Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten/wheat Related Intolerances


blondebombshell

Recommended Posts

blondebombshell Collaborator

if someone has an intolerance to wheat, because of an irritable bowel, should they still altogether avoid wheat and gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

I'm not sure I understand your question as you intend. Because IBS is not a cause, but a symptom. Doctors don't know what causes it, though many of us do. Therefore it seems impossible by my current understanding, that IBS would result in an intolerance. However, the intolerance certainly does often result in an irritable bowel.

I hope this helps you, but if not I'm sure others will be able to give you clearer answers.

tom Contributor

I second what RiceGuy said.

Pretty much anything that's called ______ _______ Syndrome, to me, indicates that there's a symptom (or a set of them) that the medical community has no cause to attribute it to.

Before x-rays, maybe some broken bones were called "painful limb syndrome". :P

Rachel--24 Collaborator
if someone has an intolerance to wheat, because of an irritable bowel, should they still altogether avoid wheat and gluten?

Poor digestion, enzyme deficiencies, bacteria, parasites, yeast, leaky gut....and a long list of additional factors can lead to symptoms of "irritable bowel" as well as an intolerance to gluten.

Sometimes gluten is the cause of the irritable bowel....sometimes there is more to it....either way you should avoid it until you can determine *why* you are having these symptoms.

As already stated....IBS does not cause food intolerance....nor does it cause any of the factors I just listed. These are the things which cause the bowel to become irritable in the first place. IBS doesnt cause anything....its a symptom.

blondebombshell Collaborator

everything every mentioned makes perfect sense.

i am just confused why i have these constipation/bloating problems. when i went to a new gastro doc last week he mentioned that there are a lot of people that have problems digesting wheat and he said that he doesn't *suspect* i have celiac. he is sending me for some blood test (IGL or something?)

i would like to know why everytime i eat something i bloat up. i have cut gluten out of my diet since august and i feel like asboulte crap (tired, irritable, constipated, stomach pain, etc) when i eat wheat.

AliB Enthusiast
i would like to know why everytime i eat something i bloat up. i have cut gluten out of my diet since august and i feel like asboulte crap (tired, irritable, constipated, stomach pain, etc) when i eat wheat.

Umm......Wheat contains gluten. If you eat wheat, you are eating gluten. If you eat wheat, barley, rye or oats you are eating gluten! If you eat anything that is derived from wheat, barley, rye or oats, you are eating gluten.

If you want to test the gluten-free diet properly you have to remove ALL traces of gluten from your diet.

I had IBS for years. Going gluten-free and adopting a fairly basic diet with little in the way of carbohydrates has really sorted it out. I have been gluten-free and dairy-free for 4 months and am slowly benefitting from the diet, but it is still early days and I am still tripping up here and there.

As I get to know more and understand more about hidden gluten sources, I should be better able to avoid that. I am just so grateful not to have the constant diarrhea, awful stomach pain, gas and bloating and manic restless legs! Yes the diet is hard work at times, but it is so worth it!

home-based-mom Contributor
i would like to know why everytime i eat something i bloat up. i have cut gluten out of my diet since august and i feel like asboulte crap (tired, irritable, constipated, stomach pain, etc) when i eat wheat.

:huh: Are you still eating wheat? If so, you haven't cut gluten out of your diet! :huh:

EDIT - oops! AliB beat me to the submit button!

It could also be something else causing your problems that you haven't discovered yet. Bananas have always caused me problems. Good thing I never liked them anyway! I also can't eat raw carrots or rice bran. Maybe in the future but not now.

Keep a food diary so maybe you can figure out what to stop eating (besides wheat?) so you feel better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blondebombshell Collaborator
Umm......Wheat contains gluten. If you eat wheat, you are eating gluten. If you eat wheat, barley, rye or oats you are eating gluten! If you eat anything that is derived from wheat, barley, rye or oats, you are eating gluten.

If you want to test the gluten-free diet properly you have to remove ALL traces of gluten from your diet.

I had IBS for years. Going gluten-free and adopting a fairly basic diet with little in the way of carbohydrates has really sorted it out. I have been gluten-free and dairy-free for 4 months and am slowly benefitting from the diet, but it is still early days and I am still tripping up here and there.

As I get to know more and understand more about hidden gluten sources, I should be better able to avoid that. I am just so grateful not to have the constant diarrhea, awful stomach pain, gas and bloating and manic restless legs! Yes the diet is hard work at times, but it is so worth it!

no, no, no. i have cut all wheat/gluten out of my diet.

:) bc it was a new doc i was wondering if there was truth to this. he told me to use some mirilax in a drink once a day to help with constipation and didnt say anything about being allergic to wheat/gluten. just that eating it sometimes causes an irritble bowel.

pele Rookie
I second what RiceGuy said.

Pretty much anything that's called ______ _______ Syndrome, to me, indicates that there's a symptom (or a set of them) that the medical community has no cause to attribute it to.

Before x-rays, maybe some broken bones were called "painful limb syndrome". :P

Very funny! I was always mentally compare IBS to a doctor telling someone with a headache that they have painful cranium syndrome.

Rachel--24 Collaborator
Very funny! I was always mentally compare IBS to a doctor telling someone with a headache that they have painful cranium syndrome.

Thats a good one! :lol::lol:

I actually suffer from that one....."painful cranium syndrome"....I've had it for 5 years now.

I was getting "treated" for it for awhile too. Lots and lots of pills for my "PCS". :P

ravenwoodglass Mentor
no, no, no. i have cut all wheat/gluten out of my diet.

:) bc it was a new doc i was wondering if there was truth to this. he told me to use some mirilax in a drink once a day to help with constipation and didnt say anything about being allergic to wheat/gluten. just that eating it sometimes causes an irritble bowel.

This doctor sounds like a real idiot. Of course gluten will cause IBS in folks that are CELIAC OR GLUTEN INTOLERANT. It sounds like this doc wants to make lots of money off of you. I noticed in your signature that you say you went gluten-free in August and then had a biopsy in December. This virtually ensured the biopsy would be 'negative'. It sounds like you really need to do a real trial of strict gluten free living for at least a few months. Your body is telling you it is poison, don't let some doctor tell you that based on a not very reliable test that you can consume gluten safely.

blondebombshell Collaborator
This doctor sounds like a real idiot. Of course gluten will cause IBS in folks that are CELIAC OR GLUTEN INTOLERANT. It sounds like this doc wants to make lots of money off of you. I noticed in your signature that you say you went gluten-free in August and then had a biopsy in December. This virtually ensured the biopsy would be 'negative'. It sounds like you really need to do a real trial of strict gluten free living for at least a few months. Your body is telling you it is poison, don't let some doctor tell you that based on a not very reliable test that you can consume gluten safely.

ok this new doctor was a result of my past doctor telling me nothing was wrong with me. hives, bloating, etc. would not be indiciative of a gluten allergy. therefore i went to this new doc and he said that the old doc's endoscopy would not be able to tell if i truly did have celiac or not. he said they only test is 3 pieces of bread for 3 months and that ain't happening. that would make me the size of a house, LOL.

anyway, with that being said i was just trying to see if i could be intolerant to something but not allerigic.

Tim-n-VA Contributor
anyway, with that being said i was just trying to see if i could be intolerant to something but not allerigic.

"Intolerant" is one of those words that is used with different meanings. Some people use it in the context of an umbrella term for "something bad happens when I eat..."

On some other sites, I've seen intolerant as specifically a digestive system issue such as in lactose intolerant where the digestive system doesn't have the ability to digest lactose.

Allergies and Celiac are two different systemic responses to gluten. The bottom line to both (and a digestive wheat intolerance) is don't eat gluten.

So the answer is that you can be intolerant and not allergic but it depends what you mean by intolerant.

As a side note, the information that I've read Enterolab is that they use the term "gluten sensitivity" but some people say that Enterolab said they were "gluten intolerant". I don't know if that is people substituting what they think is an equivalent word.

Some people don't think it matters which response you are having since you treat them all the same. Other people believe that it is important to know because of the tendency of similar diseases to ocurr in clusters.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748

    tiffanygosci
    Newest Member
    tiffanygosci
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.