded a Celiac test , even though the the writing is on the wall.

So can someone tell me exactly which genetic tests must be done to cover all what we know here and in Europe? So that I can come with a list and a quote that Celiac is painful. Perhaps an article by a famous doctor ?

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tom Contributor
tom
Posted
I am having one of those days, the dilelma day? should I jump ship and find a new doc( taking the risk that He or She knows less about Celiac .. . .)

Hard to tell if it's POSSible for a doc to know less!!

(I certainly hope not)

I don't have the links but I did have the gut pain.

Maybe the celiac part of Columbia.edu would be reputable enough to satisfy him.

Univ of Chicago's site also has much info on celiac.

purple Community Regular
purple
Posted

I heard about a man in our tiny town that thought he had IBS. Come to find out he is allergic to gluten. I took my daughter to an osteopath and he diagnosed her on the first visit allergic to gluten. Find a doc that knows all about gluten.

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    • Scott Adams
      Test interpretations

      By Scott Adams · Posted

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      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      Test interpretations

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      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
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