Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For A Celiac Friend For My 7yrs Old Daughter


celiac dad

Recommended Posts

celiac dad Newbie

My daughter is finding it very hard dealing with her celiac, I am looking for someone around her age with celiac that he or she can talk to her so she doesn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast

I forwarded your message to a friend of mine who has a daughter about 10. We are in Seattle.

Good luck!

~Laura

gfpaperdoll Rookie

Have you contacted your local celiac support group or the ROCK group? There are also children's books that are good...

If the above is not an option how about contacting the local doc that dx her & also an allergist to see if they can make some contacts - wheat is one of the top ten allergies.

You might also ask at her school - surely she is not the only one that has celiac - ask about kids with allergies also - because they all go thru the same things... maybe they can eat wheat but are allergic to chocolate, eggs, strawberries, milk, nuts, etc... Chocolate cake would be out of the question for that child.

yes, all kids need a gluten-free friend...

fedora Enthusiast

my daughter is 7 also!!!!

We live in northern california(around Eureka).

she has not been diagnosed celiac but is now on a gluten free diet. We are seeing if it helps with her issues(not growing, mouth sores, moodiness)

She loves to write and would probably be interested in a penpal. We know lots of people who don't eat gluten, but they are all adults are younger kids. There is one boy here who is six.

Rondar2001 Apprentice

My daughter is seven and was diagnosed last month. She has actually been adjusting alot better than I thought she would. She checks the ingredients of items she might like and if she sees something she can't have she puts it back and we try to figure out how to make it gluten free. I take her shopping with me to the health food store and she sees some of the good stuff that she can try that we never would have bought before. There are of course the hard times when she wants something but I can usually distract her before she gets too down about it.

On a side note, she was having huge mood swings that have seemed to have settled down a bit since we went gluten free.

We are in Calgary and I'm sure she would love to have a pen pal in the same boat as she's in.

olena Newbie
Have you contacted your local celiac support group or the ROCK group? There are also children's books that are good...

If the above is not an option how about contacting the local doc that dx her & also an allergist to see if they can make some contacts - wheat is one of the top ten allergies.

You might also ask at her school - surely she is not the only one that has celiac - ask about kids with allergies also - because they all go thru the same things... maybe they can eat wheat but are allergic to chocolate, eggs, strawberries, milk, nuts, etc... Chocolate cake would be out of the question for that child.

yes, all kids need a gluten-free friend...

We have tried everything, support group, doctors, school, no luck localy...

olena Newbie
my daughter is 7 also!!!!

We live in northern california(around Eureka).

she has not been diagnosed celiac but is now on a gluten free diet. We are seeing if it helps with her issues(not growing, mouth sores, moodiness)

She loves to write and would probably be interested in a penpal. We know lots of people who don't eat gluten, but they are all adults are younger kids. There is one boy here who is six.

Thank you! please do write to sasharockstar@shaw.ca. She has already found two new gluten-free friens in Florida.

She will be so happy!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



olena Newbie
My daughter is seven and was diagnosed last month. She has actually been adjusting alot better than I thought she would. She checks the ingredients of items she might like and if she sees something she can't have she puts it back and we try to figure out how to make it gluten free. I take her shopping with me to the health food store and she sees some of the good stuff that she can try that we never would have bought before. There are of course the hard times when she wants something but I can usually distract her before she gets too down about it.

On a side note, she was having huge mood swings that have seemed to have settled down a bit since we went gluten free.

We are in Calgary and I'm sure she would love to have a pen pal in the same boat as she's in.

When our daughter was diagnosed last year, she was good with it in a beginning. It made her feel better, everything was Ok. She is having a hard time since recently. The reality is sinking in- it's not going away... her friends at school are all eating gluten... lanch is a torcher! She started withdrawing herself from the group, thinking she is diferent and dosen't belong. Then she started cheatting, trying other kids foods and now it gets to the point were she doesn't want to eat at all. Don't know what to do!

We had a response from a family in Florida with two girls, and my daughter loves corresponding with them.

If your daughter is interested in making a friend, please write

sasharockstar@shaw.ca. We are in Vancouver. Thank you!

Fiddle-Faddle Community Regular

There are so many kids with peanut or dairy allergies--would your daughter feel better hanging out with someone else with a food allergy which isn't the same as hers? You could contact the teacher at school, explain the situation, and ask him/her to put you in touch with other parents dealing with food allergies.

My kids have friends who are allergic to dairy, peanuts, and one who is a vegetarian. All the parents are really good about stocking "safe" food for the affected kids to eat when they are over, since they know what it's like. And, interestingly, the toughest one is the vegetarian! (He is unusually picky, and hates trying anything new, even different brands of ranch dressing and different kinds of cheese! He turned up his nose at cheddar, asking if I didn't have "regular" cheese. Turned out, he meant American, which I turn my nose up at! :P ) We give him cottage chees, salad, rice, and carrot sticks when he's at our house for dinner.

fedora Enthusiast

hi,

I told my daughter. I think she would like to write, but needed time to think about what to say. She just went on the gluten free diet(we did a short test run before). It has not been easy this week, she cheated with a cookie on Friday at a play(I will be way more prepared next time). We are not sure if it is going to be the answer, but she has a lot of suggestive symptoms. We have 4 more days of school left. Glad your daughter has made a couple new penpals.

Take care

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,017
    • Most Online (within 30 mins)
      7,748

    Kayy
    Newest Member
    Kayy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.