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joopie

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joopie Newbie

hello,

first let me say i have visited this site before and it seems like a warm croud- so, thanks in advance for sharing your thoughts!

i have had many unexplained health issues for many years- recently switched to a integrated medicine w/ a naturopathic doc- just had some blood work done- doc says celiac disease... i am hoping this might be the answer to my problems - i have adjusted my diet to be gluten free-below are results:

Endomysial Anibody, IgA in a reference range from 40 - 350 result = 330 - negative?

Tissue transglutaminase, IgA w/ negative range <20 result = 37 positive.

Gliadin IgG w/ negative range <20 result = 2 negative

GliadinIgA w/ negative range <20 result = 4 negative


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ravenwoodglass Mentor

Hi and welcome. Those are positive results as far as I can see. You have come to a good place for info and support and do feel free to ask any questions you need to. Do feel free to just vent also, we have all been through it and do understand the anger and frustration. There is a lot to be learned at first but you will get the hang of it. I hope you are feeling better soon.

ksymonds84 Enthusiast

Tissue transglutaminase, IgA w/ negative range <20 result = 37 positive.

Hello and Welcome to the board! You've found a great place to learn all you can about celiac. The tissue transglutaminase test is a big one for diagnosing and your being positive sounds like the gluten free diet will make a difference.

joopie Newbie

thank you ravenwoodglass and ksymonds84 fro the response!

i am doing as much research on the gluten subject as i can.

i am also sensitive to sugar- my glucose borders on pre-diabetic... i have always been lean in build so i need to be careful not to go catabolic on the new diet.

this change will prove challenging- but, i am fortunate to have a very supportive wife who has already making some incredible gluten free meals- and a beautiful 5 year old son to keep my spirits up.

thanks again- i look forward to feeling better, learning more and helping others if i can,

B) , joopie.

lizard00 Enthusiast

Welcome to the gluten-free life!!! It's really not so bad! In fact, if you feel better, it's GREAT!

Having a supportive spouse (or other family members) is really essential, I think, to being successful with adapting to your new lifestyle. My husband has been great since the beginning, and I don't have an official diagnosis. I hear other people who's families are downplaying the importance of being gluten-free, and it makes a huge difference. My husband took the time to find a gluten-free cookie recipe to surprise me with. It's not so much the cookies (they were yummy!) but the fact that he made the effort to find the recipe and make them that really make me grateful for his support.

Feel free to ask any question, be angry, whatever. This forum is absolutely wonderful and full of people with a wealth of knowledge.

RiceGuy Collaborator
i am also sensitive to sugar- my glucose borders on pre-diabetic... i have always been lean in build so i need to be careful not to go catabolic on the new diet.

Don't be surprised if you find your weight going up a bit. Malabsorption has a tendency to keep a celiac thin (though not for all of us). Also, I wonder if leaky gut issues could be responsible for blood sugar problems, as it seems to me sugars would more easily and quickly get into the bloodstream. Some have reported that their diabetic symptoms vanish once gluten-free for awhile.

joopie Newbie

lizard-

you are so right about a supportive spouse - very important! she has already put together some things from gluten free recipes- i will have to post some pics of the goodies she is already making.

hey riceguy-

i do hope you are right about the removal of gluten and its possible effects.

-thinking positive and sticking to the plan!

B) , Joopie.


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joopie Newbie

celebrating first week gluten free - accomplished!

chocholate/chocolate chip muffins for everyone- compliments of my wonderful wife!

(gluten free of course)

B) , joopie

my pic won't post? :(

004.webp

psawyer Proficient
my pic won't post? :(

004.webp

The %7Boption%7D tag is not enabled on this board. You can create a link on which people can click using [ url ].

As in click here.

Click the BB Code Help button at the bottom right of the window when composing a post for specifics.

Congratulations on your first week! The muffins look lovely.

joopie Newbie

thanks Peter for the info and congrats!

it really is a big change! my wife is helping me huge! sippin' on some wine right now- normally it might be a micro-brewed beer....

B) , J.

Karli Rookie
thanks Peter for the info and congrats!

it really is a big change! my wife is helping me huge! sippin' on some wine right now- normally it might be a micro-brewed beer....

B) , J.

I am a newbie, too. Good to hear the positive response/feed back you are getting from other members... I am getting positive support of my husband, too. He does a lot of the cooking... and now that he understands the cross contamination issue... he has revamped the kitchen cupboards. He still has his store bought bread and crackers ... but for baking we are convertint to glutin free. My sister got her 'test' after I showed positive for Celiac... small bowel involvement and blood work too... So I have given my cake mixes etc. to her... Fortunately, I had discovered on my own that baked goods tended to bother me... Frankly, I have very few symptoms.... so this all came a shock to me....

As I mentioned, my sister got her test right away.... other family members are dragging their feet... any hints on how to urge them to the doctors office.... (brother, sons) my double cousin is having her blood work done this week.... It seems the women are taking this more seriously...

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      I know it's after the holidays, but it would still be fun to do a cookie recipe exchange on this forum.
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      I did talk to the nurse and she asked who told me no red meat.  I explained the person who called with the results of my blood work.  That was last week.  She told me the doctor was on vacation and would be back this week and she would talk to him and have someone call me this week.  I have not received a call yet.  I will call them back Monday as a reminder.
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      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
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      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
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