Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Before I Heal


Froger850

Recommended Posts

Froger850 Rookie

I'm 26 and have just been diagnosed with Celiacs Disease just short of having my gall bladder removed. I am completely freaked out and shocked by all the foods that I can't have. My question is how long does it take for the small intestine to heal? And say I eat something on accident, hopefully not by choice, that has gluten in it, will it put me at square one with recovery or possible pass through the system with minimal effect?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator
I'm 26 and have just been diagnosed with Celiacs Disease just short of having my gall bladder removed. I am completely freaked out and shocked by all the foods that I can't have. My question is how long does it take for the small intestine to heal? And say I eat something on accident, hopefully not by choice, that has gluten in it, will it put me at square one with recovery or possible pass through the system with minimal effect?

Hi, and welcome to this board. Believe me, it will get easier after a while and second nature.

No, an accidental glutening, while setting you back somewhat, will NOT put you back to square one. Unfortunately, especially at the beginning while you learn, accidental glutenings are pretty much unavoidable. Try not to freak out when it happens but consider it part of the learning curve.

It is actually easier to completely change your diet to all natural foods at the beginning, like meat, fish, eggs, vegetables and fruit rather than trying to substitute things you like with gluten-free alternatives.

First of all, you will recover faster if you don't substitute junk for junk at the beginning. Officially gluten-free foods are hard on the already damaged digestive system.

And secondly, it will be easier to eat naturally gluten-free foods while you learn what is safe when it comes to everything else. If you have prepared it from scratch, then a glutening is a lot less likely.

It is advisable that you eliminate all dairy at first, as the tips of your villi are supposed to produce the enzyme lactase that enables some people to digest dairy (many people can't tolerate dairy, period). Since the tips of your villi are damaged or gone, it is best to avoid dairy at least for a while to heal faster.

If you decide to eat gluten-free bread, you absolutely need a new toaster. It is not possible to clean your old one to be safe. The same goes for plastic colanders that have been used for wheat pasta and wooden cutting boards and wooden cooking spoons.

I am sure you will figure it all out soon enough. No need to panic, we are all here to help.

Eric-C Enthusiast

A lot of it too deppends on your reaction too.

Some people on here can't walk into a bakery, some people can ingest small amounts by accident and never notice.

I've become more intolerant since I gave it up...before I could have small amounts regularly and it wasn't a big deal, now that I've totally given it up the most I can do is a little soy with sushi.

Here is my feeling on the issue. Flour is not good for you. Even from a non-celiac standpoint it wreaks havoc with your pancreas, blood sugar levels, etc. I believe its one of the leading causes of diabetes in this country. I should be more specific, the flours we use today which are more refined than in past decades.

So your eliminating a huge source of future medical concerns from your diet. If your worried about having to give up bread and other things then I always say you must not have gotten sick enough :) You get this to bother you enough and you'll gladly give things up.

There are tons of foods out there most American's have never tried. You'll find as you eliminate flour and flour based foods your tastes do change. Just like if you give up sugar for a month and go back and drink a Coke it tastes like your drinking pure sugar.

The need for bread is more mental to me. Gluten free bread tastes horrible IMO...we tried it, we tried alternative flours, gluten free pizza, etc...there was just no substitute for the real thing.

It is what it is....look into Indian, Vietnamese, Japanese, etc...you can get Tamari instead of soy sauce and cook Asian. Get a BBQ too if you don't have one.

My wife has really gotten into the BBQ this year. This week alone we had Jerk chicken w/ brocolli, zuccini, and squash on skewers with corn on the cob. She made an excellent Shrimp skewers basted in Rum, Agave, and orange zest that was phenomenal. Last night we did pork chops seasoned in yogurt and an Indian curry mix.

There is a lot of food out there....not having bread is not the end of the world. Giving up pasta was a bit of a downer but rice pasta is pretty good.

Mexican food is great too with corn based tortilla's.

My wife makes an incredible chocolate flourless cake....if you have a Bonefish Grille in your area try the flourless cake dessert they have. Its chocolate cake with rasberry sauce, ice cream, and chocolate sauce.

Get Arrowroot to replace flour as a thickener and you'd never know the difference. We go for Italian and I have them bread my veal in corn starch instead of flour.

As I said, it is what it is....you've been given a chance to eat much healthier than you, or I, or most of us on here have eaten in the past.

I'm down 20lbs and feel a million times better. We went from a menu of maybe 5-6 things we made at home to a menu of over 50 items.

I personally also think Celiac's is just natures way of correcting the extreme processing of the foods we've been eating. We don't eliminate them ourselves so we're being forced to.

I suspect Celiac's will become more mainstream every day. I have it, a woman I work with her friend has it, another guy I work with his neighbor at his cabin up north has it. We went on a cruise and the people we sat with each knew someone with it, mostly friends of their children in high school.

1 in a 100 I think is the number they quote but I believe its much higher and will continue to get higher.

If your fortunate enough for the condition not to be life threatening then IMO just improved your quality of life.

AliB Enthusiast

Hopefully, going gluten-free will help you not to have to have your gall-bladder out at all. It is a necessary part of your body and not having it will make life more difficult. With gluten out of your life your body will have a chance to sort itself out.

I took some milk thistle capsules for a few weeks to support my liver and when I had an ultrasound I didn't have any gallstones at all - not one! I was amazed. Just after I went gluten-free my liver had a clear-out too. Left it a bit sore for a few days after, but better out than in, as they say!

My poor old liver was very sluggish for a long time but it is improving all the time. The healthier it gets, the healthier I get! My immune system has started to work again.

This is not a life sentence. It is about making your body well. You have a chance to halt the damage and start treating your body properly. The body is only as good as what goes in our mouth. If we eat garbage then it is not surprising if our body eventually starts to collapse.

Be kind to yourself. Eat well and simple. Keep well away from too much in the way of carbs. Gluten intolerance is a huge problem. Most people out there carry on eating all those gluten-laden 'goodies', completely oblivious to the fact that it is killing them. It is responsible for a vast amount of sickness and disease.

I am just so grateful that I have been given the opportunity to get better. Don't focus on what you are missing. It may taste nice, but it is garbage. Focus on what you are gaining. No, it's not always easy - good gluten-free foods can be somewhat difficult to get hold of (unless you can cook them yourself), but as more people 'come on board' - and they will - things will get progressively easier.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,033
    • Most Online (within 30 mins)
      7,748

    DeeDeeS
    Newest Member
    DeeDeeS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.