Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For A Celiac Friend For My 7yrs Old Daughter

celiac dad

Recommended Posts

celiac dad Newbie
celiac dad
Posted

My daughter is finding it very hard dealing with her celiac, I am looking for someone around her age with celiac that he or she can talk to her so she doesn

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyberprof Enthusiast
cyberprof
Posted

I forwarded your message to a friend of mine who has a daughter about 10. We are in Seattle.

Good luck!

~Laura

gfpaperdoll Rookie
gfpaperdoll
Posted

Have you contacted your local celiac support group or the ROCK group? There are also children's books that are good...

If the above is not an option how about contacting the local doc that dx her & also an allergist to see if they can make some contacts - wheat is one of the top ten allergies.

You might also ask at her school - surely she is not the only one that has celiac - ask about kids with allergies also - because they all go thru the same things... maybe they can eat wheat but are allergic to chocolate, eggs, strawberries, milk, nuts, etc... Chocolate cake would be out of the question for that child.

yes, all kids need a gluten-free friend...

fedora Enthusiast
fedora
Posted

my daughter is 7 also!!!!

We live in northern california(around Eureka).

she has not been diagnosed celiac but is now on a gluten free diet. We are seeing if it helps with her issues(not growing, mouth sores, moodiness)

She loves to write and would probably be interested in a penpal. We know lots of people who don't eat gluten, but they are all adults are younger kids. There is one boy here who is six.

Rondar2001 Apprentice
Rondar2001
Posted

My daughter is seven and was diagnosed last month. She has actually been adjusting alot better than I thought she would. She checks the ingredients of items she might like and if she sees something she can't have she puts it back and we try to figure out how to make it gluten free. I take her shopping with me to the health food store and she sees some of the good stuff that she can try that we never would have bought before. There are of course the hard times when she wants something but I can usually distract her before she gets too down about it.

On a side note, she was having huge mood swings that have seemed to have settled down a bit since we went gluten free.

We are in Calgary and I'm sure she would love to have a pen pal in the same boat as she's in.

olena Newbie
olena
Posted
Have you contacted your local celiac support group or the ROCK group? There are also children's books that are good...

If the above is not an option how about contacting the local doc that dx her & also an allergist to see if they can make some contacts - wheat is one of the top ten allergies.

You might also ask at her school - surely she is not the only one that has celiac - ask about kids with allergies also - because they all go thru the same things... maybe they can eat wheat but are allergic to chocolate, eggs, strawberries, milk, nuts, etc... Chocolate cake would be out of the question for that child.

yes, all kids need a gluten-free friend...

We have tried everything, support group, doctors, school, no luck localy...

olena Newbie
olena
Posted
my daughter is 7 also!!!!

We live in northern california(around Eureka).

she has not been diagnosed celiac but is now on a gluten free diet. We are seeing if it helps with her issues(not growing, mouth sores, moodiness)

She loves to write and would probably be interested in a penpal. We know lots of people who don't eat gluten, but they are all adults are younger kids. There is one boy here who is six.

Thank you! please do write to sasharockstar@shaw.ca. She has already found two new gluten-free friens in Florida.

She will be so happy!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


olena Newbie
olena
Posted
My daughter is seven and was diagnosed last month. She has actually been adjusting alot better than I thought she would. She checks the ingredients of items she might like and if she sees something she can't have she puts it back and we try to figure out how to make it gluten free. I take her shopping with me to the health food store and she sees some of the good stuff that she can try that we never would have bought before. There are of course the hard times when she wants something but I can usually distract her before she gets too down about it.

On a side note, she was having huge mood swings that have seemed to have settled down a bit since we went gluten free.

We are in Calgary and I'm sure she would love to have a pen pal in the same boat as she's in.

When our daughter was diagnosed last year, she was good with it in a beginning. It made her feel better, everything was Ok. She is having a hard time since recently. The reality is sinking in- it's not going away... her friends at school are all eating gluten... lanch is a torcher! She started withdrawing herself from the group, thinking she is diferent and dosen't belong. Then she started cheatting, trying other kids foods and now it gets to the point were she doesn't want to eat at all. Don't know what to do!

We had a response from a family in Florida with two girls, and my daughter loves corresponding with them.

If your daughter is interested in making a friend, please write

sasharockstar@shaw.ca. We are in Vancouver. Thank you!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

There are so many kids with peanut or dairy allergies--would your daughter feel better hanging out with someone else with a food allergy which isn't the same as hers? You could contact the teacher at school, explain the situation, and ask him/her to put you in touch with other parents dealing with food allergies.

My kids have friends who are allergic to dairy, peanuts, and one who is a vegetarian. All the parents are really good about stocking "safe" food for the affected kids to eat when they are over, since they know what it's like. And, interestingly, the toughest one is the vegetarian! (He is unusually picky, and hates trying anything new, even different brands of ranch dressing and different kinds of cheese! He turned up his nose at cheddar, asking if I didn't have "regular" cheese. Turned out, he meant American, which I turn my nose up at! :P ) We give him cottage chees, salad, rice, and carrot sticks when he's at our house for dinner.

fedora Enthusiast
fedora
Posted

hi,

I told my daughter. I think she would like to write, but needed time to think about what to say. She just went on the gluten free diet(we did a short test run before). It has not been easy this week, she cheated with a cookie on Friday at a play(I will be way more prepared next time). We are not sure if it is going to be the answer, but she has a lot of suggestive symptoms. We have 4 more days of school left. Glad your daughter has made a couple new penpals.

Take care

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lil-oly
      - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye.
    2. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    3. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    5. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748
    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lil-oly
      Gluten tester

      By lil-oly · Posted

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.